Epilepsy and spinabifida
Options

Vannessa
Online Community Member Posts: 14 Listener
Hi is there anyone on here that can talk to me if they are in same boat lol I have epilepsy and spinabifida feel very alone and down sometimes don't have friends or anyone in same boat only family need some friends and someone who understands x
0
Comments
-
Hi Vannessa. I have spina bifida meningocele, hydrochephalus and epilepsy.1
-
Hi there I have the same spinabifida too and epilepsy too had a few seizures while on isolation with the virus struggling alot now with the spinabifida alot if pain and finding it hard coming to terms with nit able to do stuff like I used too hope u are well and staying safe thankyou so much for messaging feel better knowing there is someone like me x0
-
Hi, I have Spina Bifida but not epilepsy, I do have a nicely tethered cord though.
Like you, I find it hard to come to terms with not being able to do things I used to be able to do, it's very frustrating.0 -
Hi there glad I've got someone coping with same as me I have alot of day to day issues with epilepsy wot about u from head pain and severe heads that stop me from doin stuff I have generalised and photosensitive epilepsy so sometimes even on here hurts and makes me ill to just lights too hubby seen me have seizure for first time and it scared him so much he thought I'd died hope u having a great day plus I've only just been allowed out from isolation for 3 month that was hard sometimes don't feel like I'm any use to anyone not working now either family supportive tell me to stop bring silly but I have always done something and now very little x0
Categories
- All Categories
- 15.2K Start here and say hello!
- 7.2K Coffee lounge
- 87 Games den
- 1.7K People power
- 118 Announcements and information
- 24K Talk about life
- 5.7K Everyday life
- 395 Current affairs
- 2.4K Families and carers
- 863 Education and skills
- 1.9K Work
- 522 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 879 Relationships
- 255 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 921 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.1K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income