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Raising Awareness

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TerryH113
TerryH113 Community member Posts: 6 Listener

My Name is Fibromyalgia

 

My name is Fibromyalgia and I live within

I wanted to introduce myself; so, it is here that I begin

I know you’ve seen the doctor hoping to be cured

Well that’s not going to happen despite what he assured

 

He took long enough to find me as I lay in wait

I will upset and frustrate him, but it is you he will come to hate

I pretend to be so many other things to get him all confused

But each time his test will find nothing; as your body I abused

 

Medically I am a problem that none of them can solve

But while they are still looking, I will eat at your resolve

I take from you your energy and in return give you fatigue

No one can see it happen; so, they will not notice or believe

 

I will make your daily life a struggle; and I will take away sleep

In return I will give you pain so bad, often you will weep

You will be tired all of the day, but unable to sleep at night

I will give you lots of things, and all of it just for spite

 

I am a hundred different faces and each one will take its toll

And I am running rampant in your body, you will have no control

Despite living properly with your diet; and perhaps some exercise as well

None of it matters to me; I am here to give you hell

 

There is no amount of medicine any one of you can possibly take

That will mask all the pain I give; that is your first mistake

As for all the other things, go ahead and try to sort them out

You will only end up compromising; of this I have no doubt

 

Now that I have told you of the things that I intend to do

And I have introduced myself from deep inside of you

Even though you know me it will not do you any good

Because to the medical profession I will remain misunderstood

 

My Name is Fibromyalgia

 

©Terry Haslett www.facebook.com/MyBrokenPoet


Comments

  • TerryH113
    TerryH113 Community member Posts: 6 Listener
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    Thank you @Teddybear12 it Headed the campaign to get it recognised in parliament and has been shared globally many times, as well as being the title for my book of poems  <3
  • Globster
    Globster Community member, Community Volunteer Host, CP Network, Scope Member Posts: 2,380 Disability Gamechanger
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    @TerryH113
    Really powerful and wonderful poem

    I am a Community Volunteer Host. Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.

  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
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    Hi @TerryH113

    As someone living with fibromyalgia, I just want to say thank you for your post  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.

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