Apert Syndrome support needed. Who do I speak to?

hayderhayder815
hayderhayder815 Online Community Member Posts: 1 Listener
edited January 2024 in Rare, invisible, and undiagnosed conditions
Hello, My daughter suffers from Apert Syndrome and she is only 3 years old, and we are from Iraq Baghdad, and it is impossible to cure her in my country due to the lack of health services. Could you advise me to whom I have to apply or what country or charity accepts her to be cured?

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  • Albus_Scope
    Albus_Scope Posts: 11,423 Scope Online Community Coordinator
    Hey there @hayderhayder815 and welcome to the community.

    I'm sorry to hear you're unable to get support locally. As we're a UK based charity, I can only advise on UK help. But I've found Elija's hope who work with The Genetic Alliance who may be able to point you in the right direction?

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