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I'm really struggling
I don't know where to start. But I feel like I don't want to be here anymore. I'm really struggling to be around my 4 year old. She has rare conditions and is non verbal and lately all she does is whinge whinge whinge. I have ADHD and the noises she makes Peirce my ears like a knife and I end up leaving the room. Im…
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I am worried about my daughter with cerebral palsy. She accuses me of destroying her chance to walk
This post is actually three posts that I have posted on different subreddits for people with disabilities. However, I have not found support there. Maybe I can get support here? I wonder if it's me demanding too much , or if my daughter may be depressed. To be clear : We are not from US or UK My daughter is 27 years old,…
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Hi, my name is Scott need advise
Hello I'm wondering if someone could help me with some hints and tips for getting my 3 year old to sleep. She was born with part of her brain missing and has seizures since the last one no matter what I do she won't sleep till 4 or 5 in morning and back up at 8 and I can't seem to help her making me feel like I'm a bad…
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Interested in looking at prepaid debit cards and the most useful forms of ID for my son
I'm interested in looking at prepaid debit cards and the most useful forms of ID for my learning disabled son
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cuppa tea and a chat?
Does anyone know of any social groups in the Sandwell area for physically disabled adults and their carers?
Both my Wife & myself are feeling pretty isolated, we'd love to see a different face and meet new people for a cuppa and a chat
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Hi to all. My sister is being nasty to me about my past. What can I do to help myself?
My other sister who lives in Ireland is been nasty to me about my past because I find it very hard to deal with what happened she's says I should forget what happened and move on but their is so much to deal with trauma what I've been through she not me she hasn't had my experiences and she dosnt understand how I feel…
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Looking for advice for my 5 year old sister. She may have autism and ADHD
Hi. I’m looking for any kind of help for my sister. She is 5 years old. She is typically well behaved and kind but recently it is becoming more often where she gets violent and won’t listen. I cant find a trigger for this change of behaviour, it’s literally like a switch has been flipped. Sometimes she lashes out at…
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20 year old child waiting for autism assessment, how can I support them best?
Bit of background my child spent most of their life living away from me and the only contact I was allowed a letter twice a year. They still don't live with me but we have been in full contact for just over 14 months. We discussed lots of medical issues we both have, but the one I am finding the hardest to navigate is the…
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My Sister has had a Fall
Hi to all, My Sister has had a Fall in the Bathroom of a Nursing Home how do I go about complaining she is Obviously not been watched close enough what can be done to ensure this is Put Right. I did inform them that she is not stable on her feet and she shuffles when walking. Advise would be helpfull please.…
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Whizz-Kidz Community Change Fund
For more information please email info@whizz-kidz.org.uk or click here to request an application pack :)
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Second hand equipment for Snappi buggy
Hi does anyone know of a website which sells secondhand eqipment for a size 1 Snappi buggy as my daughter has just got one and I resent paying nearly £100 for a raincover especially as when she grows out of it, the buggy goes back to the wheelchair service then I would be stuck with the accessories. Other people must have…
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Disabled Parent
Hi, I’m new here. Hoping to be able to find out some info and a safe place to chat with others. I am a 32yr old mum of two wonderful children 9 & 2 I have lupus, rheumatoid arthritis. It developed when I was pregnant with the little one. I have a wonderful supportive mum who lives close. my 9yr old is at school full time…
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Baby bedtime routine 2 months old
Bedtime books are a great way to help your child fall asleep. It's a simple solution that can take the place of a story every night. I found out about this accidentally when my then 1-year-old son started getting lost in his books during bedtime. I searched for bedtime books for babies and found a few that got 4-5 star…
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A very different Christmas to others.
Hi, so I've been really ill during the run up to Christmas, I have 3 high needs kids all home full time, rarely getting a break, my kids have been getting ill also with winter bugs etc and kids dad has autism and ptsd which he's currently getting therapy for the ptsd. On top of all that I suffer with herniated discs in my…
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Dads birthday
23rd December Today is the anniversary of my Dads birth I think of him every day, but especially today As a child you used to throw me over your shoulder Carry me across your back to places I otherwise would never reach I sometimes imagine I still ride high upon your shoulders Whenever I do anything, I wonder would he…
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Could you help with Scope's research?
Scope’s research
panel allows disabled people to use their expertise and lived experience to
help Scope in achieving equality for disabled people. About
the panel The insight we
gain from our panellists allows us to create and improve Scope services and
campaigns. Some projects also run in partnership with other…
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Moving from America to UK
Hi I'm looking for advice for my sister she traveled to America and had 2 children over there her and her partner aren't working I'm wondering any advice what my sister can do as she's worried she may have to leave her children there when she comes back to UK also she has no money at all so she's living off him he gets…
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Recent become my Granddaughter's guardian. Am I entitled to help
have recently become the guardian of my 10 year old Granddaughter i m on Esa and pip what help am I entitled to
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Grief & bereavement of a parent at Christmas
Hi 👋🏽 Does anyone have any tips on navigating the bereavement and grief of a parent at Christmas? And how to deal with family who might not understand? (I am neurodivergent as well as physical and mental health conditions too.) thank you xx
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Small Breaks/Personal Budget - Understanding our rights and getting help
Hello,last year (about 14 month ago) I applied for and was accepted for a small breaks program for our daughter. Our council strongly suggested they pay us a personal budget to employ our own help. To us it felt that this would be most suitable for those who have family helping and want to formalize for example…
