Hi, my name is chris85!
chris85
Online Community Member Posts: 1 Listener
Anyone else out there have the condition pvns /gaint cell tumour syndrome. Or anyone taking part in the 1000 genomes study.
0
Comments
-
Hi @Chris85!
Welcome to the community. Afraid I don't know much about that syndrome - how does it affect you?
@Amanda77 recently wrote about her daughter being part of the 100,000 genome project:
https://community.scope.org.uk/discussion/32009/undiagnosed-conditions-is-knowing-better-than-not-knowing
0
Categories
- All Categories
- 15.8K Start here and say hello!
- 7.5K Coffee lounge
- 105 Games den
- 1.8K People power
- 158 Announcements and information
- 25.2K Talk about life
- 6.2K Everyday life
- 508 Current affairs
- 2.5K Families and carers
- 873 Education and skills
- 2K Work
- 579 Money and bills
- 3.7K Housing and independent living
- 1.1K Transport and travel
- 642 Relationships
- 1.6K Mental health and wellbeing
- 2.5K Talk about your impairment
- 878 Rare, invisible, & undiagnosed conditions
- 939 Neurological impairments and pain
- 2.2K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 40.7K Talk about your benefits
- 6.1K Employment & Support Allowance (ESA)
- 20.2K PIP, DLA, ADP & AA
- 9.1K Universal Credit (UC)
- 5.3K Benefits and income