Hi, my name is flowerpot1!

flowerpot1
flowerpot1 Community member Posts: 3 Listener
in Start here and say hello!
I’ve suffered from cidp for the past 5 years and it’s just flared up again quite badly. Back on steroids but feeling pretty rubbish to be honest. How is everyone else coping with it? 

Comments

  • janer1967
    janer1967 Community member Posts: 21,922 Championing
    Hi and welcome sorry to hear your mot feeling well and hope you get better soon 

    I dont know what cipd  is to be honest 
  • flowerpot1
    flowerpot1 Community member Posts: 3 Listener
    Thank you. It’s where your immune system attacks your nerve endings and you get horrific nerve pain and numbness in your hands and feet. Thank you for your message. 
  • janer1967
    janer1967 Community member Posts: 21,922 Championing
    Your welcome 

    I know about nerve pain I have peripheral neuropathy in my hands and foot and leg . Also nerve pain in my amputated leg which is strange as it feels like it's where there is no leg 

    Look forward to seeing you around 
  • flowerpot1
    flowerpot1 Community member Posts: 3 Listener
    Sorry to hear about your neuropathy....l have full sympathy for you. 
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @flowerpot1

    Welcome to the community, glad you've joined us. 

    I'm sorry to hear your cipd is causing you a bit of grief at the moment, hopefully you feel better soon :) 

    I'm not sure how much of the community you have browsed, but the virtual coffee lounge is always a good place to start, that's where we play games and talk about all sorts of other topics :) 

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