Lupus and how it affects your life - Page 2 — Scope | Disability forum
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Lupus and how it affects your life

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  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,911 Disability Gamechanger
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    Ross scope yes over the years I have learnt  to manage my lupus I have had to realy as it wasn't realy known about 

    I was refferd to st Thomas hospital  London by my doctor when I moved to Wales  I had been diagnosed with so many different conditions and I nearly died because of it as some medications can make lupus worse 

    I am now on frsgmin I junctions for the rest of my life  and I have  forti  sips drinks which is like a milk shake  which has all the vitamins in it  that people can normaly hold in their body  I have 3 aday  as I constantly  have to put vitamins into my body  because I don't hold vitamins   can at least save my hair now 

    I lost my teeth  apart from two along with my gums   my nails grow now and I dont have as many ofections 

    I vr new symptoms every now and again as my lupus progresses so then have to get used to something else  as I have said above I have lupus with variants  which is hard to explain but I did my best in the above 

    I wanted to do this post to see if any one else on here gad got lupus and to see how many other conditions have simillar  symptoms to lupus  as lupus is a hard condition to diagnose  I was lucky thst I had a doctor who ne what lupus wS  and when my daughter was old enough she was tested and treated straight away  and her lupus hand affected her so much 

    Thank you  Ross scope for commrnting
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  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
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    You are welcome, and thank you for sharing your experiences on the community :) 

    Hello to all

    I hope you're all as well as you can be, despite the difficult start we've had to 2021.

    Some of you may have noticed that the community team weren't online as often as usual over the Christmas and New Year period. We were working reduced hours during this time, but we're now back to covering our usual shifts. This means that at least one member of the team will be available from 8am to 8pm every weekday, and from 10am to 6pm every weekend. 

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