-
Hi, my name is Piggy11! Looking to gain support from likeminded parents
I am looking to gain some vital help with likeminded parents - feeling the struggle!
-
Hi, I'm HippyRick! My partner's child is in care due to her being disabled, can anyone help?
I’ve joined the community because my partners child is in care due to her disability. I’m with her now, but also disabled and they are saying we are not the right parents for our child despite him screaming to come home with his Mammy at every contact meeting. Our solicitor is useless and we believe he is in cahoots with…
-
Can I use my DP to pay for the cost of taking my PA with me on holiday?
I’ve booked to go on a short 4 night holiday in July and need my PA to come with me to provide assistance. Can I use my DP to pay for the cost of taking her? There is more than enough money in my pot and one of my goals on my support plan is to travel more. There is not a specific action plan for that goal, only to bank…
-
Carers allowance help
Hiya Have informed all the necessary benefit sections about temp change of circumstances ie my son is in hospital...my sons PIP has been suspended untill he comes hope, which is expected to be in the next week or two. I recieve carers allowance and informed them online but when I rang about my income support the said they…
-
Can you claim backdated SSP if GP can provide sick note for that period?
Hi all, my wife has been acutely unwell since February, is it possible to claim backdated SSP if the GP can provide a sick/fit note to cover that period?
-
Hi, my name is Kay1013! My son has autism, and I'm struggling with his sleep
Hi
-
Friends for my daughter like her, and getting chiropody on the NHS
Hi - i have a 20 year old daughter with cerebral palsy. She does have friends, but still becomes disheartened because her disabilities are more physical than mental/learning and she is still keen for a close friend with whom she feels she has a lot in common. We are not disrespecting people with mainly learning/mental…
-
Advice, guidance for my daughter transitioning to adult life
I have join this group to get as much support as I can for my disabled daughter, she is 20 in August and learning problems, epilepsy, chronic pain syndrome, depressed because she has no social life. She wants to start some kind of work part time but she has limited mobility due to pain. She did want to stay on at college…
-
Support Worker for Autistic Adult
Hello everyone. I would like to know of your experiences and contacts if you have any, for funding for a support worker for my 21 years old autistic son. He hasn't been out of the house for nearly two years. He was at a special school who took him out regularly (for a coffee, walk etc). Since leaving school at 19 he's…
-
Hi, I'm a mother of daughter who will be 17 in January she has POTS
I'm a mother of daughter who will be 17 in January she has POTS and mental health issues we live in Sutton coldfield in Birmingham xx
-
Advice on finding a carer for a child with complex needs
Hi, Does anyone have any advice on the best place to find a reputable carer for a child with severe disabilities? We found our previous carer through our physio and she is amazing but has just told us that she is moving so won’t be able to work with us for much longer. I feel as though we are back to square one and I’m not…
-
Diagnosis of PVL at age 3 years and 10 month. Is my son at risk of having seizures?
Hello, My son was just diagnosed with PVL at almost 4 years of age. HE is not the usual child but has never had epilepsy or any tension in his muscles. He has a different behaviour o other children but I still don't know to what extent. He was born early at 33 weeks and IUGR, size of a 28 weeker and he is a twin. Is he at…
-
PVL - helpful therapies and approaches? Advice please...
Hi all, I'm new around here and I have a nephew (15 months) who has recently been diagnosed with PVL and some genetic abnormalities. He is globally delayed and under a paeds neurologist and a physio who sees him weekly. My family and I are trying to search the internet for more information about PVL and associated problems…
-
Hi, I'm Juliewoo! My son has been diagnosed with autism. We feel a bit lost as to what to do next.
Hi, I found this forum after looking for advice/support. My son has recently been diagnosed with High Functioning Autism (paediatrician said he would previously have been diagnosed with Asperger's). This has taken over two years since his school instigated a referral, but he's had his challenges since way before that. I…
-
Hi I'm DKBur! My son has autism. Hoping to get some ideas on giving him the best opportunities
Hey everyone. I am a proud father of a son with Autism. He's only 4. He's an absolute little star ⭐. He is also a whirlwind of chaos and comedy. Hoping to get some ideas and advice from people to make sure he has the best opportunities possible.
-
Good afternoon to all the wonderful people.
(Removed by moderator, personal details)
-
Hi, my name is me23!
Hi, im new to this but just wondering if anyone has a child that’s been told they might have adhd/autism
-
New diagnosis, so many questions??????
My beautiful 20 month old daughter has just had a MRI brain scan which showed she has PVL and Quadriplegia Cerebral Palsy. Although I expected it to show Cerebral Palsy I was a little shellshocked about the PVL and that her CP was quadriplegic. She has been having physio for 7 months as she cannot sit, stand, rollover and…
-
Deputyship at 18
Good Evening! I’m new on here & wanted advice & support where possible. I will keep it as brief as possible. So I am a single parent, won a small negligence amount for my sons birth and therefore from the High Court I was given a court of protection deputy. My question is as parental control ends at 18, the deputy is…
-
I'm a disabled grandad and look after my granddaughter. I'm worried about the future
I’m a disabled grandad who has looked after my granddaughter since she was 5yr old she is now 15yrs old but I am worried about my granddaughters future how she will be able to cope if anything happens to me , I’m. 73
