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PAs / Carers not being COVID19 Vaccinated
Last week I had to let one PA go because they did not want to be COVID19 vaccinated; at interview 9 weeks ago they had said would be getting vaccinated. I turned to one of my 'emergency carers' whom I had not used before. They agreed to cover shifts. They contracted COVID last Christmas........but admitted they did not…
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Looking for views on the differences between physical and mental disabilities
Hi I have adhd with suspected autism and ocd (long waiting lists) as well as mental health conditions and I was wondering if anybody has any comments on the differences between physical and mental disabilities in terms of life experience :)
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Shout out to @Ami2301 for magazine appearance discussing motherhood + more!
Our community members mean a lot to us and so we're very proud to see @Ami2301 tell her story about adapting to motherhood in a new magazine. Speaking more about the Paranting magazine feature in her 'Undercover Superhero' blog, Ami says: Whilst I think we can all agree that's a gorgeous photo of Ami on the cover. Well…
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Police didn't accommodate my disabled grandson's needs. Recommendations for a good solicitor?
I am supporting my grandson who has been diagnosed with ASD, ADHD, Oppositional Defiant Disorder and quite possibly has Pathological Demand Avoidance Syndrome. He has recently been accused by traffic police of using a hand held phone whilst driving. He has bluetooth hands free fitted so has no need to hold a phone.. The…
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I was at a Disability Union meeting today. What campaign issues would you see as a priority?
Hi folks - I was at a Disability Union meeting today. We are a new Union and as we build ourselves up we are looking at ideas of campaigning. We are an increasing group of disabled people working with each other for each other and not politically aligned. So, what campaign issues would you see as priority? I will use them…
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Identifying with another disabled person
So long story short, I was diagnosed with R.A. when I was 15 years old, it's been many years now and I think I have mostly learned how to live well and cope with my hidden disability, but it wasn't always this way. Obviously having such dramatic changes to my health as a teenager left some scars, and I was particularly…
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I'm designing more stylish accessible furniture. What are some of the main issues you encounter?
Hi, I’m designing more stylish accessible furniture, what are some of the main issues that you in counter with products. My pet peeve with most of the products on the market is that they all seem to have a very clinical look to them. Thanks
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Read @Richard_Scope's article in the Metro about disabled childrens' access to sport
You can read our very own @Richard_Scope in this week's Metro talking about the barriers disabled children face in accessing sport and the problems posed by non-participation. Speaking about his own experience of growing up with Cerebral Palsy and how valuable being included in games lessons was, Richard reflects that to…
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My Wheelchair Fencing Abilities Expo Interview
Hey everyone please come and check out my Brand New #WheelchairFencing article that I have been doing with Abilities Expo I hope you enjoy it https://www.abilities.com/community/wheelchair-fencing.html?fbclid=IwAR1yYoLcI0rgEngz2aLGtmn4K2DpOHcDg5tbakP4a2I35mnC2UMKpvM03aE
#wheelyfencing #WheelchairFencing
#AbilitiesExpo
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Families with disabled children 'face blame culture' when seeking help
BBC: Families with disabled children 'face blame culture' when seeking help Over to you Do you have an experience of seeking help from social care as a parent of a disabled child that you'd like to share? Have you ever felt as though blame was being placed on you as a parent or carer? Do you think the national guidance is…
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Supermarkets: the pandemic, and the future for disabled customers
You might have seen that Scope have produced a report highlighting the barriers that disabled consumers have faced in accessing online, delivery, and in-store retail services during the pandemic. You can read the report here on Scope's website. It's quite long, but well worth a read. I've put a summary of some of the key…
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Swimming for disabled
I used to enjoy swimming for pleasure but since my stroke leaving me limited use down left side find it difficult in finding where i can get 1 to 1 help to get started again. My husband took me before lockdown to our local baths just to see how i could cope. The staff there were very friendly and helpful offering any…
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Solving the period problem for disabled people
Paige from Flux Panties talks to us about menstruation and the difficulties some disabled people have in using tampons, pads or reusable menstrual products. Periods are a nuisance for everyone. Whether it’s leaks, stains, cramps, or just that general feeling
of ‘meh’, we’ve all been there. But for disabled people, periods…
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Hi, my name is EllieP! Does anyone have experience of Neurofibromatosis 1 (NF1)?
Hello, I'm pleased to join this forum. I have siblings on Special Guardianship who both have disabilities as a result of a genetic condition Neurofibromatosis (NF1). I'd like to know if there's anyone in this forum with experience around NFI. Thanks in advance.
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Hi I am New to scope and to having a disability really ...?
So my story is I was 36 yrs just had my 4th child (10days postpartum) and I had a SCAD heart attack. Paramedics couldn't believe it thought I was having a panic attack. I was taken to hospital where after tests they believed it was a SCAD spontaneous contrary artery dissection. I fitted the criteria stressed young woman…
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Anyone got a positive experience of using a Sunflower Lanyard? What do you have to do to get one?
I was watching a programme in the week ITV Tonight. Hidden Disabilities. In this episode it mentions the Sunflower Lanyard and the help you can get having one of these Lanyards Has anyone ever used this in a positive way. I am thinking of applying, but I would imagine I have to jump through hoops to get one. This would…
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Lack of sleep due to overactive stoma
Hi, I have a perminent ileostomy due to my crohn's disease and it has been overactive the past few days and has leaked 3 days in a row at night. I've been up since 3am and it has leaked twice this morning. I always seem to have problems with it at night and can't remember the last time I had a full nights sleep.without…
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Posting on behalf of Cerebral Waves
Disclaimer: Includes adult language and themes Hi, it’s Jack, I’ve had cerebral palsy from birth. This causes a tremor and slurred speech. Despite this, I attended mainstream school. This is my first foray into writing rap lyrics and I wanted to see how they were received. https://youtu.be/D3ALlUTt_fk
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Found opportunity
Hello to scope community I found a new opportunity to be come a poet laurel for Coventry City culture I going to apply for the opportunity I will definitely keep you posted on how I get on
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Scared
Well hello everyone what a **** night's sleep I have had in pain and worrying about what I'm going to get told at breast clinic today also waiting on my doctor to ring with blood results I'm so scared ???