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Hi, my name is danielorr41!
danielorr41
Member Posts: 8
Hi I'm wondering if anyone on here can help me and my partner.
She is currently 31 weeks pregnant at our 20 week scan we were told that our baby had large ventricles and we were sent for a foetal MRI, we were told by the radiologist that it was a poor prognosis as the right side of the brain had been damaged, ? Stroke ?bleed.
The obstetrician referred us to a neurologist who told us slightly better news and he expected our outcome to be mild/moderate learning difficulties and probably a one sided weakness. He referred us for another MRI at 28 weeks which we went for. When it was reviewed by the neurologist and radiologist they found that there was thickening at the back of both parietal lobes as well as the damage to the right hand side of the brain and the prognosis was that the baby would probably have severe neurodisability cerebral palsy and epilepsy that is difficult to control and probably be wheelchair bound. We have had an amino last week that showed no abnormalities as well.
I would like to know if anyone has had a experience like this and what the outcome was as doctors are asking if we would like to continue with the pregnancy or not.
Thanks for any advice or help you can give us .
She is currently 31 weeks pregnant at our 20 week scan we were told that our baby had large ventricles and we were sent for a foetal MRI, we were told by the radiologist that it was a poor prognosis as the right side of the brain had been damaged, ? Stroke ?bleed.
The obstetrician referred us to a neurologist who told us slightly better news and he expected our outcome to be mild/moderate learning difficulties and probably a one sided weakness. He referred us for another MRI at 28 weeks which we went for. When it was reviewed by the neurologist and radiologist they found that there was thickening at the back of both parietal lobes as well as the damage to the right hand side of the brain and the prognosis was that the baby would probably have severe neurodisability cerebral palsy and epilepsy that is difficult to control and probably be wheelchair bound. We have had an amino last week that showed no abnormalities as well.
I would like to know if anyone has had a experience like this and what the outcome was as doctors are asking if we would like to continue with the pregnancy or not.
Thanks for any advice or help you can give us .
Replies
As to whether you want to continue with the pregnancy - that has to be a decision that you and your partner make. If you feel the doctors are putting on to much pressure, try and ask them to give you some space. Haso anyone offered counselling about your choices? ARC (Antenatal Results and Choices) offers lots of neutral info about your options - their website is here http://www.arc-uk.org, and they have a telephone helpline which you and your partner might find useful too.
Hope you're doing okay.
Lucas
I hope all goes as well as can be expected tomorrow - I know that this must be an awful experience - I will be thinking of you.
Lucas
L.