Living with a rapidly worsening medical mystery and need help
It has been a long and mystifying journey and after six years of trying desperately to get to the bottom of my condition with no shortage of helplessness, finally it has lead me here. I want to first say that I am aware of how unusual the initial cause of this will sound. It was my birthday of 2015, I was just turning 16 when my life was altered by the sudden onset of symptoms that followed smoking with a group of friends. For reference, I was a teenager who had no prior experience to smoking weed or getting high, I was someone who wasn't too keen on it in the first place, but I was with a group of peers who recommended it to help me take an edge off. I didn't think too much of it other than this is what teenagers do and I felt comfortable knowing that it's considered a safe experience by most people. What I can dig up from memory is that the kids were smoking either a blunt or a bowl and trying to show me how to do it correctly to get a proper high. I wasn't too concerned with the whole how to smoke or what I was smoking stuff, so I just took their advice and listened to their suggestions. To make a long story short, I smoked well past my limits for a first timer and took an inhale that instantly made me feel as though I couldn't breathe and was going to choke to death. I felt fuzzy and extremely scared. I triggered the first wave of symptoms that I've been dealing with ever since. The first of which being something that causes me to feel a frequent hollow feeling in my airway that almost feels as if the smoke caused some damage to it. I don't know if that's possible or how to prove that it is, but all I can say for sure is that even though I breathe normally, it still feels like there's some sort of affect it had. Then there's the daily episodes fear, fatigue, panic and uncontrollable fight-or-flight symptoms like profuse sweating, a sensation of heat, a fast heart rate and intense trembling all over my body. In the six years since this incident, I have been in and out of emergency rooms and as with most medical mysteries, all my regular tests come back normal but the symptoms remain and don't cease. Sadly they have gotten so much worse with time. I have taken steps taken to treat it on my own with herbs and lifestyle changes to no avail. I feel malaise every day. The sad part is no one in my family believed me when I told them what I was suffering with, forcing me to live with it. For the first year or two after the incident and the symptoms developed, I began to adjust and live with them as best as I could seeing as no doctor could properly diagnose me and my family was fed up. I didn't want to burden them and I stopped fighting for an answer, accepting that whatever was wrong with me was not going to be known. With each passing year the symptoms have only gotten more pervasive and intense to the point where I am currently disabled because of them and unable to lead a quality life. It was such an unusual set of circumstances to have developed a condition like this from that for the longest time I was simply afraid to share my story and reach out to as many people as I could for help because I was deeply afraid of being invalidated and disregarded. Many doctors I went to were only addressing it as an panic/anxiety disorder and simply shrugging it off as a psychiatric condition, which only cemented my feeling of hopelessness in ever finding the help I desperately need to understand what really happened to me that day and why I deal with all these progressively worsening uncomfortable symptoms. What happens to me now through the day is I'll have rises and falls of the symptoms, my breathing will feel funny, I'll start to sweat and feel heat all over my body, I'll tremble and then I need to take a walk and give one of my close friends a call for comfort until it starts to subside. If anyone on here could help me investigate what the medical anomalies I have might be or point me in the direction of where I could more options to diagnose or treat it, it would be so greatly appreciated. I need so much support. I have not been able to live a single day in six years without thinking that this condition will shorten my life. Even though nothing came up from standard tests at the emergency room I know for certain that something is amiss and that the majority of these symptoms have some underlying physical factors that no one has been able to diagnose yet. To anyone who reads this, thank you for taking your time out to. I look forward to hearing from anyone with a new perspective or guidance on my condition.