Scoliosis

Bettahm
Bettahm Online Community Member Posts: 1,441 Championing
edited November 2023 in Neurological impairments and pain
I got scoliosis after injuring my back in 1984. So I have a backward S curve on my spine, a twisted neck and twisted pelvis. Now I also have a twisted rib cage. My gp has finally done a referral to the pain management clinic. I get back, neck, shoulder, head, ear, arm, pelvis, leg pain, not continually but the pain moves around. Chest pain too. Also I have vertigo since 2017, tinnitus since last year and acid reflux since 2020. Think these are all due to scoliosis 
Does anyone else here have scoliosis 
What helps with it
Mine seems to be getting worse, maybe age, I'm 62
Nurse on phone in orthopaedic dept I rang at hospital said they dont do spines and I need to get on the 'spinal pathway'
Nearest is miles away in another county
I have agoraphobia 
Not sure what to do so turning here for help and advise.
I'm autistic with mental health problems 
No family etc, have to rely on hospital cars for getting to appts when I'm able to attend 
Thanks for any advise 

Comments

  • Albus_Scope
    Albus_Scope Posts: 9,613 Scope Online Community Coordinator
    Hey @Bettahm I'm just checking in here really and to give your post a bit of a bump up to the top of the page so more people can see it. :)

    Have you managed to find any answers for scoliosis pain relief yet? 
  • Bettahm
    Bettahm Online Community Member Posts: 1,441 Championing
    Albus_Scope said:
    Hey @Bettahm I'm just checking in here really and to give your post a bit of a bump up to the top of the page so more people can see it. :)

    Have you managed to find any answers for scoliosis pain relief yet? 
    No. The referral was done sep 12 and I've been on the counties pain management website twice and filled in a general enquiry form just asking how long the wait might be but have heard nothing. 
    Not sure if theres any more I can do.
  • Albus_Scope
    Albus_Scope Posts: 9,613 Scope Online Community Coordinator
    Really sorry to hear that @Bettahm, I''m really hoping the referral comes back to you asap.  Did you have any joy with your GP?
  • Bettahm
    Bettahm Online Community Member Posts: 1,441 Championing
    Albus_Scope said:
    Really sorry to hear that @Bettahm, I''m really hoping the referral comes back to you asap.  Did you have any joy with your GP?
    I'm no longer able to contact my gp. They have been so bad in the past, dont make reasonable adjustments for my autism and mh, and have added to my anxiety. So I'm kind of without a gp currently. I am looking at gps outside the area but with agoraphobia cant get to any. So looking for one where I can sign up online. All adds to the stress. Nothings easy or straightforward. 
  • Albus_Scope
    Albus_Scope Posts: 9,613 Scope Online Community Coordinator
    I remember you were looking into other GPs, but was hoping you'd have been able to find one online.  So sorry, they really don't make things easy for people who have issues with outside. 
  • Bettahm
    Bettahm Online Community Member Posts: 1,441 Championing
    Albus_Scope said:
    I remember you were looking into other GPs, but was hoping you'd have been able to find one online.  So sorry, they really don't make things easy for people who have issues with outside. 
    They (the world) dont make things easy for people who dont fit in, dont conform to the norm. That covers an awful lot of us here.
    Good to have Scope to shout out to on this alien planet.
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    @Bettahm I hope we can continue to be a place of support for you <3 
  • Bettahm
    Bettahm Online Community Member Posts: 1,441 Championing
    Hannah_Scope said:
    @Bettahm I hope we can continue to be a place of support for you <3 
    Thank you 

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