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We need a consultant for help with our 17 year old's CP

Hello, we are in West Sussex and are looking for a consultant to review my 17 year olds CP. we seem to have dropped through the gaps and have never had an NHS consultant as her diagnosis was private when she was 8. She is getting all sorts of new symptoms but we are only being offered pain management but I would like to have someone assess her so that we can understand or rule out causes. Any advise gratefully received. Thankyou
Replies
I've moved your post to our Cerebral Palsy discussion board so other people who have knowledge/experience of CP can spot it and help.
I think @poppy123456's advice about speaking to her GP is a good first step. They should be able to refer her on for specialist NHS care.
Also, who is offering pain management? I can understand you wanting more support as her symptoms develop so I do really hope you get it ASAP.
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Good to meet you.
As @poppy123456 has mentioned, speaking to your G.P. should be your first action, so your daughter can be put on the Cerebral Palsy Pathway. Can I ask, what are the new symptoms? If your daughter has been referred to the pain management team then she must have been assessed by the NHS at some point?
Specialist Information Officer - Cerebral Palsy
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There are centres in the U.K where your daughter could be referred.
National Hospital of Neurology & Neurosurgery, London
Robert Jones & Agnes Hunt Hospital, Oswestry
St Georges Hospital, London
Nuffield Orthopaedic Centre, Oxford
University Hospital, Bristol
Royal National Orthopaedic Hospital, London
Specialist Information Officer - Cerebral Palsy
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