Feeling lonely.... And isolated

emmaanear
emmaanear Online Community Member Posts: 23 Connected
Hi I'm new here I'm profoundly deaf and have a rare genetic disorder that limits my movement, just wondered if anyone else struggles with feelings of loneliness or isolation? Would be nice to chat with others with disabilities who can understand, thanks. 

Comments

  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    Hi Ada I also have a partner and a little senior rescue dog but I feel totally alone, deafness is so isolating and I moved up north to Durham with my partner leaving behind all my family and friends down south where I'm from. Now I have nobody really, my partner is not supportive at all which is hard to say but the truth. U can be in a relationship but still feel more alone than ever. Thank you for replying I would love to make some friends on here people I can chat too hopefully but I'm just learning how it all works here 😊
  • Rosie_Scope
    Rosie_Scope Posts: 5,505 Scope Online Community Coordinator
    Hi @emmaanear, welcome to the community. Sorry you're feeling lonely and isolated. I hope you'll find some friendship here and we can help you feel less alone.

    Lots of our members use the 'how's your day going' discussion to say hello to each other every day if you'd like to get involved with that. And just let us know if you have any questions about how to use the community, we'd be happy to help :)

    What kind of rescue dog do you have? I don't have a dog myself but one of my housemates does, she's a cocker spaniel called Lola. She rules the roost really, such a princess! She'll often come up to me while I'm working and demand scratches. Makes it a bit hard to type sometimes when there's a spaniel in your face :D 
  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    Hi @Rosie_Scope thanks for your message, I have a little jackapoo rescue I would never have normally gone for a doodle but he was perfect for me. So small and helpless and scruffy looking 😂 and because he wasn't a puppy I knew he would have trouble getting adopted and he also had behavioural problems so not the most attractive package to most people but I loved him straight away. It took a long time and lots of training and of course love but we got there in the end. I've had him 6 yrs now and he's the only thing that gets me outta bed if I'm honest 
  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    Yes @Biblioklept it's a hard thing to admit too but the truth isn't always pretty I guess. I've been with my partner for 20 yrs and thought that as my illness progressed he would still love and care for me but nothing could be further from the reality. I think he resents me and is embarrassed of me and he definitely uses my disability against me. Like he will say That's not what I said u got it wrong because I'm deaf but I know I didn't I'm a master at lipreading and no one gets it wrong that many times. Uggg sorry I'm rambling on thanks for listening it means a lot to me 😊🙏
  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    @ada your so right we are vulnerable and it's so hard to find like minded people to chat too in a safe space but people here have been so welcoming already I so wish I had found this little community earlier it's wonderful here. I hope your doing ok too ❤️
  • Rosie_Scope
    Rosie_Scope Posts: 5,505 Scope Online Community Coordinator
    Your little jackapoo sounds so sweet @emmaanear! We had Jack Russell terriers while I was growing up, they're such characters

    I'm really glad you're enjoying the community so far :)
  • Sandy_123
    Sandy_123 Scope Member Posts: 62,928 Championing
    emmaanear said:
    Yes @Biblioklept it's a hard thing to admit too but the truth isn't always pretty I guess. I've been with my partner for 20 yrs and thought that as my illness progressed he would still love and care for me but nothing could be further from the reality. I think he resents me and is embarrassed of me and he definitely uses my disability against me. Like he will say That's not what I said u got it wrong because I'm deaf but I know I didn't I'm a master at lipreading and no one gets it wrong that many times. Uggg sorry I'm rambling on thanks for listening it means a lot to me 😊🙏
    I was just going to say I bet she's really good at lip reading and you put it before I could ask. That in its self is really good and I know a lot of deaf people who can lip read faster then I can speak.  I personally can't master that  I've tried, unless someone is speaking very  very slow lol.  


  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    @Biblioklept before we moved up north I voiced my concerns about being isolated and so far from my family but he promised he would always be there for me and care for me but once we got here that was not the case at all. This is his home town he has lots of friends here but I have no one the only friend I had here sadly passed away in a car crash 2 years after we moved here so for the last decade I've been so lonely and I feel trapped embarrassed to tell my family that I wanna move home because I don't want to be a burden to them and I have no where to go or the money to do it. I'm so ashamed it's painful. 
  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    @Rosie_Scope I had a Jack Russel too he was my previous dog I had him for 18 years also a rescue but what a character he was and my little jackapoo I have now is all terrier in his nature loving loyal and slightly bonkers 😂
  • emmaanear
    emmaanear Online Community Member Posts: 23 Connected
    @Biblioklept sorry fir delayed reply. I agree with all u said and I've tried so hard to be happy here or just content I've tried fir 12 years now and I'm not getting any younger and my illness has progressed further. I think im gonna have to pluck up the courage to tell my family the truth I've been lying to them for years saying I'm ok and happy here because I didn't want them to worry. It's going to be a shock for them I can only hope that maybe they can help me in some way I'm frightened and embarrassed and I loved my partner but I don't believe he loves me his actions have proved that over and over again. 20 years we've been together and the thought of starting over at nearlly 50 is terrifying but I can't carry on like this it's killing me physically and emotionally I'm so tired of it all 
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    edited March 2024
    Hello @emmaanear I am going to pop an email over to you <3