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Autism in young girls question
Hi there, I am gathering some research for a children's picture book following a little girl who is on the Autism spectrum who loses her favourite wellies that she wears all day, every day. When she discovers they are missing, it is put to her that she may have to wear some different shoes, which creates a very stressful…
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Protecting the Past for the Future
Visiting the Wellcome Collection in London on behalf of Scope was a real privilege. I was there to support Dr Vicky Long with the important task of categorising years’ worth of Scope documents for a potential exhibition called Rights of the Disabled Child. It was one of those moments where history, activism, disability…
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10 month old -, seeking advice on early intervention & intensive therapy
Hi everyone, I’m a first-time poster and honestly don’t quite know where to start. Our daughter is 10 months old. From quite early on I noticed some things that concerned me — a very sensitive Moro reflex and very clenched fists — but I hoped she’d catch up. It wasn’t until 6 months that we were referred to paediatrics.…
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Want to join the conversation about ageing?
Registration of Interest to Participate – Fill in form We need to hear your voices to ensure this research speaks for all members of society. If you would like to know more, please have a look at the information sheet.
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Hi, my name is CoastDad! Sharing experiences and learning from others
I'm a parent of two teenage boys, both navigating SEND needs, including autism and related medical challenges. A big part of my life at the moment is supporting them through education, EHCP processes, and the transition into post-16 life, including college and future opportunities. Alongside that, I’m also on my own…
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Mess Up the Mess Theatre Company in South Wales. Join our winter production.
Be part of a bold, creative, reimagining of a Christmas classic. Welsh playwright Ciaran Fitzgerald is very privileged to be writing a show for The Rising Stars Theatre Company and Mess Up The Mess Theatre Company this Christmas. We’re looking for more young people to get involved, and are especially interested in hearing…
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We want to talk to parents!
Are you pregnant or do you have a little one under 3? Do you have a learning disability? We would like to talk to you! Take part in an interview about a NEW questionnaire made for people with a learning disability Tell us what you think Get a £20 voucher to say "thank you!"
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Mom with cerebral palsy shares what motherhood is really like
Source from People Story by Jordan Greene Aundi Grace, who has cerebral palsy, adapts daily tasks like feeding and holding her baby to parent safely. Aundi Grace, who has cerebral palsy, adapts daily tasks like feeding and holding her baby to help her parent safely She uses tools like a rolling bassinet to maintain…
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SEND Parents Help - Free AI Tool (England only)
A parent of a child with autism has decided to create a free AI tool to help parents in England navigate things like DLA, EHCPs, Blue Badges and school support. "I built it after my daughter was diagnosed with autism. I tried using ChatGPT but found it confidently wrong on things like DLA criteria and EHCP processes - so I…
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Looking for other mums for support
I have a son called Finlay who is two and has global developmental delay. I am thinking that he may be autistic but we wouldn’t know until he’s older about that. He stims a lot, he cannot speak or walk yet but bum shuffles everywhere to get himself about. He’s very funny and babbles all the time, he says mama and dada and…
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My son can barely walk but officials say he must attend mainstream school
Ami Phillips said it has been a 'constant battle' to try to get her son the support he needs My son has cerebral palsy and I'm fighting for his education (Wales Online)
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Interview with Pat Herring: Five Decades of Advocacy and Community
Cerebral Palsy Awareness Month is also a time to recognise the supporters and advocates who stand alongside the CP community. I recently had the privilege of spending time with Pat Herring — an advocate, campaigner, parent of an adult living with CP, and long-standing member of the CP Network who has been involved with…
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SEND Research opportunity with the Council for Disabled Children
University researchers and the Council for Disabled Children are running a UK-wide survey about how health, education and social care services are provided for disabled children and young people. We are interested to discover and what a high-quality service might look like. This is part of a programme of research funded by…
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UK-based parents and caregivers of children with scoliosis needed!
Hi everyone! I'm a psychology student at the University of Bath researching something that often gets overlooked: how caring for a child with scoliosis affects parents and caregivers. While medical care rightly focuses on the child, I working to understand the caregiver experience too - how you perceive your child's…
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Co-parenting with disabilities - at a wits end with trying to get support.
Hi everyone. I am CeeJae and I live in Somerset UK and my son lives in Devon with his dad full time and I have him twice a month overnight. Bit of background about me: I have epilepsy (that is stopping me from driving currently), arthritis, fibromyalgia, autism, and healing from trauma, including postpartum psychosis. My…
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Growing Up with Cerebral Palsy: One Adult's Perspective
By Aideen Blackborough, Online event, March 10 from 7:30 pm to 9 pm GMT Overview A supportive evening for parents, offering an adult perspective on cerebral palsy, childhood, and what the long view can look like. If you’re parenting a child with cerebral palsy, it’s natural to have questions about what the future might…
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Project for parents with learning disabilities!
Hello! My name is Robyn, and I am running a project with parents who have a learning disability. The project is about a questionnaire for people who are having a baby. The questionnaire helps people say how confident they feel about becoming a parent. You would meet with me, complete the questionnaire and then answer some…
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RIghts & CHoices to maternity care for women with cerebral palsy video
This video was made by Dr Sonali Shah with the support of Scope, CPAAUK and ScienceExplained. It is part of a NIHR funded project to explore access and utilization to maternity care for women with CP. It is informed by interviews with women with CP talking about barriers and facilitators experienced during pregnancy,…
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Parents, carers & teachers - your thoughts on children's adaptive fashion?
If you are a parent, carer, teacher or work with children (aged 7-16) with a disability I would love to hear your experiences, insights and wants/needs with children's adaptive fashion. I am doing my University dissertation on the need for more adaptive fashion for children on the UK high street. I want to bring attention…
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Inclusivepe_and_me
Hey everyone. Just wanted to share my Instagram and TikTok page that focuses heavily on PE, inclusion and adaption, giving strategies to help those that need it. I’m aiming to write a book on this, as well as create video content that shows exercises with adaptions so that ANYONE can have access to. Give my page a check…
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What my disability taught me about parenting
What's it like navigating the world as a disabled parent? Datshiane Navanayagam speaks to two women from the US and Italy about the reality of parenting with a disability and about why it’s important to reconsider some of the common misconceptions that exist within society around the kind of life that disabled mothers can…
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✍️Carers Rights Day - Information for Parents & Carers of Disabled Children✍️
Today is Carers Rights Day and this years theme is "Know your rights, use your rights." For parents and carers of disabled children, knowing your rights and how to use them is so important to make sure that you and your child are getting as much support as possible. Your Right to an Assessment One of the most important…
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❌Anti Bullying Week – Information and Support for Parents and Carers of Disabled Children❌
We are in the middle of Anti-Bullying Week and this years theme is “Power for Good” which a is a powerful reminder that we all have the ability to make a positive difference. Supporting a disabled child who is experiencing bullying can be particularly challenging, but you are not alone. I hope this post provides support,…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Research Opportunity - Parents of adult children with an Intellectual Disability
Hello everyone My name is Stephanie Bremner and I am a Trainee Clinical Psychologist studying at the University of Oxford. I am currently completing research exploring factors which may impact the quality of life for parents of adult children with Intellectual Disability (Learning Disability). Can you help? Name of study…
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✍️Asking My Child's School For a Meeting & Tips For a Productive Meeting -Back To School Challenges✍
Part One - An Introduction to Back to School Challenges Part Two - Why Is My Child Struggling Going Back To School? Part Three - How Can I Help My Child Settle Into School? As a parent of a disabled child, you are their best advocate. When you have concerns about your child's school experience, effective communication with…
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I worried about being a mom with a disability. Now, I've embraced it — all with one hand
From CBC by Kiaira Fedorus Finding out I was pregnant was one of the few times I doubted my ability to overcome and adapt. This First Person column is the experience of Kiaira Fedorus, who lives in Grande Prairie, Alta. For more information about CBC's First Person stories, please see the FAQ. Time stood still while I sat…
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🤔Why Is My Child Struggling Going Back To School? - Back To School Challenges🤔
Part One - An Introduction to Back to School Challenges Part Three - How Can I Help My Child Settle Into School? Part Four - How To Ask For A Meeting With My Childs School and Have a Productive Meeting? It’s been a few weeks since school started but if your child is still struggling to settle in, feeling anxious or having…
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🔔Back to School Challenges - An Introduction for Parents & Carers of Disabled Children🔔
Part Two - How To Find Why My Child Struggling with Going Back to School Part Three - How Can I Help My Child Settle Into School? Part Four - How To Ask For A Meeting With My Childs School and Have a Productive Meeting? Now that we're around two weeks into the new school term after the summer holidays, I wanted to create a…
