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International Epilepsy Day - Support and Signposting for Parents and Carers
As we wrap up our focus on epilepsy this week, I want to provide resources and support for parents of children with epilepsy. This post offers signposting to organizations that can offer further support, information and advice. Epilepsy Action Epilepsy Action provides information, advice and support to people with epilepsy…
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International Epilepsy Day - Reflecting on Childhood Experiences with Sara
As part of International Epilepsy Day, this is a conversation with @SaraC_Scope who was diagnosed with epilepsy as a very young child. This interview talks about her childhood experiences, explores the impact of the condition and highlights the positive and supportive role her parents played. We hope this is a helpful read…
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International Epilepsy Day - What Questions Do You Have? (For Parents & Carers)
It is International Epilepsy Day today and this is a worldwide event dedicated to raising awareness and understanding about epilepsy. It is a little bit different from the well known Purple day as International Epilepsy Day is a collaboration from the International League Against Epilepsy and the International Bureau for…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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Housing assessment at my parent's home
I became disabled in 2019 and as I have a progressive bone disease, things have got to the point where my mobility is really affected. I use a wheelchair when I'm out but can just about manage without one at my parent's house. I was living in my own home but moved back in with my parents a few months back. The home is…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
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Room for husband
Hi, in a 3 bedroom, got son at home and daughter with her 7 mnth old baby, im in 3rd room and husband sleeps downstairs ( has done for 2 years) im his carer hes recently been diagnosed with young onset dementia along with alot of other health issues , barely sleeps throught the night which has me up and down, ( went down…
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Hi, I'm AuDHD. I have a question about leaving my parents' home
Hi everyone. I currently live with my parents, who are elderly (I'm 45). Mum has a lot of serious health conditions that are getting worse (she gets AA and blue badge). Dad recently had a heart issue that required surgery and a pacemaker. I'm autistic, and have all the other neurodivergent things like ADHD and Dyslexia…
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Housing Advice
Hi, I’m 23 years old with no children or partner and have mental health issues depression and anxiety as well as dyslexia and I’m awaiting an assessment for autism and adhd. I’m currently in temporary accommodation. I came to the council on May 22nd 2024 and explained to them why I was now homeless and why I left my family…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Confusion with constant attendance allowance
my father currently receives industrial injuries benefit and attendance allowance at the higher rate as he has done for a few years, but now I see there is something called constant attendance allowance that is claimable if you are receiving industrial injuries benefit. Does anyone know about it? And how he would go about…
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Not returning to work after maternity has ended
Morning all, looking for some advice please as I can’t get a straight answer from UC. I was working up until I went on maternity leave, I’m due back at the end of this month but I’m having trouble finding a nursery who can take my baby at short notice, plus I’m really not keen on leaving her to return to work just yet, I’d…
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Advice needed
Hi everyone I am a mum of 4. I have a son of 17 who is autistic and 5 year old twin girls who are also autistic. Twin one is diagnosed and twin 2 is on the waiting list. I was looking for advice. I live with my partner who works but unfortunately I have just had to give up work due to the girls having lots of difficulties…
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Single parent with illness. Hard times.
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Hi, my name is FionaG! eosinophilic esophagitis condition
I’m new here and looking for support from other parents,my child has a rare condition and we’re finding life challenging at the moment.
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Research participants needed: Yoga to support children/young people with physical health conditions
Hi there, I am a trainee Clinical Psychologist at the University of Exeter and I am researching the use of yoga to support the mental wellbeing of children/young people with physical health difficulties. I am looking to interview children/young people and/or their parents/carers about their experiences of yoga. They only…
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Universal credit help
So bit of a tricky one… my grandfather & grandmother passed away leaving their house to my father. However, he hadn’t realised that this would impact his universal credit. The plan was always that the deeds would go straight to my sister and not be in his name anyway, but the wills did not reflect this. The property is…
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Help advice on UC/LWCRA/ADP and moving in with a partner
Hi there, I was wondering if anyone could please help me with information. I am currently on a single-person UC getting £357 a month after deductions living with my mum. I also receive the Scottish Adult disability payment of £434.20 a month. I have just been awarded LCWRA and I have just been offered a part time job of…
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Adoption application
My wife and I are beginning to look into adoption, but I’m feeling anxious that my disability might affect our chances. I have hEDS, POTS, and IIH, and I’m an ambulatory wheelchair user. We’re planning to go through our local authority (Southwest), and I’d love to connect with anyone who has been through this process as a…
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Connecting the dots in an infant’s early development
REGISTER FOR THE WEBINAR Connecting the dots in an infant’s early development - Cerebral Palsy Scotland This webinar will provide Health Visitors and parents with practical ideas to support your baby’s development and milestone achievements. We will discuss strategies to support ongoing gross motor skill progression and…
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RAISING THE SEN-BETWEENERS
I’m Lisa Lloyd, (also known as ASD with a G&T across social media), co-founder of SEND Reform England and a passionate advocate for hidden disabilities. I’m writing to share news of my upcoming book, Raising the SEN-Betweeners, launching on 11th October which is an honest, unfiltered account of raising my two autistic…
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Hi, my name is jon1108! Son with Duchenne struggling to keep up with friends
Hi, I am a dad to a wonderful son of 8 with Duchenne. He is getting really upset that he can't keep up with his friends at school, which is heartbreaking and I am struggling with how to support him. Thanks
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Spotlight On Rainy Days
The summer weather does not seem to want to stay! So we’ve been thinking about rainy day activities for our children (and us!) Many indoor activities can be adapted for disabled children and adults. Need to burn energy? Have a kitchen dance party. Enjoy making things? Cornflour, water and food colouring mixed together…
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Shouting in the garden at 2,3 or 5am
Hi just a quick query about what to do. My daughter who lives at home, is starting last year at uni. She also suffers from Epilepsy and POTS. To keep her epilepsy and pots controlled, she needs to get a good amount of rest and undisturbed sleep. As well, she must not overheat. Her window therefore, needs to be open. A…
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Grants for Soundproofing and Padding Rooms
Hi there, My names is Atlanta and im an OT working in housing. i have a case where a child due to ADS on other challenging behaviors is causing harm to themselves and causing significant noise issues for neighbors due to "headbanging", is any one aware of any grants or funding available out there that may be helpful.…