Hi, my name is flowerpot1!
flowerpot1
Online Community Member Posts: 3 Listener
I’ve suffered from cidp for the past 5 years and it’s just flared up again quite badly. Back on steroids but feeling pretty rubbish to be honest. How is everyone else coping with it?
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Hi and welcome sorry to hear your mot feeling well and hope you get better soon
I dont know what cipd is to be honest0 -
Thank you. It’s where your immune system attacks your nerve endings and you get horrific nerve pain and numbness in your hands and feet. Thank you for your message.0
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Your welcome
I know about nerve pain I have peripheral neuropathy in my hands and foot and leg . Also nerve pain in my amputated leg which is strange as it feels like it's where there is no leg
Look forward to seeing you around0 -
Sorry to hear about your neuropathy....l have full sympathy for you.0
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Hello @flowerpot1
Welcome to the community, glad you've joined us.
I'm sorry to hear your cipd is causing you a bit of grief at the moment, hopefully you feel better soon
I'm not sure how much of the community you have browsed, but the virtual coffee lounge is always a good place to start, that's where we play games and talk about all sorts of other topics 0
