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Hi, my name is EdmundsonJo! How do I get hold of a P60u for my son's student finance loan?
HHi Everyone,I need to get hold of a P60U for my sons student finance loan snd I'm not getting snow here fast,student finance want evidence of my taxable benefits year24-25. All I received in that year was statuary sick pay for 28 weeks. Job centre plus say thus is not a taxable benefit (after 9 hours of being on hold in 3…
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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HERTFORDSHIRE PARENTS/CARERS
Cathy Reay, author of the children's book 'How to be Disabled and Proud (or at least kinda sorta okay with it...)' will be giving a talk at WGC Library later this month. This evening event is aimed at parents and carers to help support and advocate for their children. Thursday 26th June 7.00pm Welwyn Garden City Central…
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Talking and thinking about disability in education
Talking and thinking about disability in education Who is this for: Parents and carers of children aged 17 years and younger, who would like to share their views. What is it: A study about your perceptions of the way that disability is talked about in schools. How can I share my views: A short, online questionnaire. Please…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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Leaving college
My daughter is 18 on her final year of college finishing her last exam in June this year. when do I notify UC / Child benefit ?
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Scottish child payments have stopped?
Hello all Hoping someone can help with this. We normally get Scottish Child Payments for our children and have been since they started. We migrated over to UC after the migration letter last year after being on Child Tax Credits. My children are under 16 We also get Scottish Child Disability Payments for them. But out of…
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Life Reimagined 1 Week To Go!
Our new webinar series Life Reimagined starts next Wednesday, 21st May. If you’d like to grab one of the last remaining places, you can register for free below. Life Reimagined is a new four-part series for parents of children with special or additional needs. Julian Fraser and Angelina Hynes will share their lived…
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Hello
Hi everyone, I'm a parent of a teenager with disability.I'm glad to find this community , hope I can give some contributions and also receive some support. Thanks
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Life Reimagined
Life Reimagined with Almond Tree Foundation Registration Dates: Wednesday, 21st & 28th May, 4th & 11th June 2025 Time: 7pm UK / 2pm ET / 11am PT, (click for your local time) Attendance is limited to 40 participants. To gain the full benefit, we recommend attending all four sessions live. To sign up, please Click…
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Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Barriers to accessing education-Free wellbeing session for parents of disabled children
FREE for Families in Wales Barriers to Accessing Education Is your child struggling to attend, or maintain attendance in school? Join our drop-in session for parents; a relaxed and supportive space where you can seek advice, speak to others, or simply listen. What’s It About? • Guidance and Advice: Get practical tips on…
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World Autism Acceptance Month - Pathological Demand Avoidance (PDA)
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Three - World Autism Awareness Month - Autism and Girls Pathological Demand Avoidance(PDA or sometimes known as Persistent Drive for Autonomy) is a…
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Disposable swim pants
Hello, I am struggling to find any disposable swim pants to fit my 3 year autistic and non verbal son. He weighs 21kg and in 5-6 year clothes (hes very tall) and I can not seem to find any at all. Are they even a thing to fit this size/weight? Has someone been lucky enough to find any? Any help or pointers in the right…
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Struggling
Hello all, I'm not surebif anyone can offer any advice or information about my current struggles or.not, but at this point, I don't know what else to do or where to turn. I was diagnosed with Fibromyalgia in 2018 after over 20 years of dealing with pain and other symptoms which all declined year after year, I also have…
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World Autism Acceptance Month - Autism and Girls
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Four - World Autism Acceptance Month - Pathological Demand Avoidance (PDA) For a long time, autism was seen as something that mostly affected boys and…
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World Autism Acceptance Month - Practical Strategies for Parents and Carers
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Three - World Autism Acceptance Month - Autism and Girls Every autistic child is unique and what works for one may not work for another. But, I hope these practical strategies may be helpful for your child and offer some guidance along the…
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Looking to Move to another city
Hi Everyone, it's nice to be part of a community here. I am a father of a 5 year old boy who has ASD and ADHD. We moved to Birmingham from London in 2023 due to economic reasons but shortly afterwards my son was diagnosed with these conditions, now I am finding really hard to get any support from the LA as the council is…
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Tax free/funded hours childcare
am i entitled to funded hours for Nursey if I am being paid carers allowance
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Sibling Day🤗
Happy Sibling Day!! Children often understand more than we think and siblings of disabled children are no different! They may experience a wide range of feelings—pride, love, frustration and sometimes confusion. Siblings of disabled children have a unique perspective on family life and their role is often overlooked in…
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Help I'm not coping as a step parent
My partners 28 year old son has learning disabilities, autism, ADHD and severe anxiety issues. I get the blame for him not coming out his room. I'll admit I get very annoyed, angry by how little he does in his room never mind around the house. He texts and sends my partner constant message every day, can't even go to Asda…
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Caring for a son with paranoid schizophrenia while struggling with my own mental health
Hi everyone,i felt i must join a forum like this as i found it was full of people experiencing the same struggles and problems as myself.I find it extremely difficult to know where to start but it all begins with my son who has paranoid schizophrenia but has tried to kill me a few times and has physically attacked me…
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Life Reimagined is a free 4-part wellbeing series for parents of children with additional needs
Life Remagined | Almond Tree The Almond Tree Foundation About the Series Life Reimagined is a free 4-part wellbeing series for parents of children with special or additional needs. In this series, we’ll explore what becomes possible when we look beyond the daily demands of parenting and reconnect with the wellbeing,…
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Joint bank account
Following a tricky week helping my elderly parent with a scam situation, she has asked me to be a joint account bank holder with her, so that i can support her and call bank etc. i have tried to find information on this and if her having a joint account will affect her benefits. I myself will continue with my own bank for…
