does anybody else have heditary spastic paraplegia HSP

kimdyer18

hi i just been diagnosed with heditary spastic paraplegia i was wondering if there is anyone else on here that has it. also it is very rare to have thanks .

Sam_Scope

Hi @kimdyer18
Im sorry no one responded to this post, how are you getting on?

kimdyer18

hi sam im getting on ok havent worked since july getting mobilty pip universal credit esa i have gd days and bad today bad one

Sam_Scope

Im glad you have benefits sorted, a lot of us understand about good days and bad, I find I need to listen to my body and rest as much as I can on the bad days.

kimdyer18

thanks hun xxx

kimdyer18

has anyone got this condtion be lovely to talk to someone that knows what im going through 

Vickymay87

hi hi just to let you know. I have also been diagnosed with Hereditary spastic Parapelgia. If you have got any questions, let me know and I will be happy to answer 😊👍🏼