Hi, my name is marzi84!
Options
marzi84
Community member Posts: 1 Listener
Hi, l have a daughter with congenital myasthenic syndrome she is 10 months old, l hoping to get to know some others carers with children with similar conditions and raise awareness. No body knew what was wrong with her when she was born we got out diagnosis whilst she was in intensive care at 4 months old.
Comments
-
Hello @marzi84
Welcome to the community, I hope you are well.
Thanks for telling us about your daughter. Is she receiving all the support she might need?
Raising awareness is always a good thing to do, and I hope you find others with similar situations.Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
Hi @marzi84 - & welcome to the community. How is your daughter getting on? This must have been a difficult time for you with her in intensive care for so long, Does she have any difficulty with feeding? I hope you're having a good weekend, & I look forward to hearing from you again.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 738 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions