Hi, my name is flowerpot1!
flowerpot1
Community member Posts: 3 Listener
I’ve suffered from cidp for the past 5 years and it’s just flared up again quite badly. Back on steroids but feeling pretty rubbish to be honest. How is everyone else coping with it?
0
Comments
-
Hi and welcome sorry to hear your mot feeling well and hope you get better soon
I dont know what cipd is to be honest0 -
Thank you. It’s where your immune system attacks your nerve endings and you get horrific nerve pain and numbness in your hands and feet. Thank you for your message.0
-
Your welcome
I know about nerve pain I have peripheral neuropathy in my hands and foot and leg . Also nerve pain in my amputated leg which is strange as it feels like it's where there is no leg
Look forward to seeing you around0 -
Sorry to hear about your neuropathy....l have full sympathy for you.0
-
Hello @flowerpot1
Welcome to the community, glad you've joined us.
I'm sorry to hear your cipd is causing you a bit of grief at the moment, hopefully you feel better soon
I'm not sure how much of the community you have browsed, but the virtual coffee lounge is always a good place to start, that's where we play games and talk about all sorts of other topics0
Categories
- All Categories
- 13.6K Start here and say hello!
- 6.7K Coffee lounge
- 51 Games den
- 1.6K People power
- 32 Community noticeboard
- 20.9K Talk about life
- 4.8K Everyday life
- 2.2K Families and carers
- 795 Education and skills
- 1.7K Work
- 383 Money and bills
- 3.2K Housing and independent living
- 806 Transport and travel
- 626 Relationships
- 1.2K Mental health and wellbeing
- 2.2K Talk about your impairment
- 835 Rare, invisible, and undiagnosed conditions
- 885 Neurological impairments and pain
- 1.8K Cerebral Palsy Network
- 1.1K Autism and neurodiversity
- 33.6K Talk about your benefits
- 5.4K Employment and Support Allowance (ESA)
- 17.9K PIP, DLA, and AA
- 5.6K Universal Credit (UC)
- 4.7K Benefits and income