Usher Syndrome

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malc66
malc66 Online Community Member Posts: 3 Listener
edited July 2024 in Talk about your impairment
Hello.
Was wondering if anyone else has usher syndrome ?

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  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @malc66

    Thanks for posting. 

    I must admit that before reading your post I hadn't heard of Usher Syndrome. Do you receive any support to manage your sensory loss? 

    One good place to look would be Facebook, there might be groups on there that will have many other people who share your condition. 

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