Mary FOF

Hello, my son started receiving DLA last June and I had no idea I had to update Universal credit, I've only just found out now as I assumed universal credit would of been made of aware of it🤦🏼‍♀️ can anyone tell me what I'm supposed to do as I'm worried they are going to think I've been untruthful when I just genuinely…

HI my name is Sebastian and my sister has a 11 years old boy with severe autistic spectrum. He has the most beatifull simile in the world. From when he was 10 he start to be super violent he punch himself in the head and bites himself and us and hits us with his head. He has no shame in doing this even in the public. Most…

My Son has been awarded dla and is being back paid to April 2024 a substantial amount of money. I will be using some of the money for what he needs and the rest putting it in a savings account in his name for when he is older. As his needs are for life. I am on universal credit will it affect me because of the amount As it…

Hi there. Just received the final statement for EHCP for my 4 year old who started main stream Primary 1 in September past. She was referred for this by nursery who noticed she was behind her peers and with further assessment from an Educational Psychologist who agreed. She has no official diagnosis but she is awaiting…

Hi everyone, My 11 year old daughter has been recently diagnosed with ADHD. She has terrible executive function deficits , started on meds . Academics ok with additional tutoring and lenient strategies at home . Pass in grammar school 11+ . Sure to struggle during transition to secondary school without supports in place .…

Hi By this time next week my autistic daughter will be without any school placement at all. Nov 2024 - annual review process started at current mainstream school and consult with specialist requested to ensure she has specialist in time for phase transition, followed by day after delay without explanation or just cause (as…

Hi all so my son is due to turn 16 in the next week and I'm dreading the transition to PIP. We dont have a lot of medical evidence I have reports from when he was at primary school with speech and language therapy and some occupational health reports and his diagnosis. Im so worried about the application process could any…

hi my sons DLA has just been renewed at the same rate, he has received DLA since he was around 5 years old, he is now 12, I was told years ago by an expert we should of done a MR as he should be receiving high rate, I sent his ehcp and a very detailed sensory 32 page report along with other info, I believe I have a month…

my son who has just turned 18 has not been out of his room for at least 6 months now. It was his birthday yesterday we had all the family round and he would not come down or even open his cards. Its so upsetting we dont know what to do who to turn to as he refuses any type of intervention. He is diagnosed adhd but has not…

My child has SEN and medical condition. We have a health care plan set up with the school which tell them what to do in an emergency. It also has contact information of his hospital. Care plan clearly states that the hospital to be contacted in an emergency only . I dropped off some emergency medication at the school…

We are currently looking at ways to adapt our house and to make it more suitable for our daughter’s needs. She is autistic, nonverbal and has GDD. We are in a 3 bedroom house where my husband and I share a bedroom, our daughters share a bedroom and our third bedroom is used as my husband’s office. When our youngest…

My Grandson is waiting for the outcome of a assessment as to if he has ADHD. I have been told we should apply for DLA but being as he has good days and more bad days, I'm not sure how to answer the questions and would like help in filling out the forms. Any help would be appreciated Kindly yours Spik

Hi can our nursery refuse accepting in their premises private specialist s taht we hired for our son? Eg speech and language therapist, occupational therapist. We need also a private educational pstchologist to visit them and assess the child on whether can attend reception next year. What can i do if they refuse accepting…

my daughter is in her second year of college and is really struggling as this is her first year doing level 3 courses. Her self harm has gone through the roof and she is becoming very distant which is not a good sign as we have been here many times before. I don’t know what to do!! She has an EHCP in place who I’ve tried…

Hi, Please help I have toddler turning 3 this October and still overwhelmed. Maybe im still on denial stage, waiting for ped consultation re:developmental stage. He has signs of autism and not talking much and was diagnosed as suspicious of autism in other country as it was too lokg to wait for NHS. This answered my…

my godson had been in college for a year, he had an EHCP, the case officer is nowhere to be seen, the college are saying they don’t have to treat children differently so they are refusing any course based on attendance which, compared to school where he ended up not attending, has been amazing and passed functional skills…

My son is now 20 and we are beginning to notice the lack of help . He goes to college this will be his third year although he didn't attend for most of the last year because he didn't get on with the course . He has had a specialist chair all the way through school and college (Bambach). As he wasn't in attendance the…

Hi I have a daughter 13 with SEN and 3 yrs into trying and failing to I get a diagnosis for Autism and other things. She’s refused school on and off since primary and now in her 3rd year at high school, has not attended for a year and a half leading to the decision to start home schooling as of now. No idea what I’m doing…

Hi I'm lucky enough 2 have a son & daughter (13yrs age gap) my son is miracle I never thought I'd have as lost my first daugher at birth then years if I've for my daughter. When Dr who had told me I was pre menopause suggested hospital. I remember this day with huge fondness as thought my cervical cancer was back but my…

my parter works and I have a 1 (will be 2 at the end of the year) old and I’m desperate to get back to work. I can’t afford childcare and both our parents work.. we claim UC and they said that they would cover up to 85% of childcare costs if I was to go back to work.. at the moment I’m only getting around £20-£40 from UC…

Hi, my young person is on roll at a Specialist Post 16 college with an EHCP. We are looking at Electively Home Educating her. I know that if a child is on roll at a specialist placement then the LA have to give permission. But what if, as is my daughter's case, the young person is over 16 i.e. not of compulsory school age…

HHi I'm writing to behalf ofy son, he has dinosaurs autism, learning difficult and anxiety, eye problems, so he has received DLA until 16 year old ,now my son 17 year old and I did applied PIP, The PIP diction was refused his clam after I did reconditioning to his clams, aging same diction was Now I trying to appeal I…

hi everyone I have a 13 year old son who maybe autistic. he hardly leaves the house and doesn't attend school I'm worried about him. he does have friends on line but that's all

Hi I was wondering if I could get some advice about childcare I have a 3 year old and both myself and my partner receive benefits universal Credit and limited capability for work and work related activity for my partner as he has health problems I care for my partner every day and I suffer with my mental health I wanted to…

housing for families with disabled children. We have 10 year old daughter with disability and receive the higher rate of DLA. We have a property up north which is on rent and looking go sell however we still won’t have enough to buy a house down south and we desperately need a house so we can get it adapted for my…

I’m a carer to a 8 year old child who has autism and is at best pre verbal. Four years ago Lincolnshire council instead of getting us a place in the send school in his town sent him to one 45 minutes away. That’s how it’s been for four years and tbh school change would be huge now so I have to stomach it. Over the years…

Hi all. My son is 12 and autistic. He had 1:1 support in mainstream primary, then had a benign brain tumour 2 years ago that has left additional processing difficulties and as you can imagine, really took a toll on his physical and mental health and wellbeing. He's been amazing and I'm incredibly proud of him. I don't know…

hi everyone, I’m really struggling through the summer holidays. I have 3 children, one has complex special needs and one is awaiting an autism assessment. I feel completely worn down and exhausted. Family and friends just don’t understand

My 2 year old has recently been diagnosed with mild CP. It causes her left arm and leg to be stiff but she can use them both. She has OT assessment tomorrow and physio assessment on Tuesday. She was born at 24 weeks and had 3 surgeries so far, so she’s already been through so much. Can anyone give me a sense of what’s to…