Hi, my name is Ajay60!
Ajay60
Online Community Member Posts: 1 Listener
hi , we recently got a diagnosis of a very very very rare disorder for my 16 month old grandson.
Its very hard for us all to compute . Iām finding it all rather overwhelming.
I have three other granddaughters , four step grandchildren and two great grandchildren also .
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Hello @Ajay60. Welcome from me too! It can be a big adjustment when you first get a diagnosis through, I hope you and the rest of the family are coping okay and your grandson is doing alright.
Please feel free to take a look around the community and join in wherever you like. I hope you'll find some support and advice here š
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