So tired!

Options
Oakhill05
Oakhill05 Online Community Member Posts: 6 Connected
edited March 2017 in Families and carers
Hi I just asking for any advice really! Any help will be gratefully received!
i have three children my eldest has CP, epilepsy and learning difficulties. He had major brain surgery a couple of years ago and has been a different child since! He has always been obsessive but he has got much worse. He has to say what he's going to say he can't keep it to himself and I feel so drained! He completely takes it out of me! I work four days a week full time hours and I am constantly having to take time off for appointments and when he gets sick which is quite a lot! I have been considering giving up work to look after him properly as I constantly feel guilty, That I don't have enough time! 
But how do people afford to live I have two other children 1 and 3 and bills and mortgage to pay!??? I am just so tired all the time and feel like crying! 
 Also my 3 year old keeps asking me why my son is always ill I have been honest with her but she doesn't understand! Is there any books for preschool age children that anybody recommends that might help! ? 

Comments

  • Chris_Alumni
    Chris_Alumni Scope alumni Posts: 684 Empowering
    Hi @Oakhill05, are you currently claiming any benefits? You might like to try our interactive benefits calculator here to find out  what you may be eligible for, or ask our online benefits advisors a question. Hope that helps, and I'm sure our community will have some good advice for you.

  • Oakhill05
    Oakhill05 Online Community Member Posts: 6 Connected
    He gets disability living allowance
  • [Deleted User]
    [Deleted User] Posts: 728 Listener
    The user and all related content has been deleted.
  • Oakhill05
    Oakhill05 Online Community Member Posts: 6 Connected
    Yes he had a hemispherectomy for his epilepsy which has worked he has less siezures but he is more disabled than he was. He has no movement in one hand at all now and has started to rely on a wheelchair when at school as he gets so tired and then gets sick all the time. He can't help talking all the time and can't just stop no matter how nicely I say!!! He has to say it. I can honestly say I feel like screaming! 
    Having two little ones as well is draining in itself, and work I feel like I can't concentrate on anything! 
  • [Deleted User]
    [Deleted User] Posts: 728 Listener
    The user and all related content has been deleted.