Neurological conditions
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does anybody else have heditary spastic paraplegia HSP

kimdyer18kimdyer18 Member Posts: 52 Connected
edited October 2018 in Neurological conditions
hi i just been diagnosed with heditary spastic paraplegia i was wondering if there is anyone else on here that has it. also it is very rare to have thanks .

Replies

  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Hi @kimdyer18
    Im sorry no one responded to this post, how are you getting on?
    Scope
    Senior online community officer
  • kimdyer18kimdyer18 Member Posts: 52 Connected
    hi sam im getting on ok havent worked since july getting mobilty pip universal credit esa i have gd days and bad today bad one
  • Sam_AlumniSam_Alumni Scope alumni Posts: 7,729 Disability Gamechanger
    Im glad you have benefits sorted, a lot of us understand about good days and bad, I find I need to listen to my body and rest as much as I can on the bad days.
    Scope
    Senior online community officer
  • kimdyer18kimdyer18 Member Posts: 52 Connected
    thanks hun xxx

  • kimdyer18kimdyer18 Member Posts: 52 Connected
    has anyone got this condtion be lovely to talk to someone that knows what im going through 
  • Vickymay87Vickymay87 Member Posts: 60 Connected
    hi hi just to let you know. I have also been diagnosed with Hereditary spastic Parapelgia. If you have got any questions, let me know and I will be happy to answer 😊👍🏼
  • ttillcockttillcock Member Posts: 3 Listener
    Hi @kimdyer18 I’m not sure if this post is too old to get a reply but I was wondering what your experience was with Hsp as I have just been diagnosed a few days ago and I’m not sure what things are available to me/ any information at all really. I hope you’re well and coping through lockdown 
  • Ross_ScopeRoss_Scope Posts: 4,186

    Scope community team

    ttillcock said:
    Hi @kimdyer18 I’m not sure if this post is too old to get a reply but I was wondering what your experience was with Hsp as I have just been diagnosed a few days ago and I’m not sure what things are available to me/ any information at all really. I hope you’re well and coping through lockdown 
    Hello, I hope you are well. You may not receive as many replies as you'd hope for on a thread this old, that's true. However, you can always feel free to create your own discussion on the subject :) 

    To do this simply navigate to the community homepage and click "New discussion" :) 

    Alternatively, I can create one for you if that would be easier.
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