Genetic testing for CP

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Clogheen
Clogheen Online Community Member Posts: 4 Listener
edited June 2017 in Cerebral Palsy Network
Hi my 19 month Grandson recently had a brain scan to confirm he has Cerebral Palsy, however  it was clear and now having genetic testing done,
 He can't walk or talk but has started to move around on his back plus starting to sit up, I just wondered if anyone else has been through this and did the genetic tests confirm it was CP,,,,,,,,,,we have to wait for up to two months for the results which is a long time to wait

Thanks.

Comments

  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Hi @Clogheen
    welcome to the community, I have moved your post to the Cerebral Palsy category, it might also be good for you to have a read through the Parents and Carers group.
  • Clogheen
    Clogheen Online Community Member Posts: 4 Listener
    Thank you 

  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi Clogheen.
    A very big Welcome to you I do hope that we can help you ???
    Please look through the above & let me know if I can help you further !!!
    Steve.
  • Clogheen
    Clogheen Online Community Member Posts: 4 Listener
    Thank you
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Clogheen.

    Your Very Very Welcome.
  • JadeB
    JadeB Online Community Member Posts: 62 Contributor
    I wasn't aware of any genetic tests for cp, as the condition is not genetic at all. It's caused by damage to the brain either during pregnancy, during birth or shortly after. Everyone I know has had a brain scan to diagnose theirs and see the extent of the small age and where in the brain it is. But I've never heard of generic testing since cerebral palsy is not genetic x
  • Clogheen
    Clogheen Online Community Member Posts: 4 Listener
    Hi JadeB we were told that it may show up on the genetic testing, however I feel they may be looking for something else to make a diagnoses, we will just have to wait and see what the results show,
     My Grandsons symptoms are that of CP so it's just a waiting game for us now

    Kind regards and thank you for replying

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