LCWRA abruptly stopped after short exit from the UK

noonebelieves
noonebelieves Online Community Member Posts: 402 Pioneering

I hope you’re all doing well. I’m reaching out for advice regarding ongoing issues with my Universal Credit (UC) and Limited Capability for Work and Work-Related Activity (LCWRA) entitlement.
I have worked in the NHS for 20 years in a clinical role supporting disabled individuals, paying taxes consistently. Unfortunately, due to ill health and several hospital admissions that left me with permanent disabilities, I have been unable to return to work for the past three years. My employer provided sick pay for a year, after which I went into nil pay and became dependent on Universal Credit. After a long wait and assessment, I was awarded the LCWRA component, which provided much-needed support.
However, despite informing UC three months prior to leaving the UK for my medical investigations (due to long NHS wait times)and visit my ill mother , my UC payments were abruptly stopped without warning(on return). If I had known this would happen, I would not have left the UK. I then  requested a mandatory reconsideration, attaching all evidence, including details of why I left and proof that I informed them in advance , including medical records.
Due to the account closure and loss of income, I reapplied for UC. However, my LCWRA component has not been reinstated, and my work coach has advised that I need to reapply, complete another health assessment, and wait for a decision, despite my previous award.
To make matters worse, I’ve now received a letter from DWP stating I owe £3,000, with no explanation provided why this is requested . After a long wait on the phone to DWP, I was told to raise this via my UC journal, which I have done, but I’ve yet to receive a clear response. I currently have a mandatory reconsideration (to align my benefits after account closure) and a complaint investigation pending.
I feel deprived of my entitlement and disheartened by the lack of communication , informed consent regarding significant decisions that affect my family and me. I’ve been made to feel like I’m begging for support, despite being open and honest throughout the process.
On the positive side, I continue to receive PIP, and my wife receives Carer’s Allowance and the credit element through UC, which has been a lifesaver .
My questions are:1.Has anyone experienced a similar situation?2.What steps can I take to ensure my LCWRA is reinstated without restarting the process from scratch?3.How can I challenge the £3,000 debt effectively?
I truly appreciate any advice or suggestions on how to move forward. Thank you in advance for your time and support.
Take care

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Comments

  • poppy123456
    poppy123456 Online Community Member Posts: 64,463 Championing

    You can go abroad for up to 6 months if it’s for medical treatment. However, you were also visiting your mother who was ill so I don’t know if would allow the medical treatment absence in this case.

    When you returned to the UK and reclaimed UC it should have included the LCWRA element from the start of your claim if you claimed within 6 months.

    As you were away to visit your sick mother as well as medical treatment if advise you to get expert advice from an agency near you. This link will help you find an advice agency near you. https://advicelocal.uk/welfare-benefits

    Please also note that carers element and LCWRA element can’t be paid to the same person. When the LCWRA element is eventually included the carers element will end.

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    Hi,

    Many thanks for your reply. As I mentioned, I have been very open and honest regarding the medical treatment( due to long NHS wait)and have even provided medical evidence of the treatment I received while abroad. The point I anadded in the journal message bout my ill mother was also an honest disclosure, as she lives in the same country where I sought medical treatment.

    I feel deeply hurt and undervalued, despite making clear queries and notifications through my journal before the visit- 3months prior leaving . Not a single objection or warning was mentioned regarding the abrupt closure of my Universal Credit (UC) claim until 2 months after returning back from my trip..

    I am still questioning my UC Service centre( as advised by DWP)why I have been asked to repay £3,000, as the letter provides no explanation, only stating that it is for overpayment collection.

    Thank you for the Advice Local services link; I will take a look. I am very disappointed that my Limited Capability for Work and Work-Related Activity (LCWRA) was stopped.

    Just to clarify, regarding Carer’s Allowance, my wife receives it, not me.

    Best wishes

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    Following advice from @poppy123456, I wanted to provide an update. After a significant back-and-forth on my journal regarding the closure of my UC account, and receiving email guidance from the CAB/Scope helpline, I've successfully submitted a strong appeal today (hearing pending). My appeal is based on grounds of discrimination and the unlawful deprivation of my LCWRA entitlement. I'm arguing that the DWP decision maker failed to apply the DWP's own rules and discretionary powers, specifically in relation to granting leave for essential medical investigations. Alternatively, if I was not permitted to travel, they failed to inform me prior to my trip, despite my clear notification two months in advance, including exact dates. Despite this, I was asked to repay two months of UC payments and reapply for my LCWRA award, which was also stopped upon the UC account closure. I've referenced the Equality Act 2010, particularly sections regarding disability discrimination and reasonable adjustments, as well as the DWP's own guidelines on absence rules and the need for clear communication. I've also highlighted the Parliamentary and Health Service Ombudsman's 'Principles of Good Administration,' which the DWP appears to have disregarded.

    Whether I win this or not, I feel I've had the opportunity to have my voice and concerns heard and listened to. I hope the 'Benefit and Compensation-SSCS(Social Security and Child Support) ' Independent Tribunal hearing panel will ensure a fair and just process in investigating my case and reaching an outcome. I was tempted to request a paper-based investigation as I had added corroborative evidence, but I ultimately requested a phone or video assessment because I truly wanted the opportunity to defend my voice and rights and ensure they were truly heard as a disabled person.I will keep you all updated once I receive an outcome. It also feels like I've finally gotten so much off my chest. Thanks again to @poppy123456, who gave me the advice and the local link, as I gained a lot of background information about my rights, even though I didn't contact organisations directly. I hope this helps someone going through the same issues I faced. We may look weak, but we fight hard for our rights till the end, no matter what…

    Best wishes,

    noonebelieves 🙂

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    @Danny123

    Trip was 44 days precisely, primarily for medical reasons. No objections were raised when I notified them two months prior to leaving, so I assumed it was acceptable. My UC/LCWRA was abruptly closed nearly two months after arriving back in the UK, along with an overpayment notice. I also received an updated overpayment notice for an additional £2,750 this January after the Decision Maker's outcome, which asked me to repay for June to August (two assessment periods). Hence, this appeal.

  • Passerby
    Passerby Posts: 112 Empowering

    That's the price to pay for being honest with the DWP. You should have made your trip without telling them anything about it.

  • Santosha12
    Santosha12 Online Community Member Posts: 750 Empowering

    @noonebelieves very good luck to you with your Appeal. It's a disgrace what you've had to deal with, it feels like we're dealing with a 'rogue state', that's just what came to my mind. Hopefully, they do the right thing. It really is quite shocking, it's as if they're a law unto themselves. Well done for sticking with it and very best wishes 🙂

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    @Santosha12
    Many thanks. I do not disagree with you one bit as is so true in my case.The amount of discrimination and challenges I’ve faced as a repercussion of the mandatory reconsideration process(following this trip)would make anyone’s blood boil. Apart from work, I’ve never had to appeal against anything before. I’ve always kept a low profile with the DWP—communicating only when necessary and dealing with their appalling attitudes and behaviour.
    This is the first time I’ve been in the limelight, directly naming individuals from the Jobcentre, decision makers, and the complaints manager. I have attached a lot of evidence- phone calls, journal entries, medical reports etc , painstakingly compiled over five months. I’m leaving no stone unturned and going in all guns blazing—I want to see this through to the end.
    I’m fighting this battle alone, not just for myself but for the entire disabled community. I’m grateful that an independent tribunal process exists, and I trust in it to deliver a fair and just response, upholding my/our rights as disabled people. I’ll be sure to update here once I get an answer.
    Thank you all for standing by me. I have no advocate or lawyer—just me, and me alone.
    I hold you guys in the highest regard. Thanks for standing by me😊

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    @Passerby You’re right—maybe this is the discriminatory price I pay for being honest. But I also trust that honesty will work in my favour if this goes before an independent panel (that’s my hope, anyway! 😊).

  • Santosha12
    Santosha12 Online Community Member Posts: 750 Empowering

    Well I sincerely hope you get some time to rest, I think (sadly) there's very many of us on here that have experienced the appalling and wholly undeserved treatment by the DWP. The amount of time, effort, blood, sweat and tears you've undoubtedly had to expend in the five months pulling it all together for your Appeal, cannot be underestimated and the courage and strength that all takes - and what makes my blood absolutely boil, for you and everyone who's faced anything remotely similar, is the toll is can and does take on us. When we've already got poor health to start with it is truly shameful and I could cry at the injustice of it.

    Something in your reply to me has reminded me of something - I can remember my dad having to fight such injustice years ago, I think it was called the NAB then (National Assistance Board) and he was far, far stronger than me, especially mentally (he'd been a very strong trade unionist and shop steward) he took no nonsense from anyone and fought tooth and nail to fight injustice, for himself, his family, and others. I hope I can take a leaf out of his book to be stronger mentally as I feel a determination to fight whatever cuts are coming, I don't think I'd be 'Kenny's daughter' if I didn't - be like letting the side down 🫠☺️, my dad didn't bring me up to be feint-hearted. Thank you for (unknowingly) reminding me of that and for sharing what you are doing. You have got courage, I'm working on mine. Take good care of yourself, I'm willing you complete success in this battle 🙏

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    @Santosha12

    First of all, hats off to your father—your post makes me want to give him a big salute for his perseverance and resilience. I wouldn’t say I meet his standards yet, but I aspire to.

    Having worked as a clinician for disabled people and now being disabled myself, I’ve seen both sides of the coin. I always used to tell my fellow clinicians: if you truly want to holistically treat someone, be prepared to open your heart, listen to them, believe everything they say, and never jump to conclusions.

    The same applies to the benefits system—financial well-being is a fundamental right for disabled individuals, whether during their recovery or for the long term. The DWP has a legal responsibility to support claimants, not deprive them, and health assessors should listen to both claimants and their clinicians. Unfortunately, what we are witnessing is the opposite. We are forced to fight for a basic, fundamental financial right. Many vulnerable people sadly do not survive this battle; they give up and suffer in poverty and silence.

    The DWP and so-called third-party health assessors have no real understanding of disability, nor do they follow basic etiquette when interacting with disabled people like us. Yes, my blood is still boiling. You hoped I could get some rest, and I truly want to, but I can’t. Pain and overwhelming emotions take over. My insomnia is at its worst, and I can clearly point to the trigger that caused this deterioration.

    I have to say, my courage and resilience have only grown since being on this forum and hearing firsthand about the difficulties others face. Thank you so much, @Santosha12 —I now feel even more determined to reach the heights your father has. I am sure the lioness in you is waiting to pounce at the right moment—it won’t be long. Live your life and carry the badge of honour of being “Kenny’s daughter.” Be proud of yourself 😊

    Catch up soon, and make sure to get some rest. Take care.

  • Santosha12
    Santosha12 Online Community Member Posts: 750 Empowering

    Sorry I didn't reply back I got 2 hrs sleep and just spent awhile looking for this post. I'm sorry you're suffering, insomnia is terrible I cannot think straight from tiredness now I emailed a lot of mp this morning. Was a bit War and Peace after all but definitely got my points over, not rudely though.

    I sometimes say I need to be more 'zen like' maybe I should change that to 'Ken like'. I'm pleased with what i did do today, it wasn't anonymous and I pulled no punches. Had to do it from my phone as couldn't get on pc email. I hope you get some sleep tonight it's a big day really tomorrow. Take very good care .

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    Hey @Santosha12,

    Nice to hear back from you! Please don’t be sorry—you truly deserve the rest. Looks like you’ve been on a campaign mission—keep it up! After hearing about your father, I must say I prefer the “Ken” in you over the “Zen.”

    Today has been an incredibly tiring day. I had my bloods done and got a steroid injection in my knee at the GP surgery. This was the most walking I’ve done in a while, and I had to be wheeled back from the surgery as my legs gave in.

    I’m hoping to get some sleep tonight and trust I’ll make it through okay. Take care!

  • Holly_Scope
    Holly_Scope Posts: 1,694 Scope Online Community Coordinator

    It's lovely reading how supportive you are on this post. I hope you've all had a restful sleep 💛

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    thanks @Holly_Scope 🙏🏽 I feel I have only witnessed love on this forum. Everyone needs a shout out . Yes, compared to how things have been I did get some much needed rest for a short while last night . Take care

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    “The DWP has requested that the appeal be struck out on the grounds that I have never requested Mandatory Reconsideration. The DWP states that it will treat the appeal as a request for Mandatory Reconsideration.”

    Can you believe this ? Who do you think “takes the Mickey” against Disabled people ? I can see they are trying their best to shut me down as many of the discrimination I faced following this closure decision would be exposed . I have now sent SSCS clear evidence of me sending the mandatory reconsideration request and acknowledgement of receipt via my UC journal. Let’s see what happens !
    (lesson: please keep evidences for every dealings with the DWP)

  • anisty
    anisty Online Community Member Posts: 762 Trailblazing

    Oh for goodness' sake! You must be frustrated beyond frustration!!

    I am in an MR limbo land with DWP. I did get a phone call to say successfully logged on Feb 12th. Radio silence since.

    Claim closed so no journal. Every afternoon, i put my phone in a place of full signal and await their call. But none comes! Wish i had recorded the call saying it was logged now!

    If i get a letter like yours, i will explode!

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    @anisty, Thank you !we really can’t trust the DWP or the government with anything. Always keep receipts of everything. If you send evidence via post, even if it’s free, always ask for proof of postage from the DWP.
    If you submit a UC Mandatory Reconsideration (MCR) request, keep chasing them via your UC journal until they explicitly confirm receipt. I honestly couldn’t believe my eyes when I received this letter!
    It’s beyond frustrating how they operate. If you don’t have access to a journal because your claim is closed, you could try reopening a new claim just to use the journal to push for confirmation. Does your situation allow to reopen a UC claim ?They’re the ones truly “taking the Mickey” while Liz Kendall accuses us of it! I really hope you get some written proof that they’ve received your request.

  • anisty
    anisty Online Community Member Posts: 762 Trailblazing

    @noonebelieves I am appointee for my adult son's claim. He lives at home, learning disabled and autistic, and was receiving far more benefit money than he needed.

    So i really would be reluctant to reopen his claim whilst he has so much capital. It did top 16k, which is why they closed the claim but they failed to take into account the Cost of living disregard which brought him under 16k.

    Problem is - we had 13k correctly declared but i never realised i should have been declaring every month what was unspent in his current account. Dating back to 2019!

    By my calculations, he has had a £2600 overpayment.

    So i put in my MR that his claim was closed in error and told them about the under reporting of capital.

    I hoped they would re open the claim so i could upload statements.

    But nothing at all.

    I know they aren't even working on it as they haven't got the statements.

    I sent the MR 4 times🤣

    Phone MR. 2 recorded - one to Canterbury, one to Birmingham plus one to the Freepost address.

    They do have it as i got a call 12th feb to say they did.

    Starting a new claim would be an option but ideally i just want this bill settled and never go near UC again.

  • noonebelieves
    noonebelieves Online Community Member Posts: 402 Pioneering

    @anisty ,Thank you for sharing your circumstances, and I’m so sorry you’re having to go through all of this while also caring for your son with learning disabilities and autism. That must be so hard.From my own experience, once a UC claim is closed, the DWP takes no accountability and gives it no priority. When we have an open claim, the UC journal is the best evidence for both parties -once something is on there from DWP , we can take relevant screenshots for appeals or any other proof and similarly anything we record or don’t record is used by DWP as evidence .Like you , I had the same MR issue when my UC was closed. Since I no longer had access to my journal, I sent my MR request via recorded post. When I tracked it, it showed as signed and received at the Wolverhampton site. But when I called the UC phone line to confirm, they went through all the verification checks and then outright denied receiving it. I got the usual excuses: “It might be in the pile,” “It takes time to be logged because we get so many letters,” “It’s a busy time of year.” One lady even laughed and said “You should’ve thought about all this before going abroad.” I literally went through hell, calling every day for a week, waiting hours to get through. Thankfully for my current appeal, all these long calls were recorded on my phone bill, some even charged because they went over an hour.With no income, I had no choice but to open a new UC claim & then pushed through the journal. After adding journal entries for two days, I finally got a written response from the DWP regional service centre confirming they had received it—which is now my strongest piece of evidence. Looking back, I’m so glad I pushed for that response because, otherwise, the DWP’s denial would have been taken as fact by the SSCS tribunal.What’s even more ridiculous is that a DWP decision-maker actually recorded an outcome for the same MR they claimed never to have received from me….Seriously??! I genuinely can’t believe how they get away with this amount of lying ….if it were the other way around and I denied or refused something to the DWP-UC, I’d be sanctioned immediately. It’s so clear they didn’t want my appeal to go ahead because the overpayments and all the dodgy things they did to me (which I’ve listed in detail with evidence on my HMCTS appeal portal) would come to light.I completely understand why you don’t want to reopen your claim. But can you push for a written response from UC confirming they’ve received your MR? Or maybe ask if they can send you a text? You should be entitled to written confirmation, especially since you don’t have an active journal.I don’t know much about the capital rule—I’ve only read bits from similar posts here. I’ve never had more than £300 in capital, and lately, since losing my LCWRA, I’m more in the overdraft zone. Thanks to my PIP payments, my family and I have at least avoided starving and still have a roof over our heads. But since my UC closure, my DWP overpayment debts have suddenly jumped to £5,000 and are now being deducted in instalments from my account. That’s also part of my appeal.Honestly, the DWP doesn’t seem to care about the trauma they cause disabled people with their senseless actions. I really hope you find a way to get your MR officially acknowledged.

    (Sorry for going off on a tangent… I just get so frustrated and distressed when I hear about the impact of the DWP’s actions on people’s lives.)

    Best wishes

  • anisty
    anisty Online Community Member Posts: 762 Trailblazing

    Thanks, @noonebelieves. I suppose our situation isn't as critical as yours because it's just their loss if they never deal with or acknowledge the MR. I will forget about it in time. They will never ask for the statements and never get their money back.

    My son's not eligible to re open a new claim right at this moment as he has over 16k because the COL payments would not be a disregard on a new claim.

    I expect, over time, his capital will dwindle but it'll be many, many years i think.

    He does earn about £350/month in supported employment and still gets double enhanced ADP at over £700/month.

    We take £400/month for his keep which still leaves him with far too much money to even start digging in to his capital. That is a lot of money for him as his activities are subsidised, his bus pass is free. It would soon be eaten up if he moved out of our home but that won't be happening any time soon.

    What is a bit of a problem is that his NI contributions have stopped now he's off UC. Because he is under a legal guardianship which has welfare powers only and no financial powers, he cannot pay voluntary contributions. He lacks capacity to set them up and we cannot legally do that for him without financial powers. He is only 26 just now so it isn't a major concern, just a bit of a nuisance.

    I think they will respond at some point. They did send out a UCD68 letter on 22nd Jan, asking me to explain why i had been late in reporting capital. It said at the bottom of that letter that, if no reply was received, they'd make their decision on evidence currently held.

    I did reply to that letter. If they are going to claim they never received my letter or MR, they can only calculate any overpayment on the statements already in their possession. They have 4 statements only. Capital 1st exceeded 16k in October 2024 (if they fail to apply COL) so they could ask for the return of oct, nov, dec and jan UC payments in full. Which happens to be about £2600 - the same amount as if they calculate properly back to 2019.

    Or - as the UCD68 never mentioned any overpayment as all - maybe just a £50 fine will head my way.

    It has to be one of those two options i think. And if they demand all payments back from October in full - i can challenge that with the COL disregard not having been applied.

    If it is just the £50 fine, i will pay it and assume that is the end of the matter.

    One letter was handed in to my localJC and scanned to the system so they definitely do have stuff on their system from me about this. If they want to deny it, it's their loss as they won't get the overpayment back from us.

    It would be an absolute nightmare if my son's capital was draining away but, he is in a fortunate position that, whenever they finally generate a bill, he can afford to clear it in one payment.

    It is just horrible being in limbo but as the months tick by, i expect i will forget all about it.