Fragile X Syndrome

alijacob26
alijacob26 Online Community Member Posts: 2 Listener
in Families and carers
Hi everyone, my name is Ali. I am 42 and the mother of 4 boys, 15, 17, 19, & 20. My two younger boys have Fragile X Syndrome. My 15 yr old is mentally about 10, but my 17 yr old is mentally 3 & always will be. Is there anyone else with a child like my 17yr old? I feel very alone and stressed out most of the time. I would just like to talk to someone who understands. Thank you!

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 16,775 Championing
    Hi @alijacob26 - & welcome to the community. I'm unsure if we have any active members whose children have fragile X syndrome, but please do talk here as you will find everyone supportive. Have you come across this charity?: https://www.fragilex.org.uk/ 

  • alijacob26
    alijacob26 Online Community Member Posts: 2 Listener
    I have not heard of, so thank you. I will look into it.
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    edited February 2023
    I haven't got personal experience with this @alijacob26 . However, I do have a friend who has a relative with a similar condition.

    I know you aren't alone! Certainly not as alone as you probably feel. Hopefully, our wonderful community with personal experience will be able to respond to you soon.

    In the meantime, I can hear you are feeling stressed. Would anything, in particular, help to reduce your stress at the moment?  :)

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