Liver transplant
Options
Zitawarrior
Community member Posts: 2 Listener
I was diagnosed with liver failure in March 2019. In September I started claiming PIP with higher rate care and mobility and ESA under terminal illness and topped up with UC. I was lucky enough to finally undergo a transplant in June 2020. I am now 6 weeks post op and recovering but there is a long way to go and I will be on meds including immunosuppressants for the rest of my life. Could anyone help me with what I am entitled to claim going forward? I anticipate returning to employment just not sure when I may be fit enough to do so.
Thanks in advance for any help.
Comments
-
HI and welcome,Good to hear that everything went well with the op.At the moment the only other benefit that you maybe entitled to is Council tax reduction if you either rent your home or own it. Other than that you're claiming everything you're entitled to.I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
-
Hello @Zitawarrior and a big warm welcome to our community!
I am glad you found us and @poppy123456 was able to give you advice regarding benefits. Does that help?
You will definitely need time off to rest and recover so one step at a time before thinking about returning to work. Your health comes first and you have been through a lot. How are you today?
Online Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
Morning and thank you.I was so ill before the op and feel so much better already than I did. So grateful for what I have received ?
I live with my two sons who are 19 and 21. Youngest has registered as my carer as I was so ill and oldest is employed and pays board each month.I will look into Council Tax but found it so stressful last year as they reduced my payment but then put it right back up. I had letters virtually every week with adjustments and just couldn’t budget around it.I was worrying about how the situation had changed now I have had a transplant ... is there an accepted recovery time where the benefits can stay as is? With my recovery and the fact I have to shield now until at least Christmas because of Covid and my compromised immunity I really don’t know when I will be able to look for work again.Thank you -
It's great to hear that you're feeling so much better now.All changes should be reported but please also remember that PIP isn't about a diagnosis, It's how your conditions affect your ability to carry out daily acticvity based on the PIP descriptors. Although you were awarded based on the terminal illness 6 month rule.As it's only been 6 weeks since your op and they do state change of condition must have been present for at least 3 months. Once you reach 3 months then i'd advise you to have a look at the PIP descriptors to see if your condition inproving will affect the award that you currently have. If it does then you will need to report those changes. Remember also the reliablity criteria and the 50% rule. So if you can't do something reliably, regularly, then you can't do that acitivity at all. You must also need to be affected for at least 50% of the time over a 12 month period.For ESA then it's about your ability to do any type of work and i would think you will be fine with this. Although when you are reviewed again next time then you may have to go through the process with an assessment. Hope this helps. ,I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.If i see a question that i know the answer to i will try my best to help.
-
Welcome to the community @Zitawarrior! Great to have you with us.Scope
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.