Hi, my name is flowerpot1!

flowerpot1

I’ve suffered from cidp for the past 5 years and it’s just flared up again quite badly. Back on steroids but feeling pretty rubbish to be honest. How is everyone else coping with it? 

janer1967

Hi and welcome sorry to hear your mot feeling well and hope you get better soon 

I dont know what cipd  is to be honest 

flowerpot1

Thank you. It’s where your immune system attacks your nerve endings and you get horrific nerve pain and numbness in your hands and feet. Thank you for your message. 

janer1967

Your welcome 

I know about nerve pain I have peripheral neuropathy in my hands and foot and leg . Also nerve pain in my amputated leg which is strange as it feels like it's where there is no leg 

Look forward to seeing you around 

flowerpot1

Sorry to hear about your neuropathy....l have full sympathy for you. 

Ross_Scope

Hello @flowerpot1

Welcome to the community, glad you've joined us. 

I'm sorry to hear your cipd is causing you a bit of grief at the moment, hopefully you feel better soon  

I'm not sure how much of the community you have browsed, but the virtual coffee lounge is always a good place to start, that's where we play games and talk about all sorts of other topics