How do people cope with the day to day things when living with spinal stenosis?

YorksLad
YorksLad Online Community Member Posts: 1 Listener
edited January 2022 in Neurological impairments and pain
Hello, this will be my first post on this site. I have lived with this spinal stenosis for 10 years and thought it couldn't get any worse. You know whats coming next don't you, it did, a lot worse. The last 3 months have been horrendous, the dreaded pseudo claudication. Losing the ability to stand, even for 2 minutes is so restrictive, how do people cope with the day to day things? Things we take for granted, little things like making a coffe, or, god forbid, preparing a meal.

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 17,407 Championing
    Hello @YorksLad - welcome to the community & thank you for telling us a little about yourself. I'm sorry to read things have got worse for yourself in the past few months, & wonder if you have thought about seeking help. A needs assessment may prove helpful, & you can apply yourself. Please see: https://www.nhs.uk/conditions/social-care-and-support-guide/help-from-social-services-and-charities/getting-a-needs-assessment/
  • Tori_Scope
    Tori_Scope Scope Posts: 12,471 Championing
    Welcome to the community @YorksLad! Are you based in Yorkshire? I'm over in Leeds :)

    I'm also sorry to hear that your condition has worsened recently. It sounds as though things are pretty tough at the moment. I'd echo chiarieds' advice to look into a social care referral if you feel able. This could help you to access some support with day to day tasks. 

    Do you have a good support network of family or friends around you that could help out if needed? 

    Is your doctor aware of how things have progressed in the past few months? 

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