Where can I post about health hospital appointments issue please?

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flatmovebenefits
flatmovebenefits Online Community Member Posts: 9 Listener

Where can I post about health hospital appointments issue please?

I'm finding it difficult to get appointments, follow-up appointments at the hospital for my health, and have done all I can emailing them and complaining etc. I have mental health and Autism. Can you please let me know in which category I could post about my situation?

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  • Albus_Scope
    Albus_Scope Posts: 10,031 Scope Online Community Coordinator

    Heya @flatmovebenefits if you just wanted to post what you need to, we can always move the discussion if it looks like it's in the wrong place, that's no problem at all. 😊

    Sorry to hear you've been struggling to get appointments, that's a story we currently hear a lot of. Has your GP been able to recommend anyone to speak to?

  • flatmovebenefits
    flatmovebenefits Online Community Member Posts: 9 Listener

    My situation is as follows. Since around 2020/1 I have been finding it difficult to get follow-up outpatient appointments in a hospital department. Physical health. When they say we'll see you again in … I do not get the appointments. By the time I do get an appointment it has been 12 months later, 6 months later, 4 months later. Meanwhile my condition is worsened and I may need an operation to deal with it, because of the delays. Had it been dealt with earlier, I would not be in this situation where I may need an operation.

    I was last seen towards end Aug 2024, told me would be sent an appointment for 2 weeks time, beginning of Sept 2024. Said then will treat me and then refer me to have a CT scan to see if going to need an operation.

    I told the medical person, about issues with appointments, the last time, let alone times before. He said leave it with me, you will get appointment. I trusted him, but I was sceptical. I was right, I still did not get the appointment. Which has left be very worried depressed etc. conditions I suffer from plus OCD, panic attacks. and Autism. Asperger's traits.

    I contacted the hospital, told to email here and there, I did all that. One response said I was not sue to be seen when I said I was beginning of sep 2024. But I was that's what I was told, I have a voice recording, plus meanwhile (late: can see by the envelope frank, different date to the latter) received copy of the notes when I was last seen, and clearly reads to be seen again in 2 weeks. emailed hospital about this, but they ignored me did not write back.

    As I stated emailed other departments that department told me to email within the hospital. But still no joy, no response. Contacted PALS, they not interested, told me to email yet other email addresses. I'm doing their work. Did what they told me, still no reply. Called PALS again, told me to forward to them all of the emails I had sent, did that. But on the phone she said might get a reply, was not sure, said was busy etc etc.

    I also contacted the other organisation about complaining but they said was busy was a waiting list.

    tried to see my gp but could not get an appointment, waited in practice 3 hours said i would be seen, then told me i would not be seen. tried to email practice to complain, still no appointment. and kept being told it is for me to chase the hospital. i am disabled and distressed, practice ignoring me too.

    So I've run out of options. My condition the longer it is left the higher the chances it could kill me. They know this too. So in a way they are exposing me to death by their negligence and it appears to be deliberate.

    So I have done all I can to try to be seen when they say I should be seen. And I can't get the appointment. The last time I should have been seen again in 1 month turned into 4 months, for this same condition, medical situation.

    I contacted a lawyer but they said wait for the result of the scan. That's all they can do. But I just wait to be treated on time, and they promised me I would be seen on time and they misled me.

    Does anyone have any suggestions please?

  • jabbers1
    jabbers1 Online Community Member Posts: 29 Connected

    Unfortunately, the way you are being treated is not an isolated case. I am in the exact same boat as you and have been passed from pillar to post. No one seems interested and I’m told there is no help available. Last appointment I had I explained to the consultant that I felt so hookless that I felt suicidal. I was told to contact the Samaritans! The NHS is now totally ineffective in my opinion.

  • flatmovebenefits
    flatmovebenefits Online Community Member Posts: 9 Listener

    sorry to learn of it. if you don't mind me asking, what it a body condition or mental one you went about trying to get appointment?

  • MW123
    MW123 Scope Member Posts: 1,338 Championing

    I am really sorry to hear about the challenges you are facing with your healthcare. It is incredibly frustrating to deal with these delays, especially when your health is at stake.

    It is important to note that there is a significant difference between simply sending an email about the care—or lack of care—you are currently receiving and clearly stating that you are filing an official complaint. GP surgeries and hospitals have a duty to investigate complaints thoroughly, and making this distinction is crucial for ensuring your concerns are taken seriously and not just dismissed as another follow up enquiry.

    Waiting in a GP’s surgery for three hours only to be told you cannot be seen after initially being promised an appointment is dismissive and disheartening, especially when you are trying to manage your health. You deserve timely and effective care, and this situation is simply wrong. This incident alone is completely unacceptable and warrants an official complaint in its own right.

    If I were in your shoes, I would send an email clearly stating that you wish to file an official complaint with the GP, outlining the treatment you received at their surgery and the lack of support from your doctor in chasing up referrals sent to the NHS.

    Also, from reading your post, I am unclear whether you have already had the scan or if you are still awaiting an appointment for it. Your GP is best placed to follow up on any results from scans or to secure an appointment for this.

    I understand that waiting lists at hospitals can be long these days. Depending on your financial situation, it might be worth asking your GP to refer you privately. I personally mix and match care for my chronic conditions between private consultations and the NHS, and it works well.

    Most importantly, if you feel unwell, do not hesitate to dial 999. I have known several people who were taken in as emergencies and received immediate scans and operations, bypassing all waiting lists. Please do look after yourself.

  • jabbers1
    jabbers1 Online Community Member Posts: 29 Connected

    in my case I have both physical and mental health/developmental disorders. However my experience of every department within the NHS over the past 5 years have been the same. I made a decision a few weeks back that I am no longer going to put myself through the hassle and upset of making appointments thinking they’ll finally find a solution and offer me some kind of help.

  • MW123
    MW123 Scope Member Posts: 1,338 Championing

    It sounds like you have been through a really challenging experience with the NHS, and I can imagine how frustrating and exhausting it must feel to seek help repeatedly and not feel heard or properly supported. It is completely understandable to feel disheartened after multiple attempts to get the care you need, especially when managing both physical and mental health concerns.

    Deciding to step back from making appointments could be a way to protect your emotional well being, which is really important. Sometimes creating boundaries around things that bring more harm than good is necessary for self care.

    I have had my share of disappointments with medical treatment too. For example, my operation to treat spinal stenosis was declined due to the risks associated with my other health conditions. I also deal with high anxiety and chronic fatigue, but maintaining a routine helps me manage. Adjusting my working hours to 30 a week has been really beneficial, providing much needed stability and helping me avoid burnout.

    Recently, I joined a patient support group run by a charity, which has been incredibly valuable for connecting with others who truly understand living with chronic illness. Have you considered looking into any alternative options or support outside the NHS that might offer a new perspective or some hope?

  • jabbers1
    jabbers1 Online Community Member Posts: 29 Connected

    hi there

    Yeah I have contacted various charities and support groups who have offered support and advice.

  • egister
    egister Posts: 1,116 Pioneering

    How is it legally correct to obtain confirmation of the words of hospital employees, consisting of facts of the reception of other patients?

  • flatmovebenefits
    flatmovebenefits Online Community Member Posts: 9 Listener

    I will follow up with complaints in time. But it's the practice staff that block me from obtaining appointments. I filled in an online consultation and sent it, they claim they did not receive it, I sent emails they say takes 3 business days to deal with, and 10 days goes past and no reply, i go to the practice they stay i can wait then i will be seen, as i wrote i wait 3 hours, then ask when I will be seen, and they then tell me I'm not on their system down to see anyone! I try to complain to the hospital about not receiving appointment, PALS tell me to email them all the emails I have already sent, as if they do not believe me, but they can find out that I sent the emails without me having to forward to them the emails I sent. But still after forwarding emails I still did not hear from them. She said on phone to email best rather than complain, I got the impression that she did not want to take my complaint, and she even said when i forward the emails not to mention her name! So I can't get to see a GO, I email the hospital all the departments, still no reply - no appointment, still not been seen, and not had the CT scan. It's clearly discrimination too on grounds of disability and possibly race. It's a horrible situation and I pretty sure if people knew what was really going on they should be shocked. The people working in the gp practice and hospital see names and book in the people who they want to, people of the same race as them. That's what I think is going on, and I have first hand experience of this at my gp practice, when I was waiting 3 hours, people was coming in and getting appointments, they had the same race as the reception staff. I telephoned the Equality Advice Support Service and explained all the details, much of which I'm not including here, and was told it is direct discrimination. So I'm forming a letter to complain and intend to take the matter to court re my gp. denying access to gp also is a serious matter. My medication run out for another issue that just came on and I did email the practice about this, I got the medication via the A&E, the practice said they would deal with it, days have gone by, the medication run out over 1 week ago and I am suffering as a result, they did not deal with it, why not, because they are discriminating and victimising, because I did let them know that I would be writing a letter of complaint regarding discrimination. Therefore much more serious now. The legal fees it will cost their side will be immense.

  • jabbers1
    jabbers1 Online Community Member Posts: 29 Connected

    I am not aware of your personal experiences regarding racial discrimination. However, I am white English, as is the reception staff at my GP surgery and both me and countless other white English people are treated just like you. It’s a major problem within the NHS. There is no longer continuity of care where your GP oversees and chases hospital reports etc, nor does there appear to be an awareness around what “duty of care” means. I have told my GP at my last appointment that my family are keeping a record of every appointment I attend, every phone call I make relating to my health and should anything happen to me while the NHS are ignoring my constant requests for help then they will hold the NHS responsible and will pursue all avenues to have this investigated. They don’t care; whether this is due to exasperation or burnout due to lack of support or available services to refer a patient on to. It’s a bad day when the NHS mental health services are telling patients who are suicidal to phone the Samaritans!

    Like you, I initially thought that I was being discriminated against because I have mental health issues, however, I soon realised this wasn’t the case after hearing similar stories from numerous patients who do not have mental health issues

  • MW123
    MW123 Scope Member Posts: 1,338 Championing

    @flatmovebenefits

    Thank you for providing the additional information about your situation. You might also consider emailing the Care Quality Commission (CQC). They expect GP practices to meet specific standards to ensure that patients are protected from abuse and harm, that the care and treatment provided lead to positive outcomes based on the best available evidence, and that staff treat patients with compassion, dignity, and respect. Additionally, GP services should be organised to effectively meet patients needs.

    While the CQC cannot investigate your individual complaint, which needs to go through the usual procedures, they do have the authority to order an urgent inspection of your GP surgery if they believe it is not meeting these required standards. By contacting the CQC, you can highlight your concerns, including any instances of discrimination. This may prompt an immediate inspection if they find, after reviewing your email, that the practice is falling short.

    Given the situation, it is crucial to file an official complaint with both the GP practice and the hospital directly. Even if PALS has not been helpful, your complaint needs to be on record so that they can be held accountable for their actions (or lack thereof).

    If possible, I strongly encourage you to consider registering with a different GP surgery. You deserve to be in a place where your concerns are taken seriously and where you receive the necessary attention for your health in a timely and sympathetic manner. Even if you are no longer a patient at your previous practice, your official complaint will still be investigated, and your former GP will be held accountable for the treatment you received while you were under their care.

    You are completely entitled to take legal action, but please note that UK courts generally prefer to see that individuals have followed the official complaints procedures first. This approach ensures that the issue has been fully addressed through the appropriate channels and that the organisation involved has had a chance to respond. Following the complaints process can also strengthen your case if you decide to pursue legal action later on. Please keep in touch and let us know how things work out for you. Take care xx

  • egister
    egister Posts: 1,116 Pioneering

    In the world there are two models of "free" mass health - German (Bismarck) and Russian (Semashko). NHS refers to the version of Russian (Semashko). This system works in the presence of a large number of doctors and singing medical specialists, when there are not enough malfunctions and attempts to improve the quality of treatment with administrative methods, which leads the system to collapse. Which now we are observing daily.

  • flatmovebenefits
    flatmovebenefits Online Community Member Posts: 9 Listener

    My GP receptionists are most (at the the ones I've dealt with) of the same cultural background (and from the same country: or their parents are from) and of the (I believe) the same religion. It's the same with the medical secretary, and the practice manager.

    I am not of that religion, cultural background or from the country they are from and/or their parents are from. And they know this.

    This is why I receive worse treatment. This is why if I was like them I would not be going through what I am now.

    It's the same in hospitals. Because there are simply too many many in the UK, moreover big cities, the staff who book appointments prioritize their own kind over other people. This is what is really going on. People sit back and think they are not being seen because there is a big waiting list on the NHS. Yes there is, but in big cities what they don't realise is that they are being discriminated against because of their race.

  • MW123
    MW123 Scope Member Posts: 1,338 Championing

    I understand your concerns about feeling overlooked because of your background, and I truly empathise with you. It is important to recognise that the official route is the most effective way to ensure your concerns are heard and taken seriously.

    I strongly encourage you to report your experiences through the channels I outlined in my earlier post. Your voice matters, and it can only be heard by taking the steps of an official complaint.

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing

    If you believe you are being discriminated against there are complaints avenues as well as the ombudsman to eventually go through!

    I will say, if you are in a big city it's very likely that multiple GP surgeries overlap where you live. I know when I lived in Glasgow I had an option of 4-5 GP surgeries I could register with. Is that a possibility with yourself?

  • flatmovebenefits
    flatmovebenefits Online Community Member Posts: 9 Listener

    I emailed the CQC as well as sending all other emails. Suddenly I got two appointments, not sure why, for same department on different days, one by text and one by email. Not sure if they know they have sent me two appointments. I dread asking. Will just go to the first one which is today 25Sep.

  • MW123
    MW123 Scope Member Posts: 1,338 Championing

    That's great news! Don't forget to ask about the other appointment while you're at the hospital. Wishing you all the best today.

  • Otteline
    Otteline Online Community Member Posts: 35 Connected

    I am someone who works within the NHS system (in a city hospital) and most of us as too busy to even notice what race people are let alone think about their religion. The facts are that the systems are unfunded and people are doing their best. It is soul destroying to read some of these posts constantly complaining about the people who I see working ridiculous hours and coping with a lot of abuse from patients. You should try walking a mile in their shoes.