Post Impairment Syndrome and Cerebral Palsy
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I'm glad you found the post helpful @Welli! Is it something you'd feel able to speak to your doctor about?
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Hi I am occupation therapist with mild Cp more movement disorder facial expressions and tremors in left hand arm. High tone in neck and shoulder . Tight muscle on right legs. Arthritis in my hand and decrease power in my hands. Fatigue is a killer and reduces.my work hours and get lower rate pip for a cleaner. I just when to my Gp to refer me to London college university hospital to check if I have post impairment syndrome. It was really hard to make him understand. Because I appear to be normal??? But I am really struggling and he kept saying I'm depressed grrr.why is it so hard. 😔 anyway with persistent I have a referral going to London.
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I'm glad you've managed to get a referral to London @DanceDeb, it's frustrating to hear how close-minded your GP was about Post-Impairment Syndrome, keep us updated as and when you can.
I'd certainly be keen to hear how you get onOnline Community Coordinator
Scope
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I had my appointment in London a full MDT assessment and they confirmed that I have post impairment syndrome disorder. I felt I was really listen to and took seriously. They suggested some technical, drugs and xray and PT exercises. I am really glad that you suggested the referral. Ordinary GP don't seem to know about this disorder 😕
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This is exactly how i feel at the moment. I've had one too many over compensating injuries and I fear its only going to get worse in years to come
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Hi @Smile123x
Have you spoken to your G.P. about a referral to a Multi-Disciplinary Team (MDT)?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Richard_Scope said:Hi @Smile123x
Have you spoken to your G.P. about a referral to a Multi-Disciplinary Team (MDT)?
I haven't because I always down play my issues/ don't really know if that's suitable for me. I am seeing a GP physio so that pip can see the physio notes about my shoulder postural issues and I emailed my orthopedic people as I am due a phone call recarding my foot that I had my operation on.
One of my letters from Orthopedics says that an operation may not work for me due to deformities. I had the operation anyway but like I think I said above I have changed my working hours and how far I walk at work due to pain. They did say recovery would be difficult for someone with CP. So I need to ensure I do not make it worse by over walking and really try to pay attention to pain levels
I can't remember if I said I am going to request mri on back and neck so I have evidence and can find out more about my back
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As someone with CP myself, I can relate to what you have said there. I would have a chat with your GP about a referral to the UCLH Cerebral Palsy Team
I know that we are always taught to focus on what we can do, which is good, but it can also lead to us downplaying issues. This can be hugely counter-productive in the long term. I speak from experience. I used to be very good at ignoring clear signs from my body.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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I have put an update earlier today sorry i could work out to put this on this feedopp sorry 😞
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No need to apologise @DanceDebScope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Richard_Scope said:As someone with CP myself, I can relate to what you have said there. I would have a chat with your GP about a referral to the UCLH Cerebral Palsy Team
I know that we are always taught to focus on what we can do, which is good, but it can also lead to us downplaying issues. This can be hugely counter-productive in the long term. I speak from experience. I used to be very good at ignoring clear signs from my body.
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