New to all this

Hi all,
My name is Hollie and I have a daughter Daisy who we have been told will have some form of cerebral palsy.

She was born 5 days over due date weighing 8 pounds but had a cord prolapse at birth and was born not breathing, She was transferred immediately to an out of town hospital to be put on a cool bed for 72 hours to help with any brain damage she might have suffered. She was very poorly initially and was put on phenobarbtone, after the 72 hours was up she was walmed slowly and was doing really well. 3 days later the ICU doctors felt she could be moved onto HDU as she was doing reaally well, that night she had what was thought to be a seisure/fit and stopped breathing, this was quite terrifying as at the time only myself and my husband was on that ward, there were no nurses around. She was resussitated and was ok, but the doctors didnt feel it was necessary to move her back onto ICU, both myself and my husband decided we would stay with her all night. About an hour later it happened again and then it was decided she would go back onto ICU. After a few days she was doing really well again and was moved back onto HDU, and a few days after that it was decided to transfer her back to our home town hospital. Our home town hospital where very much of the opinion that contact between parents and baby was the key to bringing them on. Which is what we did as we had missed out on so much from her being born, she came on in leaps and bounds, she was taken off the phenobarbatone and had no problems and after 5/6 days we was aloud to take her home.

She is doing really well at home and she has a physiotherapist come to see her once a month. She moves her arms and legs nicely and has good head control but on occasions has some head lag, im not sure if this is because of her age (5 months) or is something to do with her diagnosis. She does not yet sit on her own but will sit with light support, from around three months she had a tendancy to arch her back quite a lot, this has slowly gotten better but she still does it. We stated her on foods from 4 months and she has taken to it quite well, all though she does have a tendancy to stick her tongue out, i have been told this could be muscle tone and other sources have told me she is just tasting the food? The physio gave us a chair for us to sit her in to feed her which is supposed to encourage her to bring her arms forward. She will bang her toys hanging from her play gym and occaisionally she will grab them and hold onto them whilst lying on her back. She has rolled over once or twice but cant manage to pull her arms forward and get frustrated with herself. We tried her in her high chair a couple of times and but various toys in front of her to see if she would grab at them, but I think she somethimes has stiff arms, im not sure if this is normal at her age? If we pick her up under her arms and rest her feet on our laps she will walk towards us with a perfect ballerina style one foot in front of the other so Im hoping this is a good sign that her legs may be ok? Daisy is our first child and I suppose probably like you all im hoping for some small miracle, ive read stories of similiar things happening to children and them turning out fine and ive read stories that have gone the other way. Most of the time im generally up beat about the whole thing and want to give Daisy as much encouragement as I can but then I have days when I blame myself for what happened and I just want someone to tell me she will be ok. Im not looking for answers, it would be great to hear of any similiar stories. Sorry the story is so long!