If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is Kandej!
Kandej
Member Posts: 5 Listener
Hi everyone,
This is my first post, I stumbled across this forum quite by chance. I have Systemic Mastocytosis.
This is my first post, I stumbled across this forum quite by chance. I have Systemic Mastocytosis.
Comments
-
Hello and welcome to the community @Kandej! We're glad you stumbled across us
I hadn't heard of Systemic Mastocytosis before you posted, but just looked it up. Would you like to share anything about the condition, or about yourself?
Please feel free to get involved in any discussions that catch your eye. A good place to start is our virtual coffee lounge, where you can get to know our other members a bit better. You can also have a look through all of the recent discussions to get a feel for what our members are talking about. We have a category dedicated to undiagnosed and rare conditions too, which might interest you.
Give us a shout if you need anything!Online Community Coordinator, she/her
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to tell us how we're doing? Complete our feedback form now. -
Hi @Kandej - It's great you stumbled across this forum as the community is both friendly & supportive. I don't know if you've come across it, but there's a support group for those with your condition. Please see: https://ukmasto.org/ I've only heard a little about it from having read up on Mast Cell Activation Disorder....altho I haven't sort a diagnosis, I have symptoms of this, & it's found in some of us that have a genetic disorder (Ehlers-Danlos Syndrome).Anyway, thank you for joining, & I hope you enjoy being part of the community. I hope to see you around the forum, & do chat here any time.
-
-
Welcome to the community @Kandej. Please feel free to have a browse and post in any discussions you find interesting.
Han -
-
Hi Everyone, thankyou all for your welcome messages, Happy Halloween to you all
-
You're welcome @Kandej - & Happy Hallowe'en to you too.
Brightness
Categories
- 55.5K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 161 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 845 Work and employment
- 601 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 305 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.4K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.9K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 710 Chronic pain and pain management
- 720 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 953 Mental health and wellbeing
- 315 Sensory impairments
Complete our feedback form and tell us how we can make the community better.
