Myasthenia Gravis

Cupcakesforthree
Cupcakesforthree Online Community Member Posts: 13 Listener
in Rare, invisible, and undiagnosed conditions

MG is a rare condition.In layman's terms,the messages between nerve and muscle are destroyed by antibodies .The sufferer experiences severe weakness of skeletal muscles.

The symptoms can vary minute by minute and is extremely unpredictable.My greatest symptom (Today at least !) are choking on food and a closed left eye.There is no cure

Comments

  • Jimm_Alumni
    Jimm_Alumni Scope alumni Posts: 5,713 Championing

    Autoimmune disease can be quite devastating, I myself have Crohn's disease, though advances in the past decade have seen some great treatments come about. After a long hospital stay due to an internal bleed from Crohn's I was put on adalimumab which has thankfully put my Crohn's into remission for years now. I hope something similar happens for Myasthenia Gravis ❤️

  • Cupcakesforthree
    Cupcakesforthree Online Community Member Posts: 13 Listener

    Good to hear from you.

    There is no cure for me but I am "Managed"

    As you said yourself strides are being made in treatment for auto immune conditions,So,we must travel optimistically .

    Hopefully the threatened PIP cuts will affect those of us in similar situations

    I wish you well

  • lunapetunia2
    lunapetunia2 Online Community Member Posts: 7 Contributor

    Hey. I have generalised myasthenia gravis and Crohn's disease - amongst quite a few others, so I can empathise with both of you. Although we don't have cures yet, biologics for auto-immune diseases have made major advances in symptom reduction and even inducing remission. Entyvio has been a game changer for my Crohn's. New biologics are still being developed and now there are similar medications available for MG. I have not gotten to that phase yet as I am managing pretty well on other meds for it. Lately, I am having breathing trouble at times and it is so scary. I have asthma and am learning the difference but it's not always clear. Happy holidays and best wishes.

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