Hi, my name is Amyknott! My daughter is two years old and has been diagnosed with epilepsy

Amyknott
Amyknott Online Community Member Posts: 5 Listener
edited October 2021 in Families and carers
Hi my daughter is 2 years old has been diagnosed with epilepsy and isnt great on her feet I've been advised to get her a swifty pram to help her get around we are based in Blackpool I cant afford the prices of one of these prams I'm just wondering how I'd go about getting one were not under occupational therapy yet is there a charity that help fund them 
Thankyou
Amy

Comments

  • poppy123456
    poppy123456 Online Community Member Posts: 64,458 Championing
    edited October 2021
    Hi,
    There's "family fund" that give grants to families of disabled children. You need to be claiming certain means tested benefits for this, full details here. https://www.familyfund.org.uk/FAQs/are-we-eligible-to-apply
    There's more information here for grants. https://www.disability-grants.org/grants-for-children.html
    You can also try googling your local area to see what's available. Hope this helps.


  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Hello @Amyknott

    Wishing you a warm welcome, I hope you are well today.

    Have you discussed with your daughter's doctor about an OT review? That could help to get certain mobility aids for her. The NHS website has this information:

    "You can get occupational therapy free through the NHS or social services, depending on your situation.

    You can:

    Alternatively, you could look to buy one second hand through a platform like Facebook, and Scope have a help page here that provides signposts to places where you might be able to get used equipment for disabled people.
  • Amyknott
    Amyknott Online Community Member Posts: 5 Listener
    Sorry I've only just seen this I'm not sure when we will get the review hopefully be soon as my little girl needs a specialist pram to help keep her safe aswell 
  • Amyknott
    Amyknott Online Community Member Posts: 5 Listener
    Thankyou poppy we get carers allowance and dla for my little girl will that make me eligible plus I wasnt sure if they did stuff like that thankyou I'll print off the form 
  • ellieflower3
    ellieflower3 Online Community Member Posts: 184 Contributor
    Amyknott said:
    Hi my daughter is 2 years old has been diagnosed with epilepsy and isnt great on her feet I've been advised to get her a swifty pram to help her get around we are based in Blackpool I cant afford the prices of one of these prams I'm just wondering how I'd go about getting one were not under occupational therapy yet is there a charity that help fund them 
    Thankyou
    Amy
    hey! I have a 5 year old and they are hard work. My daughter has ADHD and isn't great on her feet. shouldn't you get it free from a referral from your GP due to the circumstances? 
  • Amyknott
    Amyknott Online Community Member Posts: 5 Listener
    She hasn't been reffered yet x
  • ScoliFibroGirl
    ScoliFibroGirl Online Community Member Posts: 54 Empowering
    Hi, definitely speak to your doctor regarding getting an ot referral and see also what aids and adaptions she will around your property if you are thinking about her safety. Do you live in a house with stairs? are there any times when she will be unsupervised such as if you are on the phone, cooking dinner all these questions will need to be answered. Social services may have to be involved to see how they can assist in terms of individual budgets and longer term planning, emergency planning, respite care. 

    You are welcome to message me further and we can discuss as I’m student who studying in this area and would be find information for you, check eligibility, and check my books for anything that you may need.
  • Amyknott
    Amyknott Online Community Member Posts: 5 Listener
    Could you message me about this please as I do need more support xx

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