Need some advice.

As you might remember I am suffering with cerebral palsy which I’ve had since birth. For the past 10 years I’ve been going to the doctors about various problems which I believe are related to my CP, I keep getting fobbed off with  different medications which I believe they are using to try and treat the symptoms but not really explore the cause.
since giving birth to my daughter two years ago I believe that my symptoms of CP have worsened and I’ve been really struggling recently to manage looking after myself and my daughter. i’ve been struggling with chronic pain and extreme exhaustion. I go to bed with terrible cramps in my muscles and wake up with terrible cramps in my muscles. I’ve also been suffering with insomnia. i’m not able to be as active as I used to be and I find the simplest things overwhelming my body. my doctors have given me iron tablets, tried to put me on antidepressants, told me to take paracetamol four times a day and then finally after 10 years of pushing they put me on amitriptyline. they also promised me that I have an appointment with a specialist in neurology. The amitriptyline was working well and I was looking forward to seeing the specialist when I received a letter telling me that they wanted me to come off my amitriptyline and that I did not need to see a specialist as they put my symptoms down to me having acute migraines. I mean I think it’s a bit ridiculous really I’ve had cerebral palsy since birth and all my symptoms seem to relate to that. never once have I complained of a headache,  my only complaint was that when my body was extremely fatigued and I was becoming really exhausted that my vision was a bit blurry at times but that to me doesn’t really seem like a migraine. So I came off the amitriptyline and started to take the new medication they had offered me pregabalin. After taking just one dose and Tuesday night I woke up Wednesday morning unable to move or speak the whole left side of my body wasn’t working, my face was drooping  and I couldn’t smile. My partner thought I was having a stroke I didn’t even know what was going on. I managed to call the doctor but couldn’t get my words out so she’s all my partner to call 999, I went to hospital in an ambulance and I was so worried what was happening because I genuinely had no idea. I was given blood tests and a CT scan and eventually came around later that day. I was told I was well enough to go home my scan was clear and they had no idea what was wrong with me the only exclamation could be that had a bad reaction to the pre-Gabalin. I then phoned my doctor back to explain what is happened and she told me to go back on the amitriptyline. There is still no sign of me seeing a specialist or getting any kind of physio or any other help for that matter really. So if anyone has and any advice on how to take this forward and if there’s any way I can get help to go see a specialist I would be most grateful. I’m a 26-year-old mum of a two-year-old I was really struggling at the moment and my doctors just don’t seem to want to know. Thanks for listening.