-
UK-based parents and caregivers of children with scoliosis needed!
Hi everyone! I'm a psychology student at the University of Bath researching something that often gets overlooked: how caring for a child with scoliosis affects parents and caregivers. While medical care rightly focuses on the child, I working to understand the caregiver experience too - how you perceive your child's…
-
Growing Up with Cerebral Palsy: One Adult's Perspective
By Aideen Blackborough, Online event, March 10 from 7:30 pm to 9 pm GMT Overview A supportive evening for parents, offering an adult perspective on cerebral palsy, childhood, and what the long view can look like. If you’re parenting a child with cerebral palsy, it’s natural to have questions about what the future might…
-
Project for parents with learning disabilities!
Hello! My name is Robyn, and I am running a project with parents who have a learning disability. The project is about a questionnaire for people who are having a baby. The questionnaire helps people say how confident they feel about becoming a parent. You would meet with me, complete the questionnaire and then answer some…
-
RIghts & CHoices to maternity care for women with cerebral palsy video
This video was made by Dr Sonali Shah with the support of Scope, CPAAUK and ScienceExplained. It is part of a NIHR funded project to explore access and utilization to maternity care for women with CP. It is informed by interviews with women with CP talking about barriers and facilitators experienced during pregnancy,…
-
Parents, carers & teachers - your thoughts on children's adaptive fashion?
If you are a parent, carer, teacher or work with children (aged 7-16) with a disability I would love to hear your experiences, insights and wants/needs with children's adaptive fashion. I am doing my University dissertation on the need for more adaptive fashion for children on the UK high street. I want to bring attention…
-
Inclusivepe_and_me
Hey everyone. Just wanted to share my Instagram and TikTok page that focuses heavily on PE, inclusion and adaption, giving strategies to help those that need it. I’m aiming to write a book on this, as well as create video content that shows exercises with adaptions so that ANYONE can have access to. Give my page a check…
-
What my disability taught me about parenting
What's it like navigating the world as a disabled parent? Datshiane Navanayagam speaks to two women from the US and Italy about the reality of parenting with a disability and about why it’s important to reconsider some of the common misconceptions that exist within society around the kind of life that disabled mothers can…
-
✍️Carers Rights Day - Information for Parents & Carers of Disabled Children✍️
Today is Carers Rights Day and this years theme is "Know your rights, use your rights." For parents and carers of disabled children, knowing your rights and how to use them is so important to make sure that you and your child are getting as much support as possible. Your Right to an Assessment One of the most important…
-
❌Anti Bullying Week – Information and Support for Parents and Carers of Disabled Children❌
We are in the middle of Anti-Bullying Week and this years theme is “Power for Good” which a is a powerful reminder that we all have the ability to make a positive difference. Supporting a disabled child who is experiencing bullying can be particularly challenging, but you are not alone. I hope this post provides support,…
-
Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
-
An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
-
Research Opportunity - Parents of adult children with an Intellectual Disability
Hello everyone My name is Stephanie Bremner and I am a Trainee Clinical Psychologist studying at the University of Oxford. I am currently completing research exploring factors which may impact the quality of life for parents of adult children with Intellectual Disability (Learning Disability). Can you help? Name of study…
-
✍️Asking My Child's School For a Meeting & Tips For a Productive Meeting -Back To School Challenges✍
Part One - An Introduction to Back to School Challenges Part Two - Why Is My Child Struggling Going Back To School? Part Three - How Can I Help My Child Settle Into School? As a parent of a disabled child, you are their best advocate. When you have concerns about your child's school experience, effective communication with…
-
I worried about being a mom with a disability. Now, I've embraced it — all with one hand
From CBC by Kiaira Fedorus Finding out I was pregnant was one of the few times I doubted my ability to overcome and adapt. This First Person column is the experience of Kiaira Fedorus, who lives in Grande Prairie, Alta. For more information about CBC's First Person stories, please see the FAQ. Time stood still while I sat…
-
🤔Why Is My Child Struggling Going Back To School? - Back To School Challenges🤔
Part One - An Introduction to Back to School Challenges Part Three - How Can I Help My Child Settle Into School? Part Four - How To Ask For A Meeting With My Childs School and Have a Productive Meeting? It’s been a few weeks since school started but if your child is still struggling to settle in, feeling anxious or having…
-
🔔Back to School Challenges - An Introduction for Parents & Carers of Disabled Children🔔
Part Two - How To Find Why My Child Struggling with Going Back to School Part Three - How Can I Help My Child Settle Into School? Part Four - How To Ask For A Meeting With My Childs School and Have a Productive Meeting? Now that we're around two weeks into the new school term after the summer holidays, I wanted to create a…
-
Parents of Autistic Children: We Want to Hear From You!
Hello! We are doing an IRB-approved online research study to learn how parents of autistic children feel about common autism therapies. Who can join? Parents or caregivers of children ages 4–11 with a formal autism diagnosis. What will you do? Fill out short surveys about you, your child, and your parenting style. Read…
-
Universal credit carer and pregnant
Hi wondering if anyone has any help or advice. Me and my partner claim UC he is disabled (LCWRA) and I am his carer and claim carers allowance and not in employment. We also have 2 children. Im currently pregnant and experiencing in December. I’m confused when I inform UC as me being pregnant doesn’t add anything as I’m…
-
Dad with cerebral palsy shares parenting hacks
From BBC News Vic Minett BBC Radio CWR. Tanya Gupta BBC News, West Midlands A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share "laughs, hacks and life". Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos…
-
👕Sensory Friendly and Accessible School Uniforms - Summer Holiday Support Series👕
Part One - Summer Holiday Support Series Introduction Part Two - Accessible Days Out for Parents and & Carers of Disabled Children Part Three - Keep Routine At Home in the Summer Holidays Part Five - Parent & Carer Wellbeing and Mental Health in the School Holidays Part Six - Emotionally Preparing Your Child To Go Back To…
-
Help Amplifying nuerodivergent voices in autism interventions
Hello! I am Joe Pasquariello, a Neurodiversity-affirming PhD student at the University of South Alabama. I am conducting an IRB-Approved online study on parents of autistic children's perceptions and acceptability on common autism interventions. While we want to hear from all caregivers, it is crucial that we hear from…
-
💫🤩What Has Your Child Taught You? - Disability Pride Month🤩💫
Part One - Disability Pride Month For Parents & Carers of Disabled Children As we’re in Disability Pride Month, I thought it would be a good time to shine a light on the children of the wonderful parents and carers here in the community! As parents and carers of disabled children you all do so much such as advocating,…
-
Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
-
😄✨Disability Pride Month For Parents & Carers of Disabled Children ✨😄
Part Two - What Has Your Child Taught You? Disability Pride Month is a time to celebrate disabled people, identities, and communities. For parents of disabled children, it can also be a time to reflect on how far you’ve come, what you’ve learned and what disability pride means to you and your family! For many parents, it…
-
HERTFORDSHIRE PARENTS/CARERS
Cathy Reay, author of the children's book 'How to be Disabled and Proud (or at least kinda sorta okay with it...)' will be giving a talk at WGC Library later this month. This evening event is aimed at parents and carers to help support and advocate for their children. Thursday 26th June 7.00pm Welwyn Garden City Central…
-
Advice about housing benefit
Hello, I’m new here and looking for some advice. My son has Asperger’s syndrome and currently lives with us (his parents) and I am his full time carer. He is 30 years old and would like to live out of the family home into his own place and gain some independence which is understandable given his age and seeing his friends…
-
TheAlienGame - A Study of Emotion Recognition in Children
Hello, My name is Will Turton, and I am a Trainee Clinical Psychologist at the University of East London. As part of my doctoral research, I am running a study designed to explore and improve how we assess emotion recognition in neurodivergent children, aged 8–11. The project is called ‘The Alien Game: A New Game for…
-
Hi, my name is EdmundsonJo! How do I get hold of a P60u for my son's student finance loan?
HHi Everyone,I need to get hold of a P60U for my sons student finance loan snd I'm not getting snow here fast,student finance want evidence of my taxable benefits year24-25. All I received in that year was statuary sick pay for 28 weeks. Job centre plus say thus is not a taxable benefit (after 9 hours of being on hold in 3…
-
British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
-
Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
