PIP claim and OCD

anyclearer
Online Community Member Posts: 13 Connected
Hi, this is my first time posting. I have not been able to find much information on claiming PIP for ocd and found out today that the claim I made last October was unsuccessful. I have asked for a copy of the assessment report and am awaiting the letter from DWP so I can see what they have said. I will be asking for a MR as I firmly believe I am eligible for at least the lower rate of daily living allowance. I don’t know how much clearer I can be on my condition and how it effects me everyday and tried my best to make it relevant to the questions on the assessment form as well answering the questions during my telephone assessment. I had my mum on the phone call as well and she had input into some of the questions.
My main question would be does anyone have similar experience of being successful in the MR when claiming for ocd?
thanks in advance 😊
thanks in advance 😊
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The most likely outcome of any MR is the decision will remain the same, only 23% of them change. PIP isn't awarded based on any diagnosis, so comparing yourself to someone else with the same condition isn't going to help. Whether there's any entitlement will totally depend on how your conditions affect you.It does help to have some understanding of the descriptors. Have a read of this. https://www.gov.uk/government/publications/personal-independence-payment-assessment-guide-for-assessment-providers/pip-assessment-guide-part-2-the-assessment-criteriaFor the MR you should put the request in writing stating where and why you think you should have scored those points. Include a couple of real world examples of exactly what happened the last time you attempted each descriptor that applies to you.The assessment report isn't needed to request the MR as all it causes is a distraction.2
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Hello anyclearerTo add to Poppys advice above you are the best person to describe your problems completing the 12 PIP activities Reliably.It is advised to write a detailed letter for your MR and although the success rate is only 23% at MR your detailed MR letter will go towards helping you if you need to go to the appeal stage because it will be used as evidence by the tribunal panel to support your claim.So I mentioned the word "Relaibly" and that is a very important word in PIP because you need to complete all the PIP activities reliably for no award to be given. It is upto you to detail why you cannot do the activities that are affected by your condition Relaibly https://pipinfo.net/issues/reliably As you can see from that link you need to do all of the activities safely, repeatedly, reasonable time period and to an acceptable standard. So if it is not safe for you to do one of the activities safely then you need to explain why you cannot do it safely according to the activities descriptors.Ok so lets take a activity and see how possibly Obsessive compulsive disorder https://pipinfo.net/conditions/obsessive-compulsive-disorder might fit to the "Relaibly" information above and how you could score points for that activity.Lets take the Preparing food activity. If you cannot complete that activity in a reasonable time or to an acceptable standard because of your OCD you have to go through rituals or are obsesive about things being clean etc (I do not know your condition only you know this) then you need to explain for example in detail what those rituals are, what are the consiquences of those rituals, dose it take you a long time to prepare a meal, have you burnt you food because of your OCD, have you hurt yourself because of your OCD if yes then you cannot do the activity either safely, in a reasonable time or to an acceptable standard. Here is a good example from case law from a upper tribunal decision for activity 6 Dressing and undressing and how you can score points for this activity with PIP but the advise on this link can apply to all of the PIP activities https://www.a1benefitsupport.com/group-file-28-ocd-can-get-pointsThis is some basic advice to get you started with your MR letter.Hope this has been of assistanceNasturtium
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OCD has such a wide ranging spectrum that it's difficult to know which practical descriptors your OCD fits into.
I live with severe OCD, major daily impact, and couldn't score any points for it due to the way the descriptors are worded.
I did score a lot of points for social issues instead though, which I wasn't expecting when I first put the claim in. I'd say the OCD has a much bigger impact on my daily life than the social issues do.2 -
OverlyAnxious said:OCD has such a wide ranging spectrum that it's difficult to know which practical descriptors your OCD fits into.
I live with severe OCD, major daily impact, and couldn't score any points for it due to the way the descriptors are worded.
I did score a lot of points for social issues instead though, which I wasn't expecting when I first put the claim in. I'd say the OCD has a much bigger impact on my daily life than the social issues do.0 -
MH2023 said:OverlyAnxious said:OCD has such a wide ranging spectrum that it's difficult to know which practical descriptors your OCD fits into.
I live with severe OCD, major daily impact, and couldn't score any points for it due to the way the descriptors are worded.
I did score a lot of points for social issues instead though, which I wasn't expecting when I first put the claim in. I'd say the OCD has a much bigger impact on my daily life than the social issues do.
I will add, I'm also agoraphobic, but as I wasn't totally housebound at the time (am now), and as I cannot go out WITH another person due to the social issues, I also couldn't score anything for the Going Out descriptor. Personally I think they should be asking things like - Can you get to a shop or a supermarket? Can you get to a Doctor or a hospital? Can you get on a bus or in a Taxi? It should be a 'meaningful' journey to gauge functional limitation, instead of just a few hundred metres outside your front door.
Personally, I don't believe the descriptors have enough scope to accurately convey functional limitation. I was awarded at tribunal, enhanced daily living (only expected standard), but that was purely for social issues and malnutrition rather than the OCD & agoraphobia that I'd initially applied for.0 -
nasturtium said:Hello anyclearerTo add to Poppys advice above you are the best person to describe your problems completing the 12 PIP activities Reliably.It is advised to write a detailed letter for your MR and although the success rate is only 23% at MR your detailed MR letter will go towards helping you if you need to go to the appeal stage because it will be used as evidence by the tribunal panel to support your claim.So I mentioned the word "Relaibly" and that is a very important word in PIP because you need to complete all the PIP activities reliably for no award to be given. It is upto you to detail why you cannot do the activities that are affected by your condition Relaibly https://pipinfo.net/issues/reliably As you can see from that link you need to do all of the activities safely, repeatedly, reasonable time period and to an acceptable standard. So if it is not safe for you to do one of the activities safely then you need to explain why you cannot do it safely according to the activities descriptors.Ok so lets take a activity and see how possibly Obsessive compulsive disorder https://pipinfo.net/conditions/obsessive-compulsive-disorder might fit to the "Relaibly" information above and how you could score points for that activity.Lets take the Preparing food activity. If you cannot complete that activity in a reasonable time or to an acceptable standard because of your OCD you have to go through rituals or are obsesive about things being clean etc (I do not know your condition only you know this) then you need to explain for example in detail what those rituals are, what are the consiquences of those rituals, dose it take you a long time to prepare a meal, have you burnt you food because of your OCD, have you hurt yourself because of your OCD if yes then you cannot do the activity either safely, in a reasonable time or to an acceptable standard. Here is a good example from case law from a upper tribunal decision for activity 6 Dressing and undressing and how you can score points for this activity with PIP but the advise on this link can apply to all of the PIP activities https://www.a1benefitsupport.com/group-file-28-ocd-can-get-pointsThis is some basic advice to get you started with your MR letter.Hope this has been of assistanceNasturtiumBasically I cannot handle raw meat and therefore my husband does all of the cooking. If I were to do it it would take me at least a couple of hours to simply prep the food let alone cook it due to fear of contamination and having to carry out hand washing rituals constantly, even if I am prepping the non meat elements. I made this clear in both my form and my phone assessment.
washing is a big one for me, I spend at least an hour in the shower on a good day, a bad day a lot longer until someone stops me and even then I am distressed. I have rituals to perform and other mental obsessions that lead to further compulsive behaviour. I have to shower and brush teeth eat. when I come home from work and put my clothes in a separate room from clothes I wear at home, major contamination fears here. I cannot do anything until I am ‘clean’. It takes me two hour to get ready in the morning and that is without putting on make up or showering, it would be significantly longer if I did those things too.0 -
anyclearer said:Basically I cannot handle raw meat and therefore my husband does all of the cooking.Thanks for the reply.I would like to give you a little bit of extra advice and please do not think I am trying to undermine your condition or say you do not have problems because by what you have written you do have problems.My advice is to play devils advocate with your own evidence. Pretend you are the tribunal judge or the DWP Decision Maker and think what would they say about my evidence to justify not giving me the points I am entitled to.For example you said "Basically I cannot handle raw meat and therefore my husband does all of the cooking." The activity of preparing a meal is a meal made from fresh ingredients for one person and that person is the claimant. So the DWP or Tribunal Judge might say:-Do you have meat for every meal?
Can you wear Disposable Gloves if you had to prepare meat? (Possible aid 2 points)And so on...Saying " I cannot handle raw meat and therefore my husband does all of the cooking" explains nothing about your problems and why you cannot handle meat so you will get Zero points.If you can wear disposable gloves then say something like "I can only handle meat with the aid of disposable gloves because...." the (because) word is very important then explain in detail why you cannot handle meat without the aid of disposable gloves, how does it make you feel physically and mentally (also explain how doing the whole activity makes you feel)This could work with the descriptor for Activity 1 Preparing Food "Needs to use an aid or appliance to be able to either prepare or cook a simple meal. 2 points" https://pipinfo.net/activities/preparing-foodI am not saying the above is correct because I do not know your problem and I am not saying include what I have written above because it is only a hyperthetical made up scenario just to give you the idea on how to set things out.Do not mention the word "good day" because the DWP will jump on that and use it against you. You need to explain the problems you have for the majority of days. A good idea would be to keep a detailed daily diary for seven to ten days detailing the problems you have each day doing the daily living activitities according to the descriptors. You can include this with your MR letter as supporting evidence showing the problems you have daily.Your husband can give a supporting letter explaining his observations and how he helps you and why he helps you and what would happen if you did not have help.Just a little adviceHope this has been helpfulNasturtium
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nasturtium said:anyclearer said:Basically I cannot handle raw meat and therefore my husband does all of the cooking.Thanks for the reply.I would like to give you a little bit of extra advice and please do not think I am trying to undermine your condition or say you do not have problems because by what you have written you do have problems.My advice is to play devils advocate with your own evidence. Pretend you are the tribunal judge or the DWP Decision Maker and think what would they say about my evidence to justify not giving me the points I am entitled to.For example you said "Basically I cannot handle raw meat and therefore my husband does all of the cooking." The activity of preparing a meal is a meal made from fresh ingredients for one person and that person is the claimant. So the DWP or Tribunal Judge might say:-Do you have meat for every meal?
Can you wear Disposable Gloves if you had to prepare meat? (Possible aid 2 points)And so on...Saying " I cannot handle raw meat and therefore my husband does all of the cooking" explains nothing about your problems and why you cannot handle meat so you will get Zero points.If you can wear disposable gloves then say something like "I can only handle meat with the aid of disposable gloves because...." the (because) word is very important then explain in detail why you cannot handle meat without the aid of disposable gloves, how does it make you feel physically and mentally (also explain how doing the whole activity makes you feel)This could work with the descriptor for Activity 1 Preparing Food "Needs to use an aid or appliance to be able to either prepare or cook a simple meal. 2 points" https://pipinfo.net/activities/preparing-foodI am not saying the above is correct because I do not know your problem and I am not saying include what I have written above because it is only a hyperthetical made up scenario just to give you the idea on how to set things out.Do not mention the word "good day" because the DWP will jump on that and use it against you. You need to explain the problems you have for the majority of days. A good idea would be to keep a detailed daily diary for seven to ten days detailing the problems you have each day doing the daily living activitities according to the descriptors. You can include this with your MR letter as supporting evidence showing the problems you have daily.Your husband can give a supporting letter explaining his observations and how he helps you and why he helps you and what would happen if you did not have help.Just a little adviceHope this has been helpfulNasturtium
cannot do it as it causes too much distress and takes far far too long. Would this not mean it would fall under the ‘cannot prepare a meal’ descriptor? Or would it not because I physically can, but mentally not0 -
For descriptor 1F, it's not just about preparing the food or cooking, it's about preparing and cooking it. A claimant can only satisfy 1F if they can neither prepare nor cook food (even with assistance or supervision). If they cannot do one of these, even with assistance or supervision, but can do the other then one of the other descriptors will apply.The rest of the descriptors for this activity considers your ability to prepare or cook.
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poppy123456 said:For descriptor 1F, it's not just about preparing the food or cooking, it's about preparing and cooking it. A claimant can only satisfy 1F if they can neither prepare nor cook food (even with assistance or supervision). If they cannot do one of these, even with assistance or supervision, but can do the other then one of the other descriptors will apply.The rest of the descriptors for this activity considers your ability to prepare or cook.0
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anyclearer said:I suppose then it is not enough to say that because of my rituals of constant cleaning etc I cannot physically cook the meal because my mind and time is taken up with rituals.Ask yourself these questions for each PIP Activity:-Describe your rituals in detail when you are doing a task for preparing a meal. For example do you have rituals when washing food?Describe those ritualsWhat would happen if you did not do those rituals?How many times do you need to do those rituals before you have completed the task?Describe how it makes you feel emotionaly and mentaly?How long does it take you to complete the task?Compare how long it takes your husband to do the same task and how long it takes you.
In the past I have burned food a lot by over cooking it to make sure it is cooked to avoid food poisoning, but I doubt that would count and would probably be looked on as poor cooking more than anything
If you over cook food because of your mental health condition then you need to describe why you over cook food in detail because over cooking food because of a mental health conditon would show that you cannot cook food "to an acceptable standard" (Remember the word "Reliably") but you need to associate this with a health condition or the Decision Maker will just think you cannot cook. Can you describe in detail the last time you burnt food and why that food was burnt?You could include in your MR letter under Activity 1:-"I have Obsessive compulsive disorder and cannot cook a simple meal to an acceptable standard because.." Remember there are two sections to this PIP Activity, Preparing and Cooking.then go into detail on why you cannot cook food to an acceptable standard. Describe the last time you burnt food, why did it happen, who witnessed it etc..Remember the four criterias in the important word "Reliably":-"to an acceptable standard""safely”“repeatedly”“reasonable time period”You need to be descriptive even if you think it is silly and things went wrong it will show you cannot do that task but you need to link it to your condition.Hope that helpsNasturtium0 -
nasturtium said:anyclearer said:I suppose then it is not enough to say that because of my rituals of constant cleaning etc I cannot physically cook the meal because my mind and time is taken up with rituals.Ask yourself these questions for each PIP Activity:-Describe your rituals in detail when you are doing a task for preparing a meal. For example do you have rituals when washing food?Describe those ritualsWhat would happen if you did not do those rituals?How many times do you need to do those rituals before you have completed the task?Describe how it makes you feel emotionaly and mentaly?How long does it take you to complete the task?Compare how long it takes your husband to do the same task and how long it takes you.
In the past I have burned food a lot by over cooking it to make sure it is cooked to avoid food poisoning, but I doubt that would count and would probably be looked on as poor cooking more than anything
If you over cook food because of your mental health condition then you need to describe why you over cook food in detail because over cooking food because of a mental health conditon would show that you cannot cook food "to an acceptable standard" (Remember the word "Reliably") but you need to associate this with a health condition or the Decision Maker will just think you cannot cook. Can you describe in detail the last time you burnt food and why that food was burnt?You could include in your MR letter under Activity 1:-"I have Obsessive compulsive disorder and cannot cook a simple meal to an acceptable standard because.." Remember there are two sections to this PIP Activity, Preparing and Cooking.then go into detail on why you cannot cook food to an acceptable standard. Describe the last time you burnt food, why did it happen, who witnessed it etc..Remember the four criterias in the important word "Reliably":-"to an acceptable standard""safely”“repeatedly”“reasonable time period”You need to be descriptive even if you think it is silly and things went wrong it will show you cannot do that task but you need to link it to your condition.Hope that helpsNasturtium1 -
anyclearer said:nasturtium said:anyclearer said:I suppose then it is not enough to say that because of my rituals of constant cleaning etc I cannot physically cook the meal because my mind and time is taken up with rituals.Ask yourself these questions for each PIP Activity:-Describe your rituals in detail when you are doing a task for preparing a meal. For example do you have rituals when washing food?Describe those ritualsWhat would happen if you did not do those rituals?How many times do you need to do those rituals before you have completed the task?Describe how it makes you feel emotionaly and mentaly?How long does it take you to complete the task?Compare how long it takes your husband to do the same task and how long it takes you.
In the past I have burned food a lot by over cooking it to make sure it is cooked to avoid food poisoning, but I doubt that would count and would probably be looked on as poor cooking more than anything
If you over cook food because of your mental health condition then you need to describe why you over cook food in detail because over cooking food because of a mental health conditon would show that you cannot cook food "to an acceptable standard" (Remember the word "Reliably") but you need to associate this with a health condition or the Decision Maker will just think you cannot cook. Can you describe in detail the last time you burnt food and why that food was burnt?You could include in your MR letter under Activity 1:-"I have Obsessive compulsive disorder and cannot cook a simple meal to an acceptable standard because.." Remember there are two sections to this PIP Activity, Preparing and Cooking.then go into detail on why you cannot cook food to an acceptable standard. Describe the last time you burnt food, why did it happen, who witnessed it etc..Remember the four criterias in the important word "Reliably":-"to an acceptable standard""safely”“repeatedly”“reasonable time period”You need to be descriptive even if you think it is silly and things went wrong it will show you cannot do that task but you need to link it to your condition.Hope that helpsNasturtium0 -
You will need to give more details, but I was successful last week at tribunal for PIP on OCD. I was awarded the enhanced rate on daily living activities and standard rate on mobility. To give you an idea of how big a turn around you can get, the DWP awarded me 0 points on assessment and mandatory reconsideration. The tribunal awarded me 32 points on daily living activity and 10 points on mobility, so I wouldn't get disheartened by what the DWP say, as imo their people simply aren't qualified to deal with cases like OCD.
I had pointed out to them multiple times they are not following their own regulations, in particular Regulation 4 2(A) with regards to being able to do the activities in a "reasonable time period" defined as no more than twice as a long as a person without a health condition affecting the activity, and they continually straight up ignored me, simply stating I could complete the activities unaided.
I would recommend looking at Citizen's Advice on how each descriptor might apply to you. There is a lot of information out there too from Googling OCD and PIP. If you can point to exactly where in the regulations they are not applying the law correctly, you will likely have a strong case, especially if you can provide case law alongside it. From the internet it's quite well known if any part of Regulation 4 2(A) applies to you, which will be common with OCD, you will very likely have to go to tribunal as the DWP assessors simply don't apply this.
If I'm honest I would just submit a mandatory reconsideration pretty quickly. The chances of them overturning in your favour are minimal, there's not much point overthinking it. I would be more preparing/thinking about how you appeal which will come after the mandatory reconsideration. Having some sort of medical document supporting your case from doctor/psychiatrist will help, having a letter from someone who lives with you may help too. Also a list of medications to manage your condition, as these can be very telling in the severity of your condition.
Here are some useful links:
https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/help-with-your-claim/fill-in-form-pip/3-prepare-and-cook-meal/
Will really help breakdown if descriptors might apply to you, as the basic ones you normally see are really poorly written with regards to mental health conditions
https://www.a1benefitsupport.com/group-file-28-ocd-can-get-points
Could be of major help depending exactly how your OCD is affecting you.
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Becky93 said:
If I'm honest I would just submit a mandatory reconsideration pretty quickly. The chances of them overturning in your favour are minimal, there's not much point overthinking it.Hello Becky93With respect I personally would disagree with that statement. I would just like to point out like I have done on my previous post that in my opinion if you put in a detailed and accurate Mandatory Reconsideration letter this will also be used at a tribunal for evidence so it is worth putting the time and effort into compiling a comprihensive and detailed MR. If it is refused then you can then move onto appeal where the DWP will review your claim again by another decision maker and if you have put in your time to send a detailed MR there might be a greater chance the DWP will put forward an "Offer" that you can accept and if you are happy with the "offer" then your tribunal appeal will be cancelled. If you are not happy with the offer you can still accept the offer and wait until it is in payment then start a fresh tribunal appeal after the offer is in payment and you have had the "offer" award letter.
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Thank you everyone for all of your advice, it really is a mine field!!!
can I just ask, when I phoned to ask for the assessment report and they told me I had not been successful they said to wait until I get my letter and the report and then if i was to have a MR they will sort it out over the phone, does this mean they will just speak to me on the phone rather then want written request or can I do both?0 -
anyclearer said:Thank you everyone for all of your advice, it really is a mine field!!!
can I just ask, when I phoned to ask for the assessment report and they told me I had not been successful they said to wait until I get my letter and the report and then if i was to have a MR they will sort it out over the phone, does this mean they will just speak to me on the phone rather then want written request or can I do both?Dont phone them for your MR because as soon as you phone them you have told them to go ahead with the MR without any further written verbal evidence from you. Just take your time and plan out your letter. You are supposed to send your MR back withing 4 week but with good reason you can do a MR for a claim within 13 months so do not panic and plan out your letter. Use your computer and word processing software to make it easy to compile and edit. Follow the advice here and write a detailed letter then post it off with proof of postage (which is free from the post office). I would NOT phone them to start you MR. You cannot do an MR until you have had the decision letter so you have time to plan while you are waiting. Remember the MR is about the problems you have with the activities. To not get caught in the trap of critisising the assesment or the decision maker because that will not get you PIP.Kind RegardsNasturtium0 -
nasturtium said:Becky93 said:
If I'm honest I would just submit a mandatory reconsideration pretty quickly. The chances of them overturning in your favour are minimal, there's not much point overthinking it.Hello Becky93With respect I personally would disagree with that statement. I would just like to point out like I have done on my previous post that in my opinion if you put in a detailed and accurate Mandatory Reconsideration letter this will also be used at a tribunal for evidence so it is worth putting the time and effort into compiling a comprihensive and detailed MR. If it is refused then you can then move onto appeal where the DWP will review your claim again by another decision maker and if you have put in your time to send a detailed MR there might be a greater chance the DWP will put forward an "Offer" that you can accept and if you are happy with the "offer" then your tribunal appeal will be cancelled. If you are not happy with the offer you can still accept the offer and wait until it is in payment then start a fresh tribunal appeal after the offer is in payment and you have had the "offer" award letter.
I spent ages on mine, and the result I got back not only still awarded me 0 points, the summary was virtually the same as the original assessment. Like if you compared the two conclusions you would think they were based off one another, as the structure was identical, some phrases had changed, but what was being said was identical. It did not read like someone who had even read a word of what I was saying, just someone arbitrarily ticking boxes and not understanding the law with regards to how OCD can apply to PIP, and from research online this is standard for the DWP with regards to OCD and PIP.
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Becky93 said:That maybe true for some health conditions, but for OCD I think you're basically just wasting your time putting lots of effort into Mandatory Reconsideration. The wait list for a tribunal is so long, that you really want to just get on that wait list as soon as possible. If the DWP won't judge you on the parameters you are asking to be judged upon as they don't recognise them you have got no chance of them changing the decision on mandatory reconsideration, you need someone with a more legal background to judge your case.
I spent ages on mine, and the result I got back not only still awarded me 0 points, the summary was virtually the same as the original assessment. Like if you compared the two conclusions you would think they were based off one another, as the structure was identical, some phrases had changed, but what was being said was identical. It did not read like someone who had even read a word of what I was saying, just someone arbitrarily ticking boxes and not understanding the law with regards to how OCD can apply to PIP, and from research online this is standard for the DWP with regards to OCD and PIP.You said "That maybe true for some health conditions"Many people have got PIP without having to goto tribunal for OCD. It is the quality of your verbal evidence that you put on your PIP2 form for that counts towards getting an award or not.Again I will say that if you put in a detailed MR letter it will be used in evidence in a Tribunal.You said "I spent ages on mine, and the result I got back not only still awarded me 0 points, the summary was virtually the same as the original assessment."Did you not factor in that the reason why the Tribunal gave you 32 points was because you "spent ages" on your MR letter and they used that to help them make there judgement?
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nasturtium said:Becky93 said:That maybe true for some health conditions, but for OCD I think you're basically just wasting your time putting lots of effort into Mandatory Reconsideration. The wait list for a tribunal is so long, that you really want to just get on that wait list as soon as possible. If the DWP won't judge you on the parameters you are asking to be judged upon as they don't recognise them you have got no chance of them changing the decision on mandatory reconsideration, you need someone with a more legal background to judge your case.
I spent ages on mine, and the result I got back not only still awarded me 0 points, the summary was virtually the same as the original assessment. Like if you compared the two conclusions you would think they were based off one another, as the structure was identical, some phrases had changed, but what was being said was identical. It did not read like someone who had even read a word of what I was saying, just someone arbitrarily ticking boxes and not understanding the law with regards to how OCD can apply to PIP, and from research online this is standard for the DWP with regards to OCD and PIP.Again I will say that if you put in a detailed MR letter it will be used in evidence in a Tribunal.You said "I spent ages on mine, and the result I got back not only still awarded me 0 points, the summary was virtually the same as the original assessment."Did you not factor in that the reason why the Tribunal gave you 32 points was because you "spent ages" on your MR letter and they used that to help them make there judgement?1
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