Hi, my name is marzi84!

marzi84
marzi84 Online Community Member Posts: 1 Listener
in Start here and say hello!
Hi, l have a daughter with congenital myasthenic syndrome she is 10 months old, l hoping to get to know some others carers with children with similar conditions and raise awareness. No body knew what was wrong with her when she was born we got out diagnosis whilst she was in intensive care at 4 months old. 

Comments

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @marzi84

    Welcome to the community, I hope you are well.

    Thanks for telling us about your daughter. Is she receiving all the support she might need?

    Raising awareness is always a good thing to do, and I hope you find others with similar situations.
  • chiarieds
    chiarieds Online Community Member Posts: 17,155 Championing
    Hi @marzi84 - & welcome to the community. How is your daughter getting on? This must have been a difficult time for you with her in intensive care for so long, Does she have any difficulty with feeding? I hope you're having a good weekend, & I look forward to hearing from you again. :)

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