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Hi, my name is DeafBlindMom! I was reading about the child who is ripping her clothes
Hey Everyone, I'm new here. I was reading about the child who is ripping her clothes. My child does a similar thing. She is 18, DeafBlind, and has CHARGE Syndrome. She is very autistic like in most of her behaviors and functions at about a kindergarten level. She is nonverbal. She communciates behaviorally and with basic…
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Discover the work of the National Bobath Cerebral Palsy Centre
Did you know Cerebral Palsy (CP) is the leading physical disability of childhood? Here at The National Bobath Cerebral Palsy Centre, we are proud to be at the forefront of CP treatment and training in the UK, with over 65 years of knowledge and experience. Learning more about the condition means you’ll be better able to…
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Are You A Carer?
Do you
care for someone with a disability they were born with or developed in their
childhood? Is the person you care for at least 40 years old
and of Black or Black Mixed Heritage? We
would love to interview you and hear about your experience of caring for a
Black person with a lifelong disability and ageing well.…
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Shoes that fit orthotics ? Help!!
My son got his Foot Orthotics today, I haven’t a clue how he will ever be able to wear shoes?! There so big and bulky? What do you buy for your children? He is only 2.5 years old so small feet x
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Conduct disorder/ oppositional defiant disorder
Hi all, does anyone has experience of children with conduct disorder/ oppositional defiant disorder?
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Summer holidays
I am so ready for my 6 year old going back to school next Tuesday he has adhd and asd I’ve had a ton of things planned for during the holidays but haven’t been able to do half of it due to his behaviour 😢 His latest trait has reached a whole new level he constantly follows me everywhere in the house can’t even go to the…
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Hi, my name is carlajo94! Sleep issues with my child
Hi my name is carla and I wanted to join scope to try and get some help with sleep issues with my child
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Struggling new mother, expected healthy baby, disabled baby
Hello, My daughter is 6.5 months old and its been torture since day 1. I was expecting a healthy baby, the birth was complicated, she had very bad jitters, wouldn't/couldn't feed, I struggled to breastfeed for 11 weeks, she lost weight, I was pumping after every feed so my freezer was full and reluctantly topping up with…
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Education
Do hope this is in the correct section I am a carer for my nephew who has severe adhd it began when he was 10 years old he was in foster for a year prior I asked to be special guardian shop and he came to me I had visited him all ok the fosters said he on meds and goes to school likes footy and sent updates of things they…
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Needing advice please how do I coax my 17 year old daughter outside
This discussion was created from comments split from: My son has autism and I can't get him to leave t he house anymore. It's affecting all of us.
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Amy advice on respite care for SEN child
Not sure if anyone will be able to help but I’ve already been awarded 26 nights of respite for my son, he’s 10 years old, attends school, he has diagnosis’s of Autism, Sensory Processing Disorder, ADHD, non verbal, absence seizures, he has quite complex behaviours. We’ve been trying to get him respite for 5 years now, I’ve…
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Cerebral Palsy and Pregnant?
Hey everyone, I'm new here but it's been recommended to me by a few people over the years. I'm a full time wheelchair user with quadriplegic cerebral palsy - and I've recently found out I'm pregnant (unplanned). Does anyone here have any experience or tips that they could share on the journey and how they found it? Thanks…
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Respite Support
I am looking for advice on where I can receive overnight respite support or if anyone in the community has got any experience of this or can point me into a general direction… My son, who is 6, has severe Autism. He needs support in almost allaspects of his life. He also has a sleep disorder, which means no two nights will…
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Link for go fund me : for disabled child
I’m trying to go fund me for my daughter : won’t give nature just yet . But am I allowed to put on this site the link as it’s due to disabilities? Thanks
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Hi, my name is Hearn1958! Wanted to see what help I can get for my son
Hi I'm Melanie ive joined this group to see what help I can get for my son I am his carer and he needs help with a new bed and cook can anyone point me in the right direction. By the way he has paranoid schizophrenia. I look forward to hearing from someone. Thanks
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Help with mum's social care assesment?
Hello, I have requested a needs assesment for my Mum. Social care advised I need to request a continuing healthcare assesment first and wait for the outcome. The CHC process can take weeks. The checklist has been completed which has triggered an assesment but they can't give timescales. My Mum has care and support needs so…
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Finding days out so hard just don't know what to do.
Hi, My eldest child has Autism and my youngest doesn't. Days out are often so hard with refusal to walk, he often gets stuck on things he sees he enjoys and won't move then I'm forced to try and carry him away and he gets very violent I just don't know what to do. I don't want to be unfair to my youngest child who loves…
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Informal kinship care
I’m looking for some advice about informal kinship care. I’ll try to make this short. My mum is 48 with a 3 year old son, she had him after her boyfriend (10 years younger than her) basically bullied her into having this child. She’s a functioning alcoholic and substance abuser (marijuana) and has borderline personality…
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Two teenagers with ADHD, any advice would be appreciated
Hi everyone, Claire here. I’m a mother of two teenage daughters, both of whom have confirmed ADHD. My youngest, who is 14 was also diagnosed with ASD. She is refusing to have any contact with me and is living with her dad. He is doing nothing to encourage her to see me. I am sad beyond belief. Any advice would be so very…
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Am I wrong to be concerned about autistic son Around ex’s partners
Really difficult to explain and I imagine some won’t either see the problem or agree with me, I do get that. My son is five and is severely autistic. He lives with me as I’m more consistent around routine etc than his mum. He needs a very strong routine and her having two other kids makes that harder for him so we decided…
