Parents, carers and disabled parents
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emotional support

gbaker051289gbaker051289 Member Posts: 2 Listener
Hi, i have a diagnosis of autism myself and my 11 year old son is currently being assessed, so he has undiagnosed autism. 

Lately, ive been finding iv'e simply 'had enough' of dealing with the issues we face on a daily basis. I think im facing a kind of burnout scenario. My son has his needs, he's abov aerage average in terms of his needs at his age and as his mother, i can honestly say i will always be there. I will always be the one, that will support him, fight for him, stand by him through everything he needs.

In the same breath, iv'e just had enough of it all. Im exhausted and i wake somedays, feeling so overwhelmed by our situation. 

I'm forever told by people i speak to, to take time out for myself, relax, have 5, but its easier said than done and i'm even finding it hard to find the time to do this. 

How do other parents/carers strike that balance, between supporting the child and supporting yourself? (its so hard and im really feeling it lately). 

Thanks all. 


  • chiariedschiarieds Community Co-Production Group Posts: 10,139 Disability Gamechanger
    HI @gbaker051289 - & welcome to the community, tho I'm sorry that I can't directly answer your query. I can only say, & hope it helps both yourself & son, that Scope offers some help. They have a programme called 'Navigate' that has helped many parents. Please see: 
    I do hope this may help, & you'd consider it. As a Mum I do know how much you fight for the best for your child/children.
    As well as 'Navigate' please know that this community also offers support at all times...come here please at any time. We are here to listen or chat whenever you might need it. Thank you for joining this community. :)

  • poppy123456poppy123456 Member Posts: 22,914 Disability Gamechanger
    HI and welcome,

    Yes, i can certainly relate to this. Having been a single mum to 3 children (although all grown up now) my youngest will be 20 in less than 2 weeks and still lives at home. She has ASD and a learning disability and wasn't diagnosed until she was 17.

    Having a disability myself with 3 children growing up, it wasn't an easy process and i had my hands full. My eldest daughter was and is my absolute rock and i have to admit if it wasn't for her i have no idea where i would be now and what i would have done. She's my world, my everything and my dearest best friend. She now has a son of her own and he's the apple of my eye! he's 9 months old now.

    As for help, you can refer your son for a needs assessment and also refer yourself for a carers assessment and you can do this by contacting your local council Social Services department through these links.

    Under normal circumstances both assessments are usually completed in your own home but for obvious reasons this may not be possible at the moment. It maybe that the assessments will be completed through telephone calls. Not ideal but better than nothing.

    I hope this helps.

    Proud winner of the 2019 empowering others award. This award was given for supporting disabled people and their families for the benefit advice I have given to members here on the community.
  • woodbinewoodbine Community Co-Production Group Posts: 5,026 Disability Gamechanger
    @gbaker051289 hi and welcome to scope, sorry to hear that its all getting on top of you at the moment, do you get any help and support?
    Scope is a really supportive place and if you want to chat or just let off steam it's a great place to come to.
    I will now only offer benefits advice on PIP, and specific benefits advice for other people with Epilepsy. 
  • Louise_ScopeLouise_Scope Scope Parents Connect service Posts: 8 Courageous
    @gbaker051289 - as well as the Navigate service, we also have our Parents Connect sessions starting up again this week. They are 6 week Zoom sessions where you can meet other parents of children with additional needs. We work on your own well-being and how to develop resilience when you're a parent of a child with needs. Please either follow this link: or email us at [email protected]

    Take care
    Team leader - Parents Connect
  • Ross_ScopeRoss_Scope Posts: 4,611

    Scope community team

    Hello @gbaker051289 and welcome. 

    I'm sorry to read that you're finding things a struggle at the moment, it must be hard. From my point of view though you seem to be doing a marvellous job. 

    As mentioned above, the Parents Connect sessions might be of use to your situation so I would definitely recommend looking into those. Hopefully your son's assessment concludes soon and you get an outcome that you're hoping for, which will enable you to receive support.
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  • janer1967janer1967 Member Posts: 11,995 Disability Gamechanger
    Hi and welcome from me too and hope you find some support from the community 
    Here to help with my experience in hunan resources and employment rights 
  • gbaker051289gbaker051289 Member Posts: 2 Listener
    thank you for your help/guidance. 
    Really apprecited. :smile: 

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