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Parents of Autistic Children: We Want to Hear From You!
Hello! We are doing an IRB-approved online research study to learn how parents of autistic children feel about common autism therapies. Who can join? Parents or caregivers of children ages 4–11 with a formal autism diagnosis. What will you do? Fill out short surveys about you, your child, and your parenting style. Read…
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✍️Asking My Child's School For a Meeting & Tips For a Productive Meeting -Back To School Challenges✍
Part One - An Introduction to Back to School Challenges Part Two - Why Is My Child Struggling Going Back To School? Part Three - How Can I Help My Child Settle Into School? As a parent of a disabled child, you are their best advocate. When you have concerns about your child's school experience, effective communication with…
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I worried about being a mom with a disability. Now, I've embraced it — all with one hand
From CBC by Kiaira Fedorus Finding out I was pregnant was one of the few times I doubted my ability to overcome and adapt. This First Person column is the experience of Kiaira Fedorus, who lives in Grande Prairie, Alta. For more information about CBC's First Person stories, please see the FAQ. Time stood still while I sat…
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🤔Why Is My Child Struggling Going Back To School? - Back To School Challenges🤔
Part One - An Introduction to Back to School Challenges Part Three - How Can I Help My Child Settle Into School? Part Four - How To Ask For A Meeting With My Childs School and Have a Productive Meeting? It’s been a few weeks since school started but if your child is still struggling to settle in, feeling anxious or having…
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🔔Back to School Challenges - An Introduction for Parents & Carers of Disabled Children🔔
Part Two - How To Find Why My Child Struggling with Going Back to School Part Three - How Can I Help My Child Settle Into School? Part Four - How To Ask For A Meeting With My Childs School and Have a Productive Meeting? Now that we're around two weeks into the new school term after the summer holidays, I wanted to create a…
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Parents of Autistic Children: We Want to Hear From You!
Hello! We are doing an IRB-approved online research study to learn how parents of autistic children feel about common autism therapies. Who can join? Parents or caregivers of children ages 4–11 with a formal autism diagnosis. What will you do? Fill out short surveys about you, your child, and your parenting style. Read…
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Universal credit carer and pregnant
Hi wondering if anyone has any help or advice. Me and my partner claim UC he is disabled (LCWRA) and I am his carer and claim carers allowance and not in employment. We also have 2 children. Im currently pregnant and experiencing in December. I’m confused when I inform UC as me being pregnant doesn’t add anything as I’m…
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Dad with cerebral palsy shares parenting hacks
From BBC News Vic Minett BBC Radio CWR. Tanya Gupta BBC News, West Midlands A man who is living with cerebral palsy and has become a stay-at-home dad for his 11-month-old son has taken to social media to share "laughs, hacks and life". Danny Berney, 32, a former nursery worker from Leamington Spa, has been posting videos…
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👕Sensory Friendly and Accessible School Uniforms - Summer Holiday Support Series👕
Part One - Summer Holiday Support Series Introduction Part Two - Accessible Days Out for Parents and & Carers of Disabled Children Part Three - Keep Routine At Home in the Summer Holidays Part Five - Parent & Carer Wellbeing and Mental Health in the School Holidays Part Six - Emotionally Preparing Your Child To Go Back To…
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Help Amplifying nuerodivergent voices in autism interventions
Hello! I am Joe Pasquariello, a Neurodiversity-affirming PhD student at the University of South Alabama. I am conducting an IRB-Approved online study on parents of autistic children's perceptions and acceptability on common autism interventions. While we want to hear from all caregivers, it is crucial that we hear from…
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💫🤩What Has Your Child Taught You? - Disability Pride Month🤩💫
Part One - Disability Pride Month For Parents & Carers of Disabled Children As we’re in Disability Pride Month, I thought it would be a good time to shine a light on the children of the wonderful parents and carers here in the community! As parents and carers of disabled children you all do so much such as advocating,…
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Could You Help with Standing Frame Research?
Hi! I am a researcher who is looking to co-design research around standing frames. It would help me to know about your experiences of standing frames. How did your children find using a stander to begin with? How is it now? How was it for you as a caregiver when you were introduced to supporting your child to use a…
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😄✨Disability Pride Month For Parents & Carers of Disabled Children ✨😄
Part Two - What Has Your Child Taught You? Disability Pride Month is a time to celebrate disabled people, identities, and communities. For parents of disabled children, it can also be a time to reflect on how far you’ve come, what you’ve learned and what disability pride means to you and your family! For many parents, it…
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HERTFORDSHIRE PARENTS/CARERS
Cathy Reay, author of the children's book 'How to be Disabled and Proud (or at least kinda sorta okay with it...)' will be giving a talk at WGC Library later this month. This evening event is aimed at parents and carers to help support and advocate for their children. Thursday 26th June 7.00pm Welwyn Garden City Central…
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Advice about housing benefit
Hello, I’m new here and looking for some advice. My son has Asperger’s syndrome and currently lives with us (his parents) and I am his full time carer. He is 30 years old and would like to live out of the family home into his own place and gain some independence which is understandable given his age and seeing his friends…
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TheAlienGame - A Study of Emotion Recognition in Children
Hello, My name is Will Turton, and I am a Trainee Clinical Psychologist at the University of East London. As part of my doctoral research, I am running a study designed to explore and improve how we assess emotion recognition in neurodivergent children, aged 8–11. The project is called ‘The Alien Game: A New Game for…
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Hi, my name is EdmundsonJo! How do I get hold of a P60u for my son's student finance loan?
HHi Everyone,I need to get hold of a P60U for my sons student finance loan snd I'm not getting snow here fast,student finance want evidence of my taxable benefits year24-25. All I received in that year was statuary sick pay for 28 weeks. Job centre plus say thus is not a taxable benefit (after 9 hours of being on hold in 3…
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Talking and thinking about disability in education
Talking and thinking about disability in education Who is this for: Parents and carers of children aged 17 years and younger, who would like to share their views. What is it: A study about your perceptions of the way that disability is talked about in schools. How can I share my views: A short, online questionnaire. Please…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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Leaving college
My daughter is 18 on her final year of college finishing her last exam in June this year. when do I notify UC / Child benefit ?
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Scottish child payments have stopped?
Hello all Hoping someone can help with this. We normally get Scottish Child Payments for our children and have been since they started. We migrated over to UC after the migration letter last year after being on Child Tax Credits. My children are under 16 We also get Scottish Child Disability Payments for them. But out of…
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there should…
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Life Reimagined 1 Week To Go!
Our new webinar series Life Reimagined starts next Wednesday, 21st May. If you’d like to grab one of the last remaining places, you can register for free below. Life Reimagined is a new four-part series for parents of children with special or additional needs. Julian Fraser and Angelina Hynes will share their lived…
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you ☺️
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Hello
Hi everyone, I'm a parent of a teenager with disability.I'm glad to find this community , hope I can give some contributions and also receive some support. Thanks
