New condition - what do I do ? ADHD

butterflycake
Online Community Member Posts: 17 Listener
Hi,
I’m on standard for living and non for mobility. I should have mobility one as I have non tuberculosis mycobacterium in my leg. This caused surgery on my leg and it affects my walking ( 80% of the time ) But I didn’t contest it as I found it stressful. And I was so sick with my antibiotics I couldn’t deal with it. I also have asthma and IBS. I was told I had depression and anxiety but after new testing I’ve been told no it’s ADHD ( pysc assemsment )
Do I need to call dwp? I’m scared . I’m afraid they won’t believe me, cancel my award . I have nothing to hide I just hate questions . I’m unsure what to do as my mental health affects me a lot and I didn’t think mental health was a disability with dwp ( I know I’m just anxious about it ) . My everyday life is affected . I have panic attacks especially if I see any type of blood or beeps that sound like hospital machines ( months in isolation in hospital has done that )
My award was due to be reviewed last year but covid stopped it . And I’m unsure when it will be reviewed ?
many thanks for any replies
I’m on standard for living and non for mobility. I should have mobility one as I have non tuberculosis mycobacterium in my leg. This caused surgery on my leg and it affects my walking ( 80% of the time ) But I didn’t contest it as I found it stressful. And I was so sick with my antibiotics I couldn’t deal with it. I also have asthma and IBS. I was told I had depression and anxiety but after new testing I’ve been told no it’s ADHD ( pysc assemsment )
Do I need to call dwp? I’m scared . I’m afraid they won’t believe me, cancel my award . I have nothing to hide I just hate questions . I’m unsure what to do as my mental health affects me a lot and I didn’t think mental health was a disability with dwp ( I know I’m just anxious about it ) . My everyday life is affected . I have panic attacks especially if I see any type of blood or beeps that sound like hospital machines ( months in isolation in hospital has done that )
My award was due to be reviewed last year but covid stopped it . And I’m unsure when it will be reviewed ?
many thanks for any replies
0
Comments
-
You do not need to contact DWP just because you have a new diagnosis. PIP is based on how your health conditions affect you - not on the diagnosis.
If your difficulties have changed such that you think you would now qualify for a different award you can inform them and will be reassessed. Before doing this you need to be sure that you fully understand the PIP descriptors and how it is scored.
https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-points-system
You may want to seek advice https://advicelocal.uk
You say a review was due last year. Did you get a letter advising you your existing award had been extended?0 -
Hi there
If you think your condition has got worse and you would get a higher award then you can report a change in circumstances
This will start a new process eg forms an assessment and a new decision which will then take over your current award
As your current award may be reviewed at anytime it may just be worth waiting for your review
You should get some expert advice b4 considering reporting a change and cintact welfare rights for this0 -
calcotti said:You do not need to contact DWP just because you have a new diagnosis. PIP is based on how your health conditions affect you - not on the diagnosis.
If your difficulties have changed such that you think you would now qualify for a different award you can inform them and will be reassessed. Before doing this you need to be sure that you fully understand the PIP descriptors and how it is scored.
https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-points-system
You may want to seek advice https://advicelocal.uk
You say a review was due last year. Did you get a letter advising you your existing award had been extended?
thanks for your reply.
I did get a letter saying it was extended due to covid ? but I can’t remember how much . It was amongst the first lockdown. I have had a letter since saying that it’s gone up by £1 I believe that is all. I have can’t remember the exact date when it’s to be reviewed.0 -
janer1967 said:Hi there
If you think your condition has got worse and you would get a higher award then you can report a change in circumstances
This will start a new process eg forms an assessment and a new decision which will then take over your current award
As your current award may be reviewed at anytime it may just be worth waiting for your review
You should get some expert advice b4 considering reporting a change and cintact welfare rights for this
Thanks for your reply.☺️ It has but I am worried of rocking the boat . And I think you’re right. I’m also just concerned with getting in trouble if I am on new meds etc .0 -
You don't need to report new meds or new diagnosis
You only need to report if your functionality to complete the descriptors has changed
And again only worth reporting if you think youbwouod score more points to get a higher award1 -
butterflycake said: I’m also just concerned with getting in trouble if I am on new meds etc .0
-
Thank you. I found out pip expires in june 2022. when will they contact me ?0
-
butterflycake said:Thank you. I found out pip expires in june 2022. when will they contact me ?0
-
Thank you ☺️0
Categories
- All Categories
- 15.4K Start here and say hello!
- 7.3K Coffee lounge
- 88 Games den
- 1.7K People power
- 119 Announcements and information
- 24.1K Talk about life
- 5.8K Everyday life
- 423 Current affairs
- 2.4K Families and carers
- 872 Education and skills
- 1.9K Work
- 533 Money and bills
- 3.6K Housing and independent living
- 1.1K Transport and travel
- 627 Relationships
- 1.5K Mental health and wellbeing
- 2.5K Talk about your impairment
- 866 Rare, invisible, and undiagnosed conditions
- 923 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.9K Talk about your benefits
- 6K Employment and Support Allowance (ESA)
- 19.7K PIP, DLA, ADP and AA
- 8.4K Universal Credit (UC)
- 5.7K Benefits and income