Hi, my name is Ajay60!

Ajay60
Ajay60 Community Member Posts: 1 Listener
in Start here and say hello

hi , we recently got a diagnosis of a very very very rare disorder for my 16 month old grandson.

Its very hard for us all to compute . Iā€™m finding it all rather overwhelming.

I have three other granddaughters , four step grandchildren and two great grandchildren also .

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  • Rosie_Scope
    Rosie_Scope Posts: 9,900 Scope online community team

    Hello @Ajay60. Welcome from me too! It can be a big adjustment when you first get a diagnosis through, I hope you and the rest of the family are coping okay and your grandson is doing alright.

    Please feel free to take a look around the community and join in wherever you like. I hope you'll find some support and advice here šŸ˜Š

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