Hi, my name is Kandej!
Kandej
Online Community Member Posts: 5 Listener
Hi everyone,
This is my first post, I stumbled across this forum quite by chance. I have Systemic Mastocytosis.
This is my first post, I stumbled across this forum quite by chance. I have Systemic Mastocytosis.
0
Comments
-
Hello and welcome to the community @Kandej! We're glad you stumbled across us
I hadn't heard of Systemic Mastocytosis before you posted, but just looked it up. Would you like to share anything about the condition, or about yourself?
Please feel free to get involved in any discussions that catch your eye. A good place to start is our virtual coffee lounge, where you can get to know our other members a bit better. You can also have a look through all of the recent discussions to get a feel for what our members are talking about. We have a category dedicated to undiagnosed and rare conditions too, which might interest you.
Give us a shout if you need anything!0 -
Hi @Kandej - It's great you stumbled across this forum as the community is both friendly & supportive. I don't know if you've come across it, but there's a support group for those with your condition. Please see: https://ukmasto.org/ I've only heard a little about it from having read up on Mast Cell Activation Disorder....altho I haven't sort a diagnosis, I have symptoms of this, & it's found in some of us that have a genetic disorder (Ehlers-Danlos Syndrome).Anyway, thank you for joining, & I hope you enjoy being part of the community. I hope to see you around the forum, & do chat here any time.
1 -
0
-
Hi Everyone, thankyou all for your welcome messages, Happy Halloween to you all1
Categories
- All Categories
- 15.8K Start here and say hello!
- 7.6K Coffee lounge
- 106 Games den
- 1.8K People power
- 160 Announcements and information
- 25.3K Talk about life
- 6.2K Everyday life
- 512 Current affairs
- 2.5K Families and carers
- 874 Education and skills
- 2K Work
- 581 Money and bills
- 3.7K Housing and independent living
- 1.2K Transport and travel
- 644 Relationships
- 1.6K Mental health and wellbeing
- 2.5K Talk about your impairment
- 882 Rare, invisible, & undiagnosed conditions
- 942 Neurological impairments and pain
- 2.2K Cerebral Palsy Network
- 1.3K Autism and neurodiversity
- 40.9K Talk about your benefits
- 6.1K Employment & Support Allowance (ESA)
- 20.3K PIP, DLA, ADP & AA
- 9.1K Universal Credit (UC)
- 5.3K Benefits and income



