Hi, my name is Tre! Would i be able to have a careline package in my home?

Tre
Tre Online Community Member Posts: 5 Listener
edited December 2021 in Housing and independent living
I have PNES my doctor tried telling me it was all in my head, funny really seen has 3 times I have been in hospital and had a cluster of sezuires which lasted over 1 ad half hours.  I came round didnt know where I was or what year I was in

Comments

  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community Feel free to join in or ask any questions 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Hi @Tre

    Welcome to Scope's forum. It is great to see you have joined us. Unfortunately, I have no advice to provide other than to talk to people you trust. However, I did want to say why oh why is this too often a common experience for people with chronic conditions :(

    I am so glad you found the courage to reach out to us. I always appreciate how much courage it must take to reach out, especially for the first time. If there's anything specific we can do to support you, please don't hesitate to let us know!
  • Tre
    Tre Online Community Member Posts: 5 Listener
    L_Volunteer said:
    Hi @Tre

    Welcome to Scope's forum. It is great to see you have joined us. Unfortunately, I have no advice to provide other than to talk to people you trust. However, I did want to say why oh why is this too often a common experience for people with chronic conditions :(

    I am so glad you found the courage to reach out to us. I always appreciate how much courage it must take to reach out, especially for the first time. If there's anything specific we can do to support you, please don't hesitate to let us know!
    Am wondering would i beable to have a careline package in my home as my son works from 12 till 8pm so am on me own till then just if i have a sezuire or i feel funny at least i cld contact someone
  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing
    Hi,
    The first step to care and support would be a needs assessment. Once this is done it will determine whether help/support can be given. You will also have a financial assessment, this is to work out how much you'll have to pay towards the cost of the care you receive. The rest can be paid through direct payments. The money from this can only be used on what's stated in your needs assessment. https://www.nhs.uk/conditions/social-care-and-support-guide/money-work-and-benefits/personal-budgets/

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