does anybody else have heditary spastic paraplegia HSP

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  • wol139
    wol139 Online Community Member Posts: 22 Listener
    Apparently I’ve a letter in the post. Easter now.  Hopefully get some updates.  👍
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Fingers crossed @wol139 for now I hope you enjoy the bank holiday weekend :) 
  • wol139
    wol139 Online Community Member Posts: 22 Listener
    Hi. After my brain mri I had an attack of severe spasticity two legs arms and right side of mouth. Was awful.  Anyone else had this issue?  🕊
  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Oh dear @wol139 was this just after the MRI? I hope you're feeling alright now?
  • Laura321
    Laura321 Online Community Member Posts: 8 Listener

    Hi not sure if anyone still uses this site? I've had HSP for about 20 years now. My muscle spasms and sleeples nights are the worst symptoms now

  • Rosie_Scope
    Rosie_Scope Posts: 5,710 Scope Online Community Coordinator

    Hi @Laura321, welcome to the community 😊 this post is from April 2023, so please don't be offended if you don't get a reply here as some of these members may have moved on. You'd be more than welcome to make your own discussion to talk about your condition if you'd like to.

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