Wobbly bit/ enlarging lesion

DD91
DD91 Online Community Member Posts: 97 Connected
edited April 2023 in Rare, invisible, and undiagnosed conditions
A few months ago the doctors found what they are calling either a wobbly bit or a lesion below my pulmonary valve they still aren’t 100% sure what it is, has anyone else had anything like that? 
P.s I was born with congenital heart disease
Thanks 

Comments

  • DD91
    DD91 Online Community Member Posts: 97 Connected
    Just thought I would add more I’ve had repeated blood cultures done they don’t show an infection I’ve been put on blood thinners and I’m waiting on an appointment for a PET CT 
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,536 Championing
    I hope that appointment comes soon @DD91 it's always to get a bit of clarity on what's what.

    Keep us updated with how everything goes, and I hope you're keeping well in the meantime :) 
  • rebel11
    rebel11 Online Community Member Posts: 1,688 Pioneering
    Sorry, can't help, hopefully just an 'benign' anomaly. Hope you get more info on it soon.
    Think of other things when you start thinking about it. 
  • DD91
    DD91 Online Community Member Posts: 97 Connected
    Hi the doctors are pretty sure it’s a blood clot I had a scan on Tuesday and it’s got smaller and firmer 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,922 Championing
    Thanks for your update @DD91. How are you feeling about this at the moment? Please don't hesitate to let us know if you want to discuss this further or need any support  :)

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