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New diagnoses
lou1987smith
Member Posts: 1 Listener
Hi everyone. Well our little mans had his mri and yesterday the drs phoned to say he has PVL damage so its cerebral palsy which iv said all along. Still waiting on appointment to see th dr but im hoping now people will start to work together.
We have had to put him back food wise as he his chewing isnt breaking up the food so is chocking and he now will only eat foods he can just swallow. He has constant diarrhoea
aswell as is low muscle tone all over. Waiting on a walking frame been 4 weeks and counting
We have had to put him back food wise as he his chewing isnt breaking up the food so is chocking and he now will only eat foods he can just swallow. He has constant diarrhoea
aswell as is low muscle tone all over. Waiting on a walking frame been 4 weeks and counting
Replies
It sounds like you have had a tough time to get to this point, the community has so many members with lots of different experiences so do reach out if you have any specific questions.
Senior online community officer
Senior online community officer
How how he? I have twin boys which one has recently been diagnosed with cp.
One thing I must say is keep on nagging at the relevance people. You shouldn't have to I know but it's a world of "who shouts the loudest" when It comes to the NHS and appointments. Xx