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Happy Mother's Day!
Happy Mother's Day to all of the lovely mothers, mother figures, and mothers-to-be on the community :) Being a disabled mum Being a disabled mother can bring about some challenges. If this is something you're facing, you might like to read Molly Carnan's blog on Simply Emma about what it's like being a disabled mum. Being…
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Are you a mum whose disabled child has moved out of the home? We'd like to hear from you!
At Scope, we understand that being the parent of a disabled
child comes with a huge range of emotions. For Mothers’ Day, we want to learn
from mums whose disabled children have moved to independent living or
residential care. Our social media team would love to hear how your life may have changed, and how the
transition…
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A father on his knees desperately needing help for. My family..... Please. Please help
Hi all. We are a family of 4 living in Wales. Me, my partner, my 12 yrold daughter and my awesome son who is 5. My son was born with a rare illness X type myotubular myopathy. He has been in ah hospital for 4 yrs of his life which has been very hard middle of covid ect. I could go on and on about a lot more things that is…
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Pay my dad for live at home
How much should I give my dad for rent and gas and electricity I buy mine own food paid my own phone top up
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Delaying toddler’s surgery for hip subluxation?
Hello everyone. I am mother to a beautiful little boy, with cerebral palsy. GMFCS 4, spasticity in all four limbs. He is extremely healthy and exceptionally happy child, an absolute joy to care for. He is also making brilliant progress with his motor skills, now at 3 able to army crawl between rooms, roll around, and plays…
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Homeschool
Hi I'm new! My 11 year old daughter is about to be assessed for ASD and has severe anxiety. School is a huge issue for her. [sensitive details removed by moderator]. She is currently off school as mentally very fragile. I am currently off work to take care of her and I know she won't be at school for some time. Has anybody…
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Hi, my name is Ash6969! I struggle with my mental health, and might have autism
I'm self diagnosed after a psychiatrist pointed out I could be autistic. I've struggled with severe depression and my mental health for years. I'm no longer able to cope with my daughter or being a mum. After days of seeing or being around is so stressful I get overloaded then need 18 hours of down time and sleep because…
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'Growing Together' - we must take children's mental health seriously
Children's Mental Health Week is drawing to a close today. It's a time to reflect on the mental health of our children, and how we can improve the mental health of future generations. You can find out more about Children's Mental Health Week on Mentally Healthy Schools' website. Children's mental health and the pandemic…
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Single mother with disability
Hi all wondering if anyone else is a single mother with a disability on here. Would love to chat about coping skills and not getting too overwhelmed. Xx
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A family of multiple complex needs
Hi, we are a family where we all have conditions. So my partner this week, was diagnosed autistic, we have 2 children diagnosed autistic also, one of them has mobility difficulties as well and requires physiotherapy and specialist insoles made to support her feet. And I have mobility difficulties and struggle with hip pain…
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My son has multiple health conditions. Is there any support for children with disabilities?
Hi! I'm mum to a 9 year old who has multiple health issues including a renal condition. He was born very prematurely and has global development delay and a recent diagnosis of ADHD. Is anyone aware of any support for children with disabilities? I think it would be really beneficial for my son to interact with other…
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Power of attourney
Hi. My daughter who is disabled will be 18 this weekend. I am her appointee, approved by DWP for her benefits etc. I've looked on line but I can only find expensive solutions to arrange for me to be her POA.. I am age 64 and disabled. I Am Jen's Mum and Carer. Any advice appreciated please. Thank you.
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Hi, looking for help managing violence and aggression please 8yr old son
Hi everyone. I am new here, single mum to two boys and my eldest is waiting for assessment..possible ASD/ADHD. Inattentive ADHD possibly. He's 8 and a very sweet boy. But just doesn't listen. And doing anything going anywhere is difficult as he won't listen so can't get anywhere on time. Then erupts in a cloud of violence…
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Social prescribing
We are new to "social prescribing" and wonder if anyone here has experience of help from their local "social prescriber". We are expecting a call from the GP this week to try another referral (a previous one was rejected).
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Finding a holiday
Hi, can I get some advice, can people tell me where they look to find an accessible vacation house when they want to go on holiday with their familly? thanks for reading, any advice wellcome.
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How do I get appointeeship?
I will be very brief to begin with. The local council is still paying the old care home my adult daughters funding! she has been home for nearly a year and they said they won't back pay. They also are insisting that once it's sorted I use Money works plus etc to control the money but I refuse after all the drama I've been…
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Hi, my name is suezi! Can somebody give advice on my daughter's care package?
Hi everyone im a newby here. My daughter is adult severe learning disabilities autism epilepsy and mostly non verbal ( although can say NO an awful lot :) she has challenging behaviour and is my beautiful loving cuddles light in my life. Fekkin difficult most of the time but im sure you guys may have very similar lives.…
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Has anyone given up working to be a carer?
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I am to blame for my elderly father's untimely death...
All I can manage to type is that I am feeling beyond guilty and 100% responsible. I was obviously not there at his deathbed. I don't know if the idiots at the hospital even tried to save him. I wonder so many things like what he was thinking, saying, feeling in his final minute. Was anyone there to hold his hand, to kiss…
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Hi, we are Brookefamily and our 4 month old was diagnosed with Erb's palsy and a stroke
Following his horrific birth He has left sided weakness and we are doing everything we can to help our son with rehabilitation and treatment
