I have epilepsy and type 2 diabetes. I'm in the work group, but feel I should be in support group

Have you taken any of the decisions to tribunal?

Hi im having same problem with my boyfriend and he has postical physcosis aswell now caused by the volume pf sezuires


same as you done assement and mandatory reconsideration which changed him from fit for work to wca

but now taking it to appeal now as he isnt safe to be out on own 18 times hospitalised in last 2 years police called find him after jumpin out of windows 

serverly burned self 

nearly choked to death 

affects his short term memory

agressive attacked me and his brother and jumped out his bedroom window had get police out looking for him found 4 hours later attached to a barbwire fence 

but he is fit for work related  activities he cnt even remember take his tablets without us reminding him or any appointments phone calls nvm rest of problems ??‍♀️ 

They dont understand what its like for you living with it or how much people around you have to help 

Well 1 she totally wrong saying that every persons epilepsy condition is different lv 

I have a friend who as epilepsy and works but theres is controlled if you have 3 4 a week it is really controlled ? Do you get a warning before a sezuire ? 

i would log a appeal if you still can get letter from consultants you have seen about it 

my boyfriends did a letter for us stating specific dangers etc and problems he has as he had no warnings and has cluster fits 

i understand if we ever mange to get under control he may beable to do some sort of work but since were 6 years in god knows how many diffrent tablets and nothing has helped doubt it going to be anytime soon . 

@Ross_Scope

thanks for reply 

The phycosis is caused by the sezuires so is managed by his epilepsy team his gps arnt much use . We got everything in place now if we get this emergency tablet down him after first sezuire keeps the phycosis under control which is my main issue if he doesnt no he has fits when he wakes up hows he ment to no take the tablet ?  . And she also referd us to gettin under bed alarms etc to keep him safer . 

Hi woodbine, I would recommend you look at the site "Diet Doctors" it is run by doctors and is free for the 1st month and then still free if you don't want to pay for the subscription (£7-8 per month) I pay every 3-4 months because they have new articles on the science of the diets and their effect on various illnesses/diseases. I did some research when I was diagnosed with arthritis and the doctor told me there was nothing they could do for me and just to keep taking pain meds. The diets are either low carbs or keto and I can say from personal experience that they work! My arthritis in my hips has been much improved and my ADHD is far better than it was. The keto diet was originally designed to help children with epilepsy, but as a by product, it also helped with weight, mental problems, thyroid problems, arthritis/skeletal/joints, diabetes etc. so it is definitely worth a look. I find the science fascinating, which is why I occasionally pay the subscription fee, but you don't have to. They do diets to get you into the swing of things, lots of lovely recipes, for easy cooking and budget and you can just put in what you've got in the cupboard to get a recipe and best of all, it's not like a diet, you're encouraged to eat things like butter, cream. bacon and eggs, cheese, fish, meat and lots of veg of course. They also cater for vegetarian and those with allergies. I hope you have a look, you won't regret it and it could help you a lot.