does anybody else have heditary spastic paraplegia HSP

kimdyer18

hi i just been diagnosed with heditary spastic paraplegia i was wondering if there is anyone else on here that has it. also it is very rare to have thanks .

Sam_Alumni

Hi @kimdyer18
Im sorry no one responded to this post, how are you getting on?

kimdyer18

hi sam im getting on ok havent worked since july getting mobilty pip universal credit esa i have gd days and bad today bad one

Sam_Alumni

Im glad you have benefits sorted, a lot of us understand about good days and bad, I find I need to listen to my body and rest as much as I can on the bad days.

kimdyer18

thanks hun xxx

kimdyer18

has anyone got this condtion be lovely to talk to someone that knows what im going through 

Vickymay87

hi hi just to let you know. I have also been diagnosed with Hereditary spastic Parapelgia. If you have got any questions, let me know and I will be happy to answer 😊👍🏼

ttillcock

Hi @kimdyer18 I’m not sure if this post is too old to get a reply but I was wondering what your experience was with Hsp as I have just been diagnosed a few days ago and I’m not sure what things are available to me/ any information at all really. I hope you’re well and coping through lockdown 

Ross_Scope

ttillcock said:

Hi @kimdyer18 I’m not sure if this post is too old to get a reply but I was wondering what your experience was with Hsp as I have just been diagnosed a few days ago and I’m not sure what things are available to me/ any information at all really. I hope you’re well and coping through lockdown 

Hello, I hope you are well. You may not receive as many replies as you'd hope for on a thread this old, that's true. However, you can always feel free to create your own discussion on the subject  

To do this simply navigate to the community homepage and click "New discussion"  

Alternatively, I can create one for you if that would be easier.