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Morning

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  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    Oh @Oxonlady - I'm sorry to read this, but hope this will be looked into further if you do indeed go back into hospital......sometimes it's the best place to find some answers. As you suggest a total joint replacement is an option, but you might want to have a look through this site too, so that you can ask questions about any treatment. Please see: https://www.physio-pedia.com/Avascular_Necrosis
    If all else fails, perhaps a hip replacement may after all help in making you pain free (well apart from your neuropathic pain). I do appreciate your apprehension, because as well as having the hypermobile type of Ehlers-Danlos Syndrome (which resulted in the generalised osteoarthrosis I've mentioned) + neuropathic pain due to Chiari 1 Malformation, I managed to fracture my hip (the neck of the femur) over 4 years ago. I was very concerned, as I was told I may still end up needing a hip replacement. My friend had a hip replacement 6 months after I fractured my hip, & he fared better than me.....we compared notes!
    We're all here for you, & I will keep you in my prayers & thoughts.
  • Oxonlady
    Oxonlady Scope Member Posts: 566 Pioneering
    Thank you @chiarieds. All prayers appreciated! 
  • Lisatho11987777
    Lisatho11987777 Scope Member Posts: 5,911 Disability Gamechanger
    @Oxonlady sorry to hear your not well hope that you get help and support that you need to get better take care x
  • Oxonlady
    Oxonlady Scope Member Posts: 566 Pioneering
    Thank you @lisathomas50

    I hope you and your Mum are ok. 
  • Ibelive2020
    Ibelive2020 Community member Posts: 799 Pioneering
    @oxonlady i do hope that you get well soon thinking of you xxx
  • Oxonlady
    Oxonlady Scope Member Posts: 566 Pioneering
    Hi @Ibelive2020, how are you this morning?
    Thank you for thinking of me.
    Last night wasn't as bad as the night before but really I need to see the specialist asap. My bones are making very peculiar noises every time I move!
    I'm hoping for sunshine today. So far it's very cold here in London. What's it like where you are?

  • Ibelive2020
    Ibelive2020 Community member Posts: 799 Pioneering
    @oxonlady i was up few times through night só got up at 5am im still in pain now in my hands hip right shoulder and left hand and ankle going tó táke some meds now its nice and sunny here in county durham hope your ők and thát you feel well soon xxx
  • Oxonlady
    Oxonlady Scope Member Posts: 566 Pioneering
    Hi @Ibelive2020, sorry to hear you are in pain, I hope the tablets help.
    It's very frustrating to be in pain all the time and not being able to do things. 
    I'm trying to stay positive but it's not always easy.
    Try to get some rest when you can. 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    Morning everyone and I'm sorry to hear so many of you are dealing with chronic pain  :( 

    Please let us know how you get on with hearing back from the hospital @Oxonlady We are all rooting for you.  And, I hope this Tuesday treats you well @Ibelive2020 - take it easy  <3
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  • Ibelive2020
    Ibelive2020 Community member Posts: 799 Pioneering
    Thanks everyone xx
  • Oxonlady
    Oxonlady Scope Member Posts: 566 Pioneering
    Hi @Cher_Scope, today has been a bit of a struggle as I am having some side effects from one of my new painkillers but I have to stick with it for now as I'm pretty much allergic to everything else!
    I'm hoping that each day will be better... somehow!
    I hope that you are well. 
    Wishing you a peaceful night. 
  • Cher_Alumni
    Cher_Alumni Scope alumni Posts: 5,741 Disability Gamechanger
    edited April 2021
    @Oxonlady Hello there, how was your night?  I really hope you got some rest and your pain eases.  I'm doing well thanks, loving the sunshine outside today.  It lifts the spirits doesn't it?
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