Peeing way too much

Hello @Wibbles

I know you didn't choose to do have this. I have IBD, different end but I had no control over my bowels and was in the same situation. I was anxious and needed to know where the toilet facilities were at all points. 

I am so sorry that after all the poking and prodding, they still have failed to update you. 

There are a couple of things I could suggest using my own experience and hopefully it transfers and can help but I know it's a different bodily function.

I would suggest speaking to your GP and seeing if they can refer you to another consultant under the Urology department. It may be that another set of eyes on the matter could show something new. I changed consultants and basically got the ball rolling on my new plan.

You could also ask the GP about your medication, why you are on it and whether there is a sister drug that will have less of a side effect on your bladder. I know you've probably done your research on this, but new drugs and funding in your area may mean something is available that isn't nationally. Again, in my experience I was once offered a new drug that had just passed trials, but very few in the IBD community had knowledge of it. 

I know you do not want a bag for hygiene and possible infections reasons. I have a stoma myself. I am very lucky because it gave me a new lease on life. I fought for mine, I knew all the good and bad before having the surgery and doing that research and speaking to people with stomas I found more positives for myself to have it. I would say that if you are at the point of looking at all options in front of you, and the bag is one of them, ask for some supplies. Have a play around with them, see what options there are with them.

Hygiene around that situation is in conjunction to how you are able to manage the changing and then that will affect your number of infections. I remember you speaking about your health on another thread, and your wife being your carer so I understand there will be difficulties, but I always say it's worth having all the information and giving it a go. It also shows the specialist what works and what doesn't. With stoma surgery and even self-catheterising, the want from them to see you being able to change it for yourself is high. They sometimes don't let patients out of hospital after surgery until they can change on their own.

It's hard because it is like being a show for them, but it ticks a box, and it will move everything along to hopefully find something for you that works. I would also look at asking for another scope (sorry I know they are not pleasant) for Diverticulitis. Sometimes if you have pockets in the intestinal lining that become inflamed that can cause more frequent and urgent feeling urination. 

I hope this helps and please keep us updated  

Hello @Wibbles I'm sorry to hear you were offered a consultation which isn't accessible for you, have you asked for a face to face one?

I'm afraid I'm no expert on either of the procedures you mention, but this information on the NHS website 'Alternatives to TURP' might be useful in exploring options.

Although asking for anyone's own experience of the above is of course welcome, it's always advisable to speak to a GP or other medical specialist about any treatments or procedures you might be considering. 

Let us know how things go as and when  

Oh my mistake @Wibbles I apologise, as I mentioned I'm not an expert on the subject. 

Have you had any luck arranging a face to face consultation yet?