We know more than they do

nathaliroma
nathaliroma Online Community Member, Scope Member Posts: 38 Connected
in Neurological impairments and pain
Hi 👋,

 Ive been living with chronic pain for over 20 years. The NHS is great at diagnosing, although we do have to wait. But not so great with treatment options. If you also have stomach issues, oral pain meds are often not tolerated well. Nerve injections, acupuncture, physio exercises. All either didn’t work all or in my case made it worse. After a long road, the Pain Specialist basically negated my experience and then abruptly stated, there was nothing more she could do. My pain, as I have learnt through my own research comes from trauma and abuse. Therapy does work to a certain extent, but there has always been a deeper level to it. Almost a cellular pain that I can’t get at to fix. Read a wonderful article about Visceral pain. A good understanding shown, but again no real way to treat it as yet. I feel that medical science has to catch up with me……..

Comments

  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    Hello @nathaliroma

    I am so sorry you have been living with pain for so long. Can I ask, you said therapy can help to a certain extent, is this something that you are able to access when needed? 
  • nathaliroma
    nathaliroma Online Community Member, Scope Member Posts: 38 Connected
    Hi Hannah,

    Help is out there, but like everything with the NHS, the wait times are long.
    probably even longer now. I found CBT amazing. A real game changer 👍
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    @nathaliroma I'm so glad to hear CBT worked well for you. It did for me too :) I hope the wait times are not long for you when you do need it. Can I ask, does your GP do mental health reviews with you? They can happen at 6 months or 12 months, and it may help you get into therapy quicker when needed? 
  • nathaliroma
    nathaliroma Online Community Member, Scope Member Posts: 38 Connected
    Hi Hannah,

    In the old days when I had a family GP that was the case. It’s all a bit hit and miss now, difficult to see the same GP in any regularity. Even prescription reviews don’t happen with the same regularity.
  • Hannah_Alumni
    Hannah_Alumni Scope alumni Posts: 7,866 Championing
    That's such a shame! It may be worth enquiring with your NHS trust? My GP does reviews as I have them, but my friend goes through her trust. May be why it is different now at the GP? 
  • nathaliroma
    nathaliroma Online Community Member, Scope Member Posts: 38 Connected
    will look into it 👍

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