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Joint bank account
Following a tricky week helping my elderly parent with a scam situation, she has asked me to be a joint account bank holder with her, so that i can support her and call bank etc. i have tried to find information on this and if her having a joint account will affect her benefits. I myself will continue with my own bank for…
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Caring for a son with paranoid schizophrenia while struggling with my own mental health
Hi everyone,i felt i must join a forum like this as i found it was full of people experiencing the same struggles and problems as myself.I find it extremely difficult to know where to start but it all begins with my son who has paranoid schizophrenia but has tried to kill me a few times and has physically attacked me…
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Disability Price Tag - Changing from DLA to PIP at 16 - For Parents and Carers
As we're focusing on the disability price tag of raising a disabled child this week, this post talks about the transition from Disability Living Allowance (DLA) to Personal Independence Payment (PIP). I know this change can be quite overwhelming for many parents so I've created this post to hopefully make the process a…
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Reassurance
Well yesterday my daughter aged 22 broke down with chronic anxiety about the benefit cuts although she has a few health conditions including autism she was refused pip a couple of years ago and took it to heart saying they think I am lying so refused to go through the process anymore she is doing her modern history masters…
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Leaving college
My daughter is 18 on her final year of college finishing her last exam in June this year. when do I notify UC / Child benefit ?
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University of Birmingham - Sibling Sleep Study
Do you live in the UK or Ireland and interested in taking part in a new sibling sleep study? The University of Birmingham is conducting an at-home sleep assessment for children with an intellectual disability and their same-household siblings. Children aged 4-15 with an intellectual disability and health needs, along with…
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Ensuring youth voice is at the heart of reforms to the Special Educational Needs
The Children's Commissioner’s Office recently met with the new SEND Youth Panel—11 young people with lived experience—to ensure their voices shape ongoing reforms. They spoke with education leaders and the Department for Education about key issues, including better collaboration between schools and families, earlier…
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Discover Kidz to Adultz Middle!
Discover Kidz to Adultz Middle! Adapt & Live will be attending Kidz Middle in Coventry on Thursday, 13th March 2025. Aurndra Marshall-Clarke, one of our Occupational Therapist's, will be delivering a session on sling selection. This session will cover all the factors that should be considered when prescribing a sling for a…
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International Women's Day - Celebrating Disabled Mothers and Mothers of Disabled Children
Part 2 - Navigating Motherhood With A Disability with Sarah Part 3 - Challenging Attitudes Towards Mothers of Disabled Children with Jenna It is International Womens Day this Saturday and so in the leadup to that, this weeks focus is going to be on celebrating disabled mothers and mothers of disabled children. Motherhood…
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Parent Survey - Talking and Thinking About Disability in Education
This sounds like a great opportunity for parents and carers to get involved in😀
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International Womens Day - Navigating Motherhood With A Disability with Sarah
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Three - Challenging Attitudes Towards Mothers of Disabled Children with Jenna As part of celebrating International Womens Day on the community this week, this is an interview with Sarah who is a Child and Family Specialist on Scope Helpline This…
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International Womens Day - Challenging Attitudes Towards Mothers of Disabled Children with Jenna
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Two - Navigating Motherhood With A Disability with Sarah For our final part of our week long celebration of International Womens Day, this is an interview with Jenna who is a mother to 2 disabled children. We hope this will help shine light on…
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What Do Parents/Carers/Families Want To See From The Community?
I am interested in what parents/carers of disabled children and their families want to see from the family side of the online community. This will let me know what content to create and how I can be most helpful for you and your family! Please vote in the poll or comment below what you would like to see on here from me or…
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Using respiratory support (CPAP, non-invasive ventilation/NIV or similar).....
Are you a parent of a child (with cerebral palsy) who uses (has used) breathing support (like CPAP or similar devices) at home when asleep? Or has tried to use such breathing support? If so, then we would like to hear about your journey! Sleep, and breathing issues in sleep (i.e. sleep apnoea) can be really challenging for…
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Eating Disorder Awareness Week- Types and Signs of Eating Disorders in Disabled Children
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Three As part of this weeks focus being Eating Disorder Awareness week, this post will look at some of the types of eating disorders, their traits and how to recognize signs of eating disorders in disabled children. Types of Eating Disorders…
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Eating Disorder Awareness Week - What To Do If I Am Concerned About My Childs Eating Behaviour?
Eating Disorder Awareness Week - Part One Eating Disorder Awareness Week - Part Two As we wrap up this weeks focus, this post is about the steps you can take if you feel like your child has an eating disorder or if you are concerned by your childs eating behaviours. This post also includes where you can find for additional…
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Hi, I'm AuDHD. I have a question about leaving my parents' home
Hi everyone. I currently live with my parents, who are elderly (I'm 45). Mum has a lot of serious health conditions that are getting worse (she gets AA and blue badge). Dad recently had a heart issue that required surgery and a pacemaker. I'm autistic, and have all the other neurodivergent things like ADHD and Dyslexia…
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Disability Price Tag - Tips and Guidance for Applying for DLA - Parents and Carers
This weeks focus is the disability price tag of raising a disabled child so I am going to talk about the different benefits you might be able to claim as a parent. To help you get started, I've already put together DLA Information for Parents and Carers and todays post is a follow-up to that. I hope it makes the DLA…
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Eating Disorder Awareness Week - Introduction For Parents and Carers
Eating Disorder Awareness Week - Part Two Eating Disorder Awareness Week - Part Three This week is Eating Disorders Awareness Week and often the intersection of disability and disordered eating can often go unnoticed but creates unique challenges. This is why we are making it this weeks focus. For many parents of disabled…
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Tribunal This Week
Hi Everyone, I have been a long-time lurker and have finally joined in a last minute bid for advice in preparation for my son's PIP Tribunal, which is scheduled for Tuesday afternoon. My son is 26 years old and has a diagnosis of ADHD, anxiety, IBS and is currently awaiting an assessment for autism. He has significant…
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International Epilepsy Day - Support and Signposting for Parents and Carers
As we wrap up our focus on epilepsy this week, I want to provide resources and support for parents of children with epilepsy. This post offers signposting to organizations that can offer further support, information and advice. Epilepsy Action Epilepsy Action provides information, advice and support to people with epilepsy…
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International Epilepsy Day - Reflecting on Childhood Experiences with Sara
As part of International Epilepsy Day, this is a conversation with @SaraC_Scope who was diagnosed with epilepsy as a very young child. This interview talks about her childhood experiences, explores the impact of the condition and highlights the positive and supportive role her parents played. We hope this is a helpful read…
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International Epilepsy Day - What Questions Do You Have? (For Parents & Carers)
It is International Epilepsy Day today and this is a worldwide event dedicated to raising awareness and understanding about epilepsy. It is a little bit different from the well known Purple day as International Epilepsy Day is a collaboration from the International League Against Epilepsy and the International Bureau for…
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Housing assessment at my parent's home
I became disabled in 2019 and as I have a progressive bone disease, things have got to the point where my mobility is really affected. I use a wheelchair when I'm out but can just about manage without one at my parent's house. I was living in my own home but moved back in with my parents a few months back. The home is…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
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Room for husband
Hi, in a 3 bedroom, got son at home and daughter with her 7 mnth old baby, im in 3rd room and husband sleeps downstairs ( has done for 2 years) im his carer hes recently been diagnosed with young onset dementia along with alot of other health issues , barely sleeps throught the night which has me up and down, ( went down…
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Housing Advice
Hi, I’m 23 years old with no children or partner and have mental health issues depression and anxiety as well as dyslexia and I’m awaiting an assessment for autism and adhd. I’m currently in temporary accommodation. I came to the council on May 22nd 2024 and explained to them why I was now homeless and why I left my family…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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International Day of Education - Inclusive Education
It's International Day of Education today and in this post we will talk about the importance of inclusive education for disabled children and young people. Inclusive education is crucial for disabled children because it creates confidence, empowerment and boosts their self-esteem. Inclusive education is more than just…
