I have a Neurological disability

ksenia89bf · June 2023

⛩️▫️i want to work yet i find it really hard as i have no use of my dominant hand ▫️my right hand

⛩️▫️I have found an employment agency that is covered by the Sunflower Langard Scheme.

⛩️▫️I have been told i can not PIP because I can use my left hand

⛩️▫️I'm not left handed I'm right handed and this is my dominant hand which I can not use because I have a Neurological disability which I cannot use my right hand at all

⛩️▫️Please can anyone help me as i have no use of my right hand now and I struggle at home because I can't use my right arm

⛩️▫️i have to wait 49 weeks to have a MRI scan ▫️EMG scan and have a EGG scan too

⛩️▫️i would be grateful if someone could help me as it feels I'm getting nowhere with it

⛩️▫️i can function in many situations but not with my right hand

⛩️▫️it's funny we take it for granted when we can use your dominant hand all the time ▫️ yet when we have no control of your dominant hand you suffer

ksenia89bf · June 2023

i have no use of my dominant hand and have to learn to use my left hand✨️which I find very difficult to use✨️especially when it's not my dominant hand ✨️I've been referred to see a neurologist about my right arm✨️

what I'm asking is what jobs is there for me when I cannot use my dominant hand✨️

I've had a disability for thirty years and have worked full time with my disability✨️

The problem I have now is I have no use of my dominant hand✨️yet i want to work still

According to DWP i have use of my left hand which is not my dominant hand so I can work

sorry I looked with amazement I am not left handed but I can work✨️ i am right handed but now suffer with my right-hand side of my body and I've never had to use my left-hand

Cher_Alumni · June 2023

@ksenia89bf Morning, and thank you for your post sharing your story. How is your Friday going?

I'm sorry to hear not having the use of your dominant hand is causing so many challenges. When you say you, "can not PIP because I can use my left hand" - do you mean you've been told you can't apply for PIP because you can use your other hand? Do you personally think your condition would score you enough points to get an award?

Do you manage to do things okay at home? And do you have support of friends and family? I wonder if you could speak with your GP about the impact this is having on you, and if there would be any way of your MRI being expedited?

I'm sorry, there's a barrage of questions there to answer(!) but I hear your frustration. I hope there can be progress for you soon.

Cher_Alumni · June 2023

Also just to let you know, I've merged another thread of yours with this one so we can keep all replies in one space to make it easier to track

Ishy56032 · June 2023

Hi,

Sorry to hear your struggling, I would advice you get some help to fill in a pip form, also you can ask your doctors for expedited, let you doctors know that your struggling daily, i struggle with my mobility, I use crutches every day to get me around, i was told the same, that it will take nearly a year to see a Neurologist, I have an appointment next week to see an neurologist, a month later, your doctors can put it in as an urgent request and can request an MRI scan sooner.

Let us know how you get on.

Good luck with everything!

ksenia89bf · June 2023

Cher_Scope said:

@ksenia89bf Morning, and thank you for your post sharing your story. How is your Friday going?

I'm sorry to hear not having the use of your dominant hand is causing so many challenges. When you say you, "can not PIP because I can use my left hand" - do you mean you've been told you can't apply for PIP because you can use your other hand? Do you personally think your condition would score you enough points to get an award?

Do you manage to do things okay at home? And do you have support of friends and family? I wonder if you could speak with your GP about the impact this is having on you, and if there would be any way of your MRI being expedited?

I'm sorry, there's a barrage of questions there to answer(!) but I hear your frustration. I hope there can be progress for you soon.

I've have this disability since I was a young man▫️. ive worked around my disability all my life.▫️ it's just now i cannot use my dominant hand I struggle ▫️My life at home is better thanks to my ex-girlfriend who does everything my right arm cannot do▫️ I'm not entitled to PIP because according to them because they is nothing wrong with my left hand I can work ▫️ If I was ambidextrous I would not have a problem with anything ▫️I'm right handed ▫️My doctor and the specialist is helping me with my problems ▫️The wait to get a MRI scan is so long ▫️I have great friend I've known for 37 years who does everything my right hand cannot do ▫️I've never asked anything from DWP ▫️I have a Neurological disability since something horrible happened to me when I was young ▫️I've been stubborn and never asked for help ▫️it's just now I struggle I need some advice ▫️I have signed up to a Neurological Disability employment agency that are supported by the Sunflower Langard Scheme ▫️

ksenia89bf · June 2023

Ishy56032 said:

Hi,

Sorry to hear your struggling, I would advice you get some help to fill in a pip form, also you can ask your doctors for expedited, let you doctors know that your struggling daily, i struggle with my mobility, I use crutches every day to get me around, i was told the same, that it will take nearly a year to see a Neurologist, I have an appointment next week to see an neurologist, a month later, your doctors can put it in as an urgent request and can request an MRI scan sooner.

Let us know how you get on.

Good luck with everything!

Thank-you for your kind message ▫️my ex-girlfriend and helper filled my form in ▫️my doctor has now contacted the DWP to tell my problems with my neurological disability▫️My doctor has been helping me for a long time to get to the problems ▫️now I'm getting worse my doctor is very worried about me▫️I've had a Neurological disability for a very long time ▫️Good luck with your appointment and they can help you with your neurological disability too ▫️▫️ what annoys me the most I've worked all my life ▫️signed on for one year now that's all ▫️I've had a Neurological disability since I was in my twenties and never had no help from the DWP ▫️i just want advice to help me as I get older

Good luck with your appointment and the specialist can help you out and give you peace of mind too

poppy123456 · June 2023

ksenia89bf said:

Cher_Scope said:

@ksenia89bf Morning, and thank you for your post sharing your story. How is your Friday going?

I'm sorry to hear not having the use of your dominant hand is causing so many challenges. When you say you, "can not PIP because I can use my left hand" - do you mean you've been told you can't apply for PIP because you can use your other hand? Do you personally think your condition would score you enough points to get an award?

Do you manage to do things okay at home? And do you have support of friends and family? I wonder if you could speak with your GP about the impact this is having on you, and if there would be any way of your MRI being expedited?

I'm sorry, there's a barrage of questions there to answer(!) but I hear your frustration. I hope there can be progress for you soon.

I'm not entitled to PIP because according to them because they is nothing wrong with my left hand I can work

PIP has nothing to do with your ability to work. When was the decision made on your PIP claim? If it was within the last 13 months you can request the Mandatory Reconsideration. (MR) https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/appeals/mandatory-reconsideration-pip/

Ishy56032 · June 2023

Thank you, hopefully you get the bottom of it soon, I understand where your coming from.
I've always worked, unfortunately a few years ago after I had my son, I started experiencing numbness and pains in my whole body and now I cant walk at all, without crutches, I used to work full-time in mental health on the ward, now I am mostly housebound, I hope neurologist has an answers for losing my ability to walk.
It's good to hear your doctors really supportive, hopefully you get the answers you are looking for.
Take care.
Thank you.

ksenia89bf · June 2023

Ishy56032 said:

Thank you, hopefully you get the bottom of it soon, I understand where your coming from.
I've always worked, unfortunately a few years ago after I had my son, I started experiencing numbness and pains in my whole body and now I cant walk at all, without crutches, I used to work full-time in mental health on the ward, now I am mostly housebound, I hope neurologist has an answers for losing my ability to walk.
It's good to hear your doctors really supportive, hopefully you get the answers you are looking for.
Take care.
Thank you.

Thank-you for your kind message ▫️People who have never experienced what it feels like to have a Neurological disability cannot judge us ▫️because they have never experienced it themselves ▫️it's so nice when you have someone who works for companies that have experienced a Neurological disability ▫️ I don't go out at all ▫️i have no use of my dominant hand at and find very hard ▫️the simple things in life I can't do ▫️

i hope 🙏🙏 that you can get the help from people who have experienced what you've been through

It's harder for you than me ▫️you have a young child also to raise too ▫️which cannot be easy for you ▫️i couldn't have children i experienced something horrendous when I was a young boy

Have a lovely and beautiful weekend too

Ishy56032 · June 2023

Thank you, I hope your health improves soon and you get the roght help, I know where your coming from, unfortunately people are so judgemental, theirs no need at all.
I have a 6 years old daughter and a 3 years old son, i hate when I can't join in the activities with them, unfortunately.
My husband really supportive.

Awww bless, I hope you get the answers and support.

Have a lovely weekend
Take care.

ksenia89bf · June 2023

Ishy56032 said:

Thank you, I hope your health improves soon and you get the roght help, I know where your coming from, unfortunately people are so judgemental, theirs no need at all.
I have a 6 years old daughter and a 3 years old son, i hate when I can't join in the activities with them, unfortunately.
My husband really supportive.

Awww bless, I hope you get the answers and support.

Have a lovely weekend
Take care.

⛩️▫️Thank-you for being so supportive and being kind-hearted too ⛩️▫️i really appreciate that ⛩️▫️not having my dominant hand i find it hard to exercises ⛩️▫️i do have a Smart Wonder Core I can't do the arm exercises but I do the sit ups and do my legs too ⛩️▫️i exercise at home and doing sit ups on the Smart Wonder Core about 30 minutes a day ⛩️▫️my ex-girlfriend who I've known for 37 years helps me ⛩️▫️has one too and we encourage each other even though my ex-girlfriend is fine and well
⛩️▫️I'm enjoying a quiet weekend watching Inspector Morse Box set on DVD and have oscillating fan on generating beautiful cold air
⛩️▫️Have an awesome and wonderful weekend with your supportive husband and supportive children too
⛩️▫️Stay safe 🙏🙏🙏 too

Ishy56032 · June 2023

Hi, thank you, its good to hear your have support from your friend, I wish you all the best with your health, and I hope you have a relaxing weekend, take care.

I have a Neurological disability

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