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does anybody else have heditary spastic paraplegia HSP

kimdyer18
Member Posts: 52 Connected
hi i just been diagnosed with heditary spastic paraplegia i was wondering if there is anyone else on here that has it. also it is very rare to have thanks .
Comments
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Hi @kimdyer18
Im sorry no one responded to this post, how are you getting on?Scope
Senior online community officer -
hi sam im getting on ok havent worked since july getting mobilty pip universal credit esa i have gd days and bad today bad one
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Im glad you have benefits sorted, a lot of us understand about good days and bad, I find I need to listen to my body and rest as much as I can on the bad days.Scope
Senior online community officer -
thanks hun xxx
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has anyone got this condtion be lovely to talk to someone that knows what im going through
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hi hi just to let you know. I have also been diagnosed with Hereditary spastic Parapelgia. If you have got any questions, let me know and I will be happy to answer ???
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Hi @kimdyer18 I’m not sure if this post is too old to get a reply but I was wondering what your experience was with Hsp as I have just been diagnosed a few days ago and I’m not sure what things are available to me/ any information at all really. I hope you’re well and coping through lockdown
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ttillcock said:Hi @kimdyer18 I’m not sure if this post is too old to get a reply but I was wondering what your experience was with Hsp as I have just been diagnosed a few days ago and I’m not sure what things are available to me/ any information at all really. I hope you’re well and coping through lockdown
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