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bozone1972
bozone1972 Community member Posts: 33 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
went for a ear test because I could not hear in my TV or my husband there sent me for a MRI got a phone called say that my ears are OK but we have found something on your right side of your brain I had to wait for a phone call from hospital about it got told that I had avm on my brain went to hospital for the day for test yep it came back as AVM it a blood vessel that have come together so I have to got to have some treatment done at Sheffield hospail it has been hard last year 3 days before Xmas that I got kidney disease stage 2this lockdown has been very hard to deal with not b able to go out or even see m kids not even my son on is birthday so I just been doing card making and other things to keep busy
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  • Tommyb92
    Tommyb92 Community member Posts: 73 Courageous
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    hi @bozone1972, sorry to hear of your struggles. It is tough for everyone at the moment, there is a lot of things we cant do. I hope you were able to see your family either via Zoom or Facetime (or another video app) at least so that you may not be there in person but you were there to see them on the day

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  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
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    Hi @bozone1972, sounds like things have been really overwhelming, how are you doing at the moment?

    I'm glad you have found that card making has helped to keep you occupied. It must have been really hard to not see your son. 
    Scope

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  • janer1967
    janer1967 Community member Posts: 21,964 Disability Gamechanger
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    Hi@bozone1972 Welcome to the community, you sure seen to be having it rough at present.

    Keep strong and have assurance they will do all they can to help you. I am also under sheffield hospital and I must say in my experience and my families they are an excellent hospital
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  • bozone1972
    bozone1972 Community member Posts: 33 Connected
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    thanks for getting back just got to carry on with things that all I can do
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  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
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    Hi @bozone1972, hope you are okay today. If there is anything we can do to help then please do let us know. :)
    Scope

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  • bozone1972
    bozone1972 Community member Posts: 33 Connected
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    hi every one went back to hospitals. on 22 of last month. It went ok got told that it been there since 2012 and there was not worried at it at the time because. It was not big he said something. Has to be done now because. Of the size it is 1 cm the treatment. I can have is rad treatment. Or have it cut out about from that am doing ok it my wedding anver coming up
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    Hi @bozone1972. I'm glad to hear that it went ok, and that you have a couple of treatment options. Keep us updated with how things go :) 

    Happy wedding anniversary! How long have you been married for?
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  • bozone1972
    bozone1972 Community member Posts: 33 Connected
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    it will be 12 months in to 2 weejs time 
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  • Tori_Scope
    Tori_Scope Scope Posts: 12,492 Disability Gamechanger
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    Congratulations @bozone1972! May there be much more happiness to come :) 
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